It's not as bad as it sounds. So far, my general health is still very good. No chemo, yet!
My RCC was found accidently as most cases are discovered. That was in Feb. of 2010. In March of 2010 I had a radical nephrectomy of the rt. kidney. The pathology report came back 3rd stage RCC as the tumor was large and had protruded into the renal vein. Despite the grim prognosis; I have done very well.
Last month (Feb.) I had a wedge resection on the left lung. Of course, the report came back as the same RCC cell. Hence, the 4th stage club. Both lungs have several very small nodules in them. Treatment for now; is no treatment unless the nodules begin to grow or they re-colonate in another organ. Then, I suppose; I'll consider chemo of some sort. I've had an MRI brain scan (Mar. 21st and that came out clean. My last ct-scan on Mar. 21st showed minimal growth in my lungs. I'm scheduled for a ct-scan and blood work every 3 months now. Also, a brain scan once a year too. Unless their is a radical change in my health; I'll still be kicking up my heels and enjoying life as I have for the past 2 plus years.
I'm not one to worry and I don't have a bucket list to fulfill. What I do have; is a strong will and an abiding faith in God to keep me going.
My prayers go out to all of you who find themselves in this oh-so exclusive RCC club. My wish and prayer is that a positive medical break through will come sometime in our lifetime. Hang in ther everyone and be blessed in each and every day.