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CA-125

undertreatment2012
Posts: 126
Joined: Mar 2012

my dr mentioned we need to find my "normal". I thought normal was 0-35. before surgery is was 45 then 46 and stayed there. after surgery it jumped to 254. before first chemo it was 236. Not much of a drop but still high. So when do they determine my normal?? when do they decide if chemo is working??

lovesanimals's picture
lovesanimals
Posts: 1257
Joined: Sep 2011

My experience was different from yours, so unfortunately I don't have any direct answers but perhaps other ladies on this board will have answers. My CA-125 was over 2,800 after my diagnosis and before my surgery. After surgery and before any chemo, my CA-125 dropped to 7 and stayed below 7 during all of my chemo treatments. I think you said in another thread that you just finished your first chemo. Do you know what your CA-125 is now? The fact that it dropped before your first chemo sounds good.

Take care,
Kelly

undertreatment2012
Posts: 126
Joined: Mar 2012

it is 238, was 254

Gottalovelife
Posts: 45
Joined: Feb 2012

After third treatment is when they told me chemo was working and they made changes that needed to be made then. As when they find the normal numbers I don't know, I finished chemo Oct. 2011 and my number was 25 then it went up to 30's then to 57 now it's back down to 30 so I don't know, I know it's darn scary having to rely on those numbers. So Good Luck and hoping your numbers keep coming down.

Hugs and Prayers
Cindy

lovesanimals's picture
lovesanimals
Posts: 1257
Joined: Sep 2011

and praying that your numbers continue to come down.

Take care,
Kelly

msfanciful
Posts: 580
Joined: Nov 2009

Hi there,
My ca-125 was over 1400 at diagnosis and after my first three rounds my numbers began to drop very significantly (which was so encouraging).

Nevertheless; after 5 years of living with stage iv ovarian cancer "normal" has now become a relative term for me, plus there is the argument of there being too many false/positive readings.

My oncologist doesn't look at the numbers so much as how fast the numbers rise (example : like she uses for me a one - to- two point jump each month; and gauges that result as a normal rise for my stage of cancer. However if my numbers began to rise i.e. 4x say 12, then she begins to wonder why it rose so fast and then a scan is usually ordered just to make sure there is no agressive activity. So far her technique has been right on the money, which is why I believe I'm still here today.

Sharon

undertreatment2012
Posts: 126
Joined: Mar 2012

thanks msfanciful!! I will try to hang in there. But I have been SO sick from treatment, as I am sure you know what I mean. Keep fighting, and by the way YOU ARE BEAUTIFUL!! Picture is gorgeous.

karen1951's picture
karen1951
Posts: 103
Joined: Oct 2011

sharon....you are my new inspiration....to be here five years after a stage IV diagnosis is wonderful....i read this board often and have seen your posts but they were all older posts....i always wonder what has happened to the girls who haven't posted regularly...it's great to see your beautiful face....glad you are doing so well....stay that way!!! karen

7 angels
Posts: 20
Joined: Apr 2011

Im a stage 4 also it wonderful to hear you been fighting for 5 years THERE IS HOPE!! for us all. doing chemo now and my ca125 number went down from 92 to 60 and thats with just the first treatment. I believe that with FAITH HOPE AND LOVE we can whip this. Been fighting for almost 2 yrs. Sherry

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Dear Undertreatment

I am not sure what your doctor is talking about. I have a feeling that the doctor was not overly concerned to see your CA-125 go up after surgery because the inflammation of the healing response will influence the CA-125 level causing a higher number.

I don't know if you have ever had a PET/CT scan. One of the questions the technician asks prior to doing the scan is "have you had surgery recently?"

The scan will light up where there is cancer OR inflammation. Maybe you already know all of this so forgive me for telling you something you already know.

undertreatment2012
Posts: 126
Joined: Mar 2012

no, dont apologize, tell me everything you know, I thirst for knowledge in all of this and others experiences. They did tell me not to worry about it after surgery, kinda wish it would have went down a little more by treatment time, but we shall see come mid april i guess. I did have a CT, but I did not know where they messed around could show up abnormal on there. Because there were some abnormal areas that they again, did not seem concerned with. Thank you!

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

I did not have this drawn. They did a OVA1 on me which looks at 4 protein biomarkers and CA125. So I don't know my CA125. I will have to ask my oncologist when I see her Thursday. Maybe they drew one in the hospital.
Just reading posts on CA125 it seems as everyone has a range of scores and some are quite high.
Has anyone had any experience with the OVA1 test?

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