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I'm just not the same...Had mri...need a new hip!

z810840b's picture
z810840b
Posts: 212
Joined: Jan 2010

Hi all - I am 3 1/2 years out.I am basically feeling "ok" except for pelvic stiffness and pain which i mentioned before.My other main complaint is not having strength.i just dont have the physical stamina i used to have.I am learning golf and after three holes..had to pack it in.There are times when im standing with people and have to find a seat because i can't stand too long..I know i have to work on my inner core...more exercise too...I have no strength in my legs either.If i bend down to pick something up,i must hold on to something and "pull " myself up.Any body there going through this???? thanks ..alyse

Angela_K
Posts: 374
Joined: Jan 2011

I'm so sorry to hear about your hip, Alyse. I just scheduled my first bone density scan for next week and I'm glad that I did. Thank you for sharing those stats and I will pass this on to my GP and will explore preventative measures.

Lots and lots of prayers your way in the days and weeks ahead.

Angela

myrtletree
Posts: 6
Joined: Jun 2012

encouraged to read all these comments. after chemo and radiation for anal tumour couldn,t understand the pain and deterioration in my hip lower back and sacral. i now know the severe scar tissue, confirmed by my specialist is causing problems plus after effects of the radiation. it has been a slow deterioration .am working hard at stretching exercise and infrared and antinflammitory meds. my dr. has been no help and my specialist said he new nothing about back problems. yet my husband remembers my cancer specialist at the time said i could develope these symptoms. i am not going mad after all. thankyou for sharing your experiences. this site has been so great. God Bless.

shirlann54
Posts: 161
Joined: Aug 2011

I have that stiffness too .I,m about 16 months out of treatment.I dont have the get up and go like i use to have .I,m slow moving some times i walk like i,m a lot older then i am .And If i go shopping or something and i,m on my feet for a few hour . I'ts hard to even get in the car i have to pick my leg up and put it in.I,m like you i can't stand too long i have to set down.I,m trying to walk every day a little more. shirley

Ann_i_
Posts: 47
Joined: Oct 2011

I'm 45, just past a year after treatment finished and I have these issues/problems. (Is it going to get worse??) :(

Stiffness, awkwardness, unstable, hip and upper thigh muscles that still burn and cramp, (And the cramps just hit fast and hard and I have to move my leg another way to get out of that 'area' that cramped.) my upper arms, my arse still hurts (pinching sensation at times and just generally tender and sore.)

My stamina and energy level tank. Walk a bit and then either squat or try to find a wall to learn against or a chair to sit in.

Standing up is always a surprise, I never know if it's going to be smooth or plop back on my arse. Sometimes I need a hand up, sometimes I don't. Sometimes I need to stand still for 30 seconds to a minute to let my body know I'm standing again before I can move forward. (talk about frustrating.) And going up and down stairs, yeah, go grab something to eat, I'll be there in a few minutes.

My mother (in her sixties) out walks me. The only one who keeps my pace is a 23 month old. My great niece. (And I have a feeling she's about to be out of my league really soon.)

I just started a supervised exercise program. (60 day program) Strength training and cardio work outs. (I'll be honest, the supervision isn't great or incredibly helpful, but they are nice and they do try to help.) But I've got my port in my left shoulder still in and a herniated ostomy so my work outs are mild. (Drives me nuts, I went from feeling really comfortable with my strength to this and taking 'baby' steps again is killing me. I want to push my work outs and have to remind myself to go slllloooowwww...argh!!) lol

sandysp's picture
sandysp
Posts: 832
Joined: May 2011

I am no nutritionist but I suffer from spasms in the legs also and notice some subsiding with a product called "Calm" which I actually bought because I was going to visit my mother-in-law - no joke. Anyway, just bought some more because it is helping me in so many ways - better digestion and less muscle spasms. Evidently it helps balance out the extra calcium we need to put into our systems and digest the fats and carbs I seem not to be able to resist. Just a thought. There are other magnesium supplements I haven't tried that may be as good or better.
Good luck,
Sandy

z810840b's picture
z810840b
Posts: 212
Joined: Jan 2010

Hi all..I am scheduled for full right hip replacement may24th.i will have the surgery at Hospital for Special Surgery.They say the recovery is about 4-6 weeks.So will keep you all in the loop...Hugs ...alyse

mp327's picture
mp327
Posts: 2979
Joined: Jan 2010

I will be keeping you in my thoughts and prayers for a successful surgery and quick recovery. It sounds like you are going to a very good facility that will give you top-notch care. Thanks for keeping us posted. Hugs!

sandysp's picture
sandysp
Posts: 832
Joined: May 2011

I am glad you are diagnosed and on the way to recovery. It's a total bummer at this point but soon you will not have the pain you have now anymore. Yessssssssssss! A friend of mine here just told me she has a hip fracture and needs a new hip also. She has not had anal cancer. It is weird to have a fracture and not to have fallen or anything but it happened to her also. At least you and the rest of us here can point to radiation as a cause!

Is there anything they can offered to give you or any of us to take to prevent more fractures?
Like should we be taking massive amounts of D or Calcium or anything like that or Boniva?

All the best,
Sandy

sephie's picture
sephie
Posts: 537
Joined: Apr 2009

i had osteoporosis and penia before tx. had been on fosomax and evista for years. of course, after tx they did bone density and osteo is worse so MDA injects me with Reclast once a year and we will see. i still take ca plus d 3 times per day and more d every other nite. so yes, you need ca plus d . 1200 to 1500 mg per day. sephie

sandysp's picture
sandysp
Posts: 832
Joined: May 2011

Yikes. Thanks. I was not taking enough. I am also taking Green Viberance since I don't juice and putting Brewer's Yeast on my cereal now. Anything to feel better and hopefully avoid this bone thinning problem being of Caucasian descent seems to cause and exacerbated by our treatments. I drink unsweetened Almond milk now so I can drink more for less calories and love it but still need supplementation. Digestive problems seem a little better. Trying to stay away from Diet Coke but it's hard.
All the best,
Sandy

AZANNIE
Posts: 390
Joined: Mar 2011

I recently was diagnosed with osteoporosis. Reclast has been recommended but after reading all the side effects I've decided not to take it and take my chances. Have you had any side effects. I feel that my body is still recovering from chemo and radiation and I don't want to subject it to something else. Maybe I'm wrong...

Ann

sephie's picture
sephie
Posts: 537
Joined: Apr 2009

ann, I was told at MD Anderson to try the Reclast and that they had had no one that had severe side effects. i did not have any so far but i have only had one year's worth of it. i go on july 16 to get my 2nd shot. it really has not helped much but i was not doing weight bearing exercises due to the fact that every movement pulled on my anus and caused pain, bleeding , inflammation. i am now trying to walk a little but have to stop when it causes problems. i will be 3 years post tx july 20. i am afraid of it also but will try one more year and see. sephie

mp327's picture
mp327
Posts: 2979
Joined: Jan 2010

Ann, I was referred to an endocrinologist for osteopenia. She recommended Reclast, but like you, after reading the side effects, I decided not to do it. I already have major issues with my gums and my dentist advised against Reclast, due to the necrosis it can cause to the jawbone. I seem to be doing just fine with taking calcium, magnesium, and vitamin D supplements. I also do lots of weight bearing exercise--running--but it's not necessary to run to strengthen bones. You might want to google exercises for osteoporosis--there are lots of things you can do to help strengthen your bones.

AZANNIE
Posts: 390
Joined: Mar 2011

I'm taking supplements now including 50,000 units of vitamin D twice a week because it was low. I'm thinking about purchasing a treadmill. I do keep active and moving. I've also ordered a exercise DVD for osteoporosis. Also thinking about enrolling in Silver Sneakers program that is offered by my health insurance. I just figure I'll take my chances. My body has been through enough. So the next time I see my colorectal dr on the third floor, I'll take the stairs...lol!

Ann

Cheyenne's picture
Cheyenne
Posts: 72
Joined: Apr 2012

I have a treadmill but don't use it anymore since I got the elliptical. It is much better on the knees and a better overall workout because it also works the arms. If you want an easier workout there are bars to hold so you don't have to work your arms if you choose not to.

mp327's picture
mp327
Posts: 2979
Joined: Jan 2010

Cheyenne, I agree that an elliptical trainer is much easier on the knees. I'm just not sure how good it is for getting weight bearing exercise. I'm still a treadmill fan (but one with creaky knees!).

Cheyenne's picture
Cheyenne
Posts: 72
Joined: Apr 2012

This is an article I found that discusses the benefits of various forms of exercise. In addition to the elliptical I also swim (summer only) and do weights using a weight system about 3 times a week.

http://www.washingtonpost.com/wp-dyn/articles/A16772-2004Jul26.html

AZANNIE
Posts: 390
Joined: Mar 2011

Thanks for your input! I was going back and forth between a treadmill and elliptical and think I found something that's a little of both - a crosswalk treadmill. So I can work upper body while walking on treadmill. Haven't purchased it yet. Guess I could go to a gym, but it's more convenient to work out at home. I need to get a copy of my DEXA scan report to read just how bad my bones are... I've read that exercise and supplements can improve bone density.

Ann

Cheyenne's picture
Cheyenne
Posts: 72
Joined: Apr 2012

We belonged to a gym years ago. I would get frustrated when I had to wait on certain pieces of equipment. I also had to really motivate myself to get ready just to go to the gym. We had a room in our basement that wasn't being used. It is 10'X 20'. We bought a 3 station weight system, a stationary bike and a treadmill. We covered the floor in those rubber like tiles that you can get at home depot and had our own little "in home" gym. We later added a stationary bike. Oh, and a television hooked up to cable. In the beginning the monthly payment for all the equipment was less than the monthly fee for the gym. Now it's all paid off. And I can work out in my p.j.s if I want! :o)

mp327's picture
mp327
Posts: 2979
Joined: Jan 2010

You and I must be related! I have a home gym too--weight machine, treadmill, bike on a trainer and lots of free weights--in my basement. I would not do well getting up in the morning and getting myself off to the gym either. I'm sure our equipment has not even come close to the cost of a gym membership for all those years. Before I had all this equipment, I burned up two Nordic Track machines, which are very good cardio and easy on the joints. However, I broke my foot a few years ago and it no longer wanted to bend enough to do the motion of the cross-country ski machine anyway. Keep up the good work!

Cheyenne's picture
Cheyenne
Posts: 72
Joined: Apr 2012

I meant we later added the Elliptical. That's what I get for not proof reading.

AZANNIE
Posts: 390
Joined: Mar 2011

Yes, it's more convenient to have exercise equipment in one's home and besides who want to get out in 110 plus degree temps in the summer to go to the gym??? lol! Even though I can have free access to a gym through Silver Sneakers program I'd rather exercise at home.
My problem is finding space for the equipment, but the impossible just takes a little longer - lol! Onward to fitness, health and strong bones!!!!

Ann

mp327's picture
mp327
Posts: 2979
Joined: Jan 2010

You sound determined to get started on an exercise program, so you'll find a way! I would give up a piece of furniture to make room for a treadmill, bike, etc! I agree, getting out and having to drive to the gym is just more than I could do on a regular basis and keep my interest in it. Good luck with your fitness program!

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

I found a very compact elliptical. It hardly takes up any space. I put it next to the railing near my staircase (so I can hold onto the staircase rails while using it) and it works quite well. It's certainly not as good as the full size machines but being in a small condo with no space and no cellar - it works quite well. The price on Amazon says $87 but I know I got it for less (I probably bought it from another place, can't remember).

http://www.amazon.com/Stamina-55-1610-InMotion-Elliptical-Trainer/dp/B000VICRO8/ref=sr_1_1?ie=UTF8&qid=1341882937&sr=8-1&keywords=small+elliptical+equipment

AZANNIE
Posts: 390
Joined: Mar 2011

Yes, I've seen that one and have wondered how it works so thanks for your input! Living in Arizona I don't have a basement for a fitness center - lol! I was thinking that I would have to hold on to something since it doesn't have handles.
Too bad drs. don't tell us about the after effects of treatment - at least mine didn't.
I guess carrying gallon water containers to my chickens isn't enough exercise - lol! I think Target or Walmart might have it. Going to check online.
Thanks again!

Ann

AZANNIE
Posts: 390
Joined: Mar 2011

I ordered one from Target last night (free shipping). It arrives next week. Looked at various websites and didn't find one less than $87. I'll start out small and work my way up to the big machines - lol!

Ann

AZANNIE
Posts: 390
Joined: Mar 2011

Thanks for your encouragement! I don't want to crumble away after all I've been through! lol! Besides there are germs at the gym...lol! Yes, I plan to make room for a treadmill.

Ann

mp327's picture
mp327
Posts: 2979
Joined: Jan 2010

Another one of my main reasons for NOT joining a gym!

AZANNIE
Posts: 390
Joined: Mar 2011

Yes, we need to stay away from GERMS!

Ann

sandysp's picture
sandysp
Posts: 832
Joined: May 2011

I workout at home and love it - especially the part about doing it in my pajamas!
All the best,
Sandy

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