CSN Login
Members Online: 10

Diffuse Large B cell lymphoma of the orbit of my eye.

cbpgill26
Posts: 68
Joined: Mar 2012

Was diagnosed two weeks ago with a biopsy. The visit to the onocologist said it is too rare he knows nothing about this and wants me to shuffle on to MD Anderson in Houston from where I live in Fl. I am so scared as all I read is disfigurment, tests, tests, and vile awake tests I am in for. I have a bladder infection now Ha. I think it is more four sets of antibiots and none have worke. What do they know? I am in misery mentally and physically. I did make an appt. at Shands in Gainesville Fl. for two weeks away first available appt. He will probably say nothing new. Can't seem to even get tests done. Where do you begin to try to save your life? I have a PET scan tomorrow. Dread it. This crap will be all over I bet. I am angry, scared and feel cheated. I am 68years young and had a lot of living to do. Now a lot of tests to do and bad pronosis and disfigurment. I wish it had been any place but my eye. Somebody help. Have any of you had this. I see no one anywhere and I have decided because the all died. Terrified in Fl. and hating the waiting game. HUgs.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network