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stage 4....do not give up

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

well the phone rang last night....doc saying lung xray clear and cea down.....on Monday I will do liver scan but with the good cea I feel more confident

totally floored....could barely breathe....for newbies.....diagnosed in 05 with colon and moved to liver mets....total death sentence.....got resection.... chemo...more liver mets ...more resection and then xeloda and oxalylatin chemo.

sooooo I have been very quiet lately but watching and listening. I did not dream that I would still be going after i had so many dire things said to me. guess my message once again, do not give up no matter how dire it may appear.

Last night I just lay in bed and hubby read Anne of Green Gables to me and i drifted off to sleep....funny how much better one sleeps with a little confidence of living at least a few more months.....

I do not know why i continue to survive. I eat well but not perfection.....i exercise some but not enough.....I do not know

but here i am and on we go with all the best to everyone fighting......

best love......maggie

Lovekitties's picture
Lovekitties
Posts: 2989
Joined: Jan 2010

So very glad that you have gotten some good news, and pray for best results on the scan.

Regardless of any reason you are still here, be assured we are so very happy you are!

Dream of a long future, and may your dreams come true.

Hugs,

Marie who loves kitties

tko683
Posts: 257
Joined: Aug 2011

Maggie,
I loved reading your post, so encouraging to see you doing well. I hope your Ct is also good news. I have to share with my husband as he is on the same road, starting his second round of chemo and heading towards another liver resection. He needs to read your post. Thanks for sharing and best wishes for continued good health! Hugs, Teri

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Every bit of good news is such a blessing and you know how to appreciate those good news events. Pray good news continue to follow you. Jeff

pscott1
Posts: 207
Joined: Jan 2011

How amazing is that? 2005 and here you are....I pray I go the same path. I was diagnosed last January Stage II, 2 cm x 3 cm tumor and 18" of my colon removed and a month later, Stage IV multiple mets to liver. Have gone thru Folfox w/Avastin then Avastin only but now have been on a chemo break since January 13th. I guess we can't predict how this journey will go. I pray your scan is clear. My last CEA was 1.0...I am so very hopeful but in the back of my mind I always have that tinge of fear. I'm so happy for you that you have survived this dreaded disease and done so well. I know what you mean about healthy eating and exercise; I try not to take even one day for granted and make sure I'm doing everything in my power to better my chances of living a long life. I will keep you in my thoughts and prayers. Please update when you get the results.

Hugs to you Maggie,

Pam

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Hi Maggie,

I am so happy to hear the great news. You have been one of the special Angels who has helped me along the way. It does my heart and head good to hear your news.

Celebrate and enjoy every day!

Best wishes and love to you,
Lizzy

Nana b's picture
Nana b
Posts: 3015
Joined: May 2009

Because your hubby reads Anne of Green Gables to you that's why! Your relationship plays a big part in your healing....

Rah, Rah to both of you!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

AWESOME news!!!!!!! YAY!!!!

Jennie

lesvanb's picture
lesvanb
Posts: 908
Joined: May 2008

and what a lovely vision of reading Anne of Green Gables. Yes how delightful to have some confidence in being alive for a few more months :). Enjoy your spring and best wishes for the rest of your scans.

All the best, Leslie

ron50's picture
ron50
Posts: 1309
Joined: Nov 2001

I've heard it is fairly common for wives to drift of to sleep at the sound of their husbands voice :):):) Big Hugs Ron.

tootsie1's picture
tootsie1
Posts: 5013
Joined: Feb 2008

Maggie! That's fabulous!!!

*hugs*
Gail

Semira's picture
Semira
Posts: 299
Joined: Mar 2012

... and sooooo good to read.

Keep on gooing ;-)

Hugs from germany
Petra

PhillieG's picture
PhillieG
Posts: 4679
Joined: May 2005

Thats great news! All signs point to more great news.
My thoughts are with you my friend. Who knows why some do better than others, I often think Who We Are as individuals makes much of the difference.
-phil

janderson1964's picture
janderson1964
Posts: 1778
Joined: Oct 2011

That is awesome. Thanks for the great news. I was diagnosed stage IV in 05 as well.

Jeff

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

good news to the board, hope to see you more often here from now , we need you!.
Hugs my dear friend.

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

thank you for your thoughtful replies. There are more and more stage IV METS to liver survivors in my area. We are a small city of 20,000 and unfortunately there is no group for us to get together. Breast and prostate cancers both run get togethers but that is all.

It is puzzling why we survive ...i know you have been thinking about this question Phil. I hope it does hope to all of you on the path...baby steps I guess.

Ron you make me smile and Lizzy I send you special special hugs my friend.

Hi pepe....will try to be more present

mags

janie1
Posts: 753
Joined: Apr 2011

Excelllent news. I think the fresh air in Canada may have something to do with your good health. ;)
I would so love to get away from pollution.
Here's to a long trouble-free life.

lauragb
Posts: 368
Joined: Aug 2011

This is such good news. Makes us all feel better, I think. Such a sweet image, you being read to.
Light and love,

Laura

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

i was diagnosed with inoperable liver mets in the middle of a long cold snowy winter. There seemed to be no where to go and nothing to do but wait to die. Hubby read to me at night in bed.....that book The Travels of a Gentlewoman In Upper Canada.....written around 1850. it seemed to me that the stories of hardship, travelling by canoe....it all seemed to soothe me.

Then a couple of weeks later we had a call from an onc who wanted me to meet with a very young liver surgeon.....tadahhhh that was in 06. Fear is still never far from the door....but that is my personality.....I do not like to fly too close to the sun.....hahah

mags

Jaylo969
Posts: 826
Joined: Jan 2010

Great post Mags! I am very, very happy for you! Now, enjoy th Summer!

-Pat

smokeyjoe
Posts: 1428
Joined: Feb 2011

Congrats Mag, this is wonderful news. I do have a question for you though as I'm in Ont. too, but why do the oncs. not scan chest?? Why would you have a x-ray for lungs and a separate scan for liver?? Do x-rays show things better in the chest area over CT??

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

here is the reason....cat scans give off a lot of radiation. Since i have survived so long i have had lots and lots of CT scans....so the last visit the onc came up with this plan. She decided to do cea first.....if that were to be wonky she would go back to the ct.....if cea was low she is trying chest xray and ultra sound of the liver.....both techniques emit less radiation than the ct......that is her thinking and I am just following her along.....

hope this helps

mags

Cathleen Mary
Posts: 622
Joined: May 2011

When one of us does well, we all do well! What uplifting news. I am so happy for you and your husband....enjoy life.

Hugs,
Cathllen Mary

smokeyjoe
Posts: 1428
Joined: Feb 2011

Okay thanks.....I asked the tech. one time about why onc. not scanning chest and his remark was that the oncologist was sparing me the extra radiation to the chest area. So, okay, I thought he was just humoring me to shut me up.....now hearing it from you too it put me more at ease.

GoBucks
Posts: 28
Joined: Dec 2011

I'm glad you are getting positive news and it does my heart good to se long term survivors thanks for your update.

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

Maggie, I don't come here often...most often for research regarding treatments...I'm in similar cancer story as you but haven't been at it as long. So wonderful to read your post today and the great comments as well...cheered my right up <3 Love, Janine

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

Dear Maggie, I am so happy to hear this news. I have been stage 4 as of 2009. 2 liver resections (chemo) and so far so good. It has been almost a year since my 2nd one. I am getting a ct on the 16Th & I fully expect a good result. Well pretty much, anyway.
So, the longer we live, the better we make everyone feel. works for me. LOL.
Hugs to you my friend, and your wonderful husband. Mine reads me coupons, ; )
Judy

sdp's picture
sdp
Posts: 169
Joined: Jan 2012

Hi,

I too supposedly have liver mets non operable at time of dx on 31 dec 2011.

No resection of anything , was put on chemo straight away. , FOLFOX plus erbitux.

After two months had partial response to chemo, 50 % less tumour size but still have tumours
Of 6 cm and several of 2 to 3 cm in seven segments of liver, am based in Mumbai, India.
Since chemo working back to another two months of same regime. Next scan May 15 th 2012.

Pl tell me where you got ur liver resection done and if it was a two stage resection,
Which is what UCLA is proposing in my case.

Also what hospital etc, and what supplements u took to ensure chemo doesnt mess
With the normal liver functions.

Thanks, in anticipation of ur reply.

Sdp

sdp's picture
sdp
Posts: 169
Joined: Jan 2012

Hi,

I too supposedly have liver mets non operable at time of dx on 31 dec 2011.

No resection of anything , was put on chemo straight away. , FOLFOX plus erbitux.

After two months had partial response to chemo, 50 % less tumour size but still have tumours
Of 6 cm and several of 2 to 3 cm in seven segments of liver, am based in Mumbai, India.
Since chemo working back to another two months of same regime. Next scan May 15 th 2012.

Pl tell me where you got ur liver resection done and if it was a two stage resection,
Which is what UCLA is proposing in my case.

Also what hospital etc, and what supplements u took to ensure chemo doesnt mess
With the normal liver functions.

Thanks, in anticipation of ur reply.

Sdp

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

dearest sdp: 50 percent shrinkage sounds very good to me. Do not give up...others here have been told they could not have resection and then after chemo they were successfully resected. I do not know what a two stage resection is.....I entered hospital in London Ontario Canada and had all of the right lobe and a great deal of the left removed in one operation....after that i did xeloda. After the second resection I was on on xelox....

I have never taken any supplements and continued with my normal life style.....

sorry I can not be of more help....wishing you only the very best.....

maggie

Luckygirl2
Posts: 308
Joined: Mar 2012

You made my smile! You gave me a great idea for my husband! Aren't they great to have around! Bless you both and have a great Easter!

seek@light
Posts: 26
Joined: Dec 2011

as a depressed son with a Stage 4 mom and heavy work load myself, you cheered me up. Thanks! and waiting for even better news from you

Eltina21's picture
Eltina21
Posts: 174
Joined: May 2010

Wonderful, wonderful news. Your blessings are tryly inspiring. Continue to smile and have a great day.
Peace and Blessings,
Eltina21

Kathleen808's picture
Kathleen808
Posts: 2316
Joined: Jan 2009

Maggie,
I just love you and am so happy to share in your good news. Prayers for many more good scans.

Aloha,
Kathleen

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

Awesome news Mags. Tom

Sundanceh's picture
Sundanceh
Posts: 4312
Joined: Jun 2009

Congrats on your good news - and special congratulations on reaching 8-years....I'm about two months behind you and then I will be at eight-years as well, though still fighting on and off, but still able to reach a plateau such as this.

It's not easy making it to 8-years...I remember your Xmas card about how many we have lost along the way - so many, too many too even count. So, reaching 8-years should be shouted from the highest rooftop...it does mean something...it is significant.

Because, the message is...that we can extend and keep going...depends on a host of factors, but there are a handful of us that will have done it...and keep on doin' it...for as long as possible.

And that's the important message for the group right there...thanks for delivering it:)

-Craig

Erinb
Posts: 295
Joined: Apr 2010

Great News! Thanks for the inspiring story.
Erin

toyfox's picture
toyfox
Posts: 156
Joined: Apr 2011

You are such a kind person.
So happy that things are going well for you.
Take care....Linda

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

Maggie, I love this. Thank you. I need to hear over and over again that this can happen. May you have many good, long years ahead of you.

Sandy

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

thank you all so much.....it really is very little to do but I think you must hear that it is possible. I remember so well thinking.....done finished over.....but apparently not true

Sandy I can tell you over and over again...it can happen....don't know why but it can happen

all best Easter love to all

mags

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

8 years stg4 is great & great to hear. Keep it up, your winning.

Calluna
Posts: 7
Joined: Jan 2012

I've been lurking here for months but never posted before - I just wanted to say thank you, because I've been revisiting this post a lot the last few days and it's helped calm and soothe me when nothing else has. I'm so pleased your battle has been so successful so far and I hope you remain NED forever. (And now I may just have to go dig out my Anne of Green Gables books and put the DVDs on sometime!)

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

oh how nice of you to speak..I do remember feeling so shy so unable to speak on this forum..

welcome.....I am very happy that you have spoken.....yes do dig out the Anne stories...that little red headed girl will soothe your soul....:)

mags

taraHK
Posts: 1961
Joined: Aug 2003

Oh, what wonderful news! Terrific.

And I could hear your story over and over! You bring such hope to many here.

Love,
Tara

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

had complete abdominal ultra sound yesterday and my doc just called to say it all looked normal. so that is since my last liver resection in 08 and then xeloda and oxy all through the spring of 09. I seem to be okay since then.

re the ultra sound versus the cat scan.....wow I found the ultra sound really hurt especially when she was digging with the wand up under the ribs....still sore today but if it is not cancer and just sore dats okay with me. It may emit less radiation but a cat scan seems easier.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

A big smile from ear to ear----thank you for sharing
xo

rlridings's picture
rlridings
Posts: 43
Joined: Nov 2011

I got the same dire prognosis - "it is inoperable - you could be gone in 3 months" - that was Nov of '09 - still at it and not giving up

wolfen's picture
wolfen
Posts: 1198
Joined: Apr 2009

Just wanted to add my congrats on all your scans being clear. Heck, you know cancer isn't going to do you in. At our age, we'll probably slip and fall in the bathtub.LOL

Luv Ya,

Wolfen

maglets's picture
maglets
Posts: 2427
Joined: Jun 2006

golly ain't that the truth.....you should see me clinging to the tub as I heft the old bones out of the tub.....we are so poor we don't even have a shower....lucky to have a tub.....

sending love to both you and your darling girl.Johnny be Good

mags

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

now that made me laugh!! thanks.. ; )

RickMurtagh's picture
RickMurtagh
Posts: 538
Joined: Feb 2010

Maggie,
I am so happy for you. The stress and strain of cancer wears on us as much as the treatment and cancer itself. You deserve a break. Why do you survive? THE WORLD IS A BETTER PLACE WITH YOU THAN WITHOUT YOU AND YOU TOUCH SO MANY HERE GOD IS GIVING US A BREAK, NOT YOU! Selfishly we are thankful.

You make me smile.

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