I am a new member,my boy 9 mth recently diagnosed with medulloblastoma 3/27/12,surgery done on 3/29/12.still on vent..slow recovery,waiting everyday for news,just so painful.
The worst part, I am a physician, know too much abt this, clueless, wat am I doing?
My baby achieved milestones, even was walking with support, slowly slowed down noticed abt 10 days ago , thought was cause of ear infection and teething.but to my surprise he got the worst scenario possible.... Big tumor..he never got sick in 9 mths.
Now I think OMG.... Why me?
I don't know what next ? How ??he is fighting to survive , feels a burden to see him in tubes & lines.
Any feedback and suggestions are welcome....thnx