Apr 05, 2012 - 1:05 pm
I am new to this site but am very interested in what everyone has to say.As my 16th anniversary approaches from my horrific battle with non-Hodgkin lymphoma I am looking for some answers to try and relieve my constant cough and breathing issues. At the age of 29 (1995-96)I had Stage IV type B large cell non-Hodgkin lymphoma.After 3 rounds of CHOP I experienced heart issues and they switched the next 3 rounds to ICE. By December of "95 I was in remission~very short lived, 2 months later it was back and was now extremely aggressive-the tumor was massive.After 3 rounds of very high chemo I had a stem-cell/bone marrow(autologous)transplant followed immediately with 28 doses of radiation. Absolutely overcame the odds and am still hear to talk about it but I am frustrated with having a continuous exhaustive cough and breathing issues.I have scheduled an appointment with a pulmonoligist at Beth Israel in NYC to explore a procedure they are now doing on severe ashtmatics called Brochial thermoplasty.I have no idea if this is something that could help my situation but Im excited to find out.My appointmentis April 27.Has anyone else looked into this option or have opinions on this.I know Im very lucky to still be here but would be so grateful if my quality of life improved.