Apr 01, 2012 - 11:58 am
So I am brand new to this forum. I had lumpectomy 2/27/12. 1.6 cm clear, but close margins, and one micromatastesis in 1 of 3 nodes. E+, P+, HER2-. Oncotype dx score of 20. I'm strongly recommended to do 33 bouts of radiation because of the surgery results and am ok with that. The chemo was optional given the low percentage point drop in survival, but the general consensus seemed to be that I am young (46) and fit, and would get through it fine, so went for the emotional decision of trying everything. I'm finding my symptoms to be more severe and not so much what others seem to be reporting and I want to quit already. (I just started on the 28th.)
Symptoms I can deal with include the fatigue, back ache, metallic taste, and inability to eat anything dry or sweet. Minimal nausea with all the meds.
What is hardest is the despair. I seem to have lost who I am as a person, this was the worst on Friday, today I can laugh and cry again. Also I can hardly get out of bed in the am, my motor control function is decreased as if I had Parkinson's. I can't stand up straight. (I think partially because my GI system is burning from end to end). My skin hurts, especially my scalp, neck, and back. My surgery arm hurts again even though it was fine. I have to urinate every hour and seems spastic. I can sleep 4 hrs with Ativan.
Have others had these sort of symptoms and if so did you continue, and did it get worse with each cycle? Thank you.