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Class of 2011 - ROLLCALL!

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

I'll start :-)
Nick, age 48, diagnosed T3N1M0 on May 19, 2011. 28 rads & 2 weeks inpatient Cisplatin/5FU. THE 09/08/2011, Clean Path 09/13/2011.

Since then?

CT on 12/13/2011
Met with surgeon in January - surgeon says "new node in upper right lung noted in CT. Not to worry, you're doing great. You are my poster boy."

Met with Oncology in January - he says "hmmm, new node? Too small to biopsy. CT again in March."

Fast forward to today - met with Oncology to review 03/15 CT scan. Doc walks in the room and says the node is gone. NOT visible on the scan. Nick is NED!!!! Next appointment is 3 months, lab work and doc meeting only.

Thank you, Lord! I am SO GRATEFUL!!

Niki & Jeff - I know you're looking at the same fears I had just hours ago. Please know I'm thinking of and praying for you both.

Where is the rest of our "Class"? It would be wonderful if you could update us on your progress. With much love and respect for all of you! YOU and prayer pulled Nick & I through this. and THANK YOU for that! Big hugs to everyone.

Terry

Credit for the CAPS to ERIC who we lost today. We will miss you!

The "class" surgery schedule:
Janet (Janet Runge) & Charlie - May 27
Jim (Jimbo) - July 2011 but and still fighting, recurrance in 2012
Kim (MissusB) & Bill - Aug 29th - Kim lost Bill to aspiration on 12/17/2011
Laura (Laura23) & Luis - Aug 30th
Rick (Rick0311) - Aug 31st
Niki (NikiMo) & Jeff - Sept 6th
Jeff Thomas (JThomas233) - Sept 8th
Terry (TerryV) & Nick - Sept 8th
Erica (Ericalynn) & John - Sept 9th
Bob Haze (BobHaze) - Sept 23rd
Roy (dad of Luvs24) - Oct. 7th
Cora (Cora11) & Keith - Nov.
Dave (CaptDave) - 01/06/2012

Classmates Diagnosed but not surgical candidates:

Meg (Megmacmd) - March 2011 T3N1M0 not a sugerical candidate since multiple nodes
Michael (Hopper52) - anticipated surgery but lost the battle in 2011
Lee (LeeinCanada) - Diagnosed Stage 4, lost the battle Nov 2011 / wife Chantal (Daisylin) still posting infreqently
Ginny's (Ginny_B) Mom - August 2011 but lost the battle in 2012
Eric (Chemosmoker) - Diagnosed Stage 4, lost the battle March 2012 / wife Michelle (LilChemoSmoker) still posting infrequently

BobHaze's picture
BobHaze
Posts: 157
Joined: Sep 2011

I'll be 6 months post-surgery in a couple of days, and my "6 month" appointment with my surgeon is in 3 weeks. Aside from occasional significant "scanxiety," I'm doing great. I'm both pleased and encouraged by Nick's status: NED! That so fantastic I hardly know what to say!!

Bob
T1aN0M0
dx 8/3/11
MIE 9/23/11

JReed's picture
JReed
Posts: 463
Joined: Nov 2011

Terry

Is Don in the class of 2011 or 2012? He was diagnosed in Nov 2011 but having surgergy March 22, 2012. I have made up a really nice spreadsheet with lots of info of most everyone on here and I'd be happy to email to anyone who would like it. Just send me a private message here with your email address and I'll forward it to you.

THANKS (in honor of Eric!)
Judy

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

is a joke of sorts that several of us had way back when. There had to be 8 or 9 of us going through treatment and surgery within two - four weeks of one another. We became pretty cohesive and called ourselves the Class of 2011. Even had a class motto, but it JeffT put it in Latin, so I'll be durned if I can recall it. I'll have to page backwards to find it. :)

Our "class" has graduated - gone through surgery if surgery was possible. But EC brings us all together so the "Class" year is really unimportant. Graduation, if possible, is really all that matters.

I'll private message you for a copy of the spreadsheet after Don's surgery. You've got to have a lot on your mind right now.

Know that you both are in our thoughts and prayers as you move forward to Don's graduation. Lots of love & hugs,

Terry

JReed's picture
JReed
Posts: 463
Joined: Nov 2011

Hi Terry:

You can pm me anytime - we are going to leave to go to the Med Inn connected to the hospital tomorrow afternoon and I'll be bringing along my laptop so I can send the spreadsheet to you anytime.

Things were getting a little hairy around here until this afternoon. I got sick last week with a horrible headache - went to the doc and he said it was a migraine - gave me two shots and sent me home. Didn't touch it. I took 800 mg of ibuprofen all weekend and went back to doc yesterday afteroon. The headache had actually gotten worse - very bad in fact. It was a late appt (4:40) and he ordered a CT scan and the stupid insurance company wouldn't pay for one after 5pm. He gave me another shot mixture and said I could through the ER right then or wait and see if the shots worked and if not go later that night. We went to the ER at 8pm and they did the CT scan and found an infection behind my eyes in the sphenoid sinus area. They gave me another shot and a starter of antibotics and prescriptions to get filled today. Finally got the scripts filled, came home went to sleep and woke up feeling great. I was getting pretty anxious - knowing we have to go to Ann Arbor and I feel like crap. But that's all over now and I can again focus on Don. By the way - the shot the doc gave me yesterday afternoon - he said would knock me out - so he had Don pushing me in a wheelchair. As soon as we got out of his site - I got out of that chair and we walked to the truck in the parking ramp. Can you imagine - here is Don with cancer - due to be operated on - and he's pushing me in a wheelchair! Hah!

Anyway - send me your email address and I'll send you the spreadsheet I have - maybe you can look it over, fill in the blanks or add more to it so it will be useable to everyone.

thanks,
Judy

GerryS's picture
GerryS
Posts: 238
Joined: Aug 2010

Judy and Don,
I had my IL surgery two years ago today. I am 2 years NED. I send my thoughts and prayers to you today.
From my perspective this is a good day for surgery.

God Bless....

Gerry

Class of 2010

JimboC's picture
JimboC
Posts: 270
Joined: Mar 2011

I was diagnosed Feb 2011 and had surgery July 2011 but and still fighting recurrance in 2012 so I'm not sure where that puts me either. :)

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

I'll get you added to the class list, Jimbo!

Hope you are doing well and that you have a pleasant Easter!

{hugs}

Terry

Ginny_B's picture
Ginny_B
Posts: 537
Joined: Sep 2011

You can be in any class, Jimbo - you're just so full of class!

captdave's picture
captdave
Posts: 168
Joined: Feb 2012

I'm not sure if I qualify for the class of 2011 or not. I was diagnosed in november 2011 but didn't have surgery until January 6 2012. I am doing great! no cancer in pathology of esophagus no lymph node involvement nothing! The doc's declared me cured. I am back to work full time exactly two months after my surgery. I am so incredibly blessed I cant believe it or understand why but, I am very very grateful.

Dave

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

...as part of our class! Welcome, CaptDave to the Class of 2011!

As I told someone earlier, EC brings us all together. It really doesn't matter what year your "class" so long as you graduate. It's so important for survivors to be around for "post graduate" work of educating others to early detection and possible prevention of EC.

Congratulations to you! and Hugs :)

Terry

captdave's picture
captdave
Posts: 168
Joined: Feb 2012

I'm not sure if I qualify for the class of 2011 or not. I was diagnosed in November 2011 but didn't have surgery until January 6 2012. I am doing great! no cancer in pathology of esophagus no lymph node involvement nothing! The doc's declared me cured. I am back to work full time exactly two months after my surgery. I am so incredibly blessed I cant believe it or understand why but, I am very very grateful.

Dave

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Credit for the class motto to Jeff Thomas - known on the forum as JThomas233, not JeffT. Quoting Jeff from NikiMo's "Last Day of Radiation" thread posted 07/28/2011 http://csn.cancer.org/node/223281

As a contributing member of the Sophmore class, and because I was a Fraternity member in College, I recommend that our Class Credo be-

sine timore progredi..
propositum in potestate!

Progress without fear..
Power in our purpose!

NikiMo's picture
NikiMo
Posts: 344
Joined: Jul 2011

Terry,

I am over joyed to read about the dissappearing node!!! I hope and pray the same for Jeff, he has his PET/CT on April 16. We are taking the week prior off as vacation, going down to Florida and hoping to meet up with Erica and John for that umbrella drink!

I am so HAPPY for your good news, 'power in our purpose'!

I WILL MISS OUR CLASSES LOUDEST CHEERLEADER HOW I WISH HE COULD HAVE BEEN A MEMBER OF THE GRADUATING CLASS. Michelle my prayers go out to you and your family.

Prayers also to Michaels family, I really wish he could be joining in on our role call today.

And JeffT if you are out there, you are in my thoughts. I think of you often and hope that no news to us is good news for you!

Niki
Wife to Jeff T2N1M0
6 weeks FOLFOX and concurrent radiation
9/6/11 Ivor Lewis at John Hopkins - clean pathology
10/21/11 began 3 round post-op 'insurance' chemo
12/2/11 hospitalized for sepsis - chemo ended port removed
Thinking and praying that we are NED at present

Janet Runge
Posts: 37
Joined: Aug 2011

Hi,
I think Charlie and I qualifiy for the roll call.
Diagnosis Feb 2011 T3N1Mo
3 94hour continuous cisplatin/5fu/taxol infusions
32 rounds radiation
Surgery May 27th 2011 pathology clean
2 rounds 5fu/taxol post chemo

Pet/ct September clean
Pet/ct December clean but 2 aspiration pneumonia spots
Ct chest on Feb 6th they are almost gone but surgeon and oncology say to expect this because of the new anatomy ie: stomach near trachea and no value to prevent food from coming up!
Next Pet/ct March 27th and already getting nervous. Can't wait until it is over
Charlie is now a great 167lbs and feeling good.

Janet

Cora11's picture
Cora11
Posts: 177
Joined: Sep 2011

Such good news Nick and Nikki hoping for absolutely the same news for you and Jeff. Great to hear some of these positive updates.
I think about everyone here so often.. just haven't been posting much lately. Keith is recovering well too from surgery in Nov.
All my best,
Cora

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

It is *good* to see you again, Cora :) I've been wondering how things were going for you both. Really wonderful to hear that Keith is adjusting. He's not back at work yet, is he? Or did he go back part-time, last month maybe?

We think of you often!

Hugs to you both,

Terry

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

It's great to see another class success story! Thank you for adding your information :)

Hugs to you and Charlie!

Terry

cher76's picture
cher76
Posts: 302
Joined: Nov 2010

So great to hear some good news for a change. Thanks for the roll call, Terry! Haven't been on here much lately. So good to hear some are slaying the "beast"! Hardly a day goes by that I don't tell our story to someone, to encourage them to get their heartburn/reflux checked out. Early detection seems to be the key. I feel if I can keep one person from going through what we did then Rickie will not have died in vain. Praying for continued good CT scans and NED to all of you!
Cheryl
Wife of Rickie dx Stage IV EC Oct. 2010
Mets to bones and brain
Lost the battle Jan. 4, 2012

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

We will do everything we can to make sure that Rickie's story and those of the other Stage IV's get out. I don't like Nick being a Stage 3, even that's too much. Early prevention / detection is KEY.

You are in our hearts. Hugs to you!

Terry

Karrie42
Posts: 25
Joined: Feb 2012

As a newbie I'm glad to hear such positive stories here. Sending continued good energy out to this group!

- Karrie

megmacmd
Posts: 94
Joined: Jun 2011

Don't know if I qualify.Diagnosed March 2011 T3N1M0 not a sugerical candidate since multiple nodes in pelvis and perihilar(lungs) did 12 rounds if FLOFOX(oxiplatnum leucovorin 5FU) march to
October. Managed to work through it all despite hair loss no appetite peripheral neuropathy was the worst then tooth loss.CT scan shows shrinkage of nodes and mass at GE junction. Been off chemo 4 months appetite is back no trouble eating YEAH.Apt next month insurance will not approve PET scan just CT so we will see.Am a bit in a bind must work to keep health insurance do not qualify forany programs since have some assets(house 401K) Do not have a caretaker husband mother father and sister all deceased Children live 4 hours away.Youngest still in college.Goal is to get him through his last year at Uni of Virginia. Will go to live with eldest daughter when I cant work.Haven't decided wether I will go through chemo again or take my chances I feel pretty good and am enjoying Virginia Beachand walking the dog outings with friends kayaking and I love my job as apediatric neonatal hospitalist.Want to enjoy life not just exist.Time will tell I take each day as it comes

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Meg!

I'm SO happy to hear from you. It's been a while. I hadn't not realized that you were on a 4 month chemo vacation. That's WONDERFUL! Glad also that your appetite has returned. Make the most of it :)

Anyone that can spread the word of EC and early testing/detection qualifies for our class! Appreciate your update! Please continue to take care of yourself!

Hugs to you,

Terry

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

Dx 11/10 @ 49 years old
Surgery (THE) 12/10
NED 12/11
Two "spots" on kidney detected 1/12
First Biopsy inconclusive 2/12
Second Biopsy 3/29/12

He is feeling well and looks great. So hopefully the spots are nothing. Just got back from a vacation where he rode several roller coasters.

Thanks Terry for the roll call!

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Congratulations on the progress so far. Prayers for continued success in the battle of this beast!

Love the roller coaster rides! Sounds like a wonderful vacation :)

Hugs to you both,

Terry

Ginny_B's picture
Ginny_B
Posts: 537
Joined: Sep 2011

My mom (84) was diagnosed August 2011 and lost the battle March 22, 2012. My heart broke when her heart stopped.

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

We are here for you....

Terry

Luvs24's picture
Luvs24
Posts: 78
Joined: Oct 2011

Would you add my Dad, Roy?

Diagnosed T3N1M0 June 2011
Chemo/Radiation Pre Op
Ivor Lewis Robotic 10/07/11
NED Since
No post op Chemo needed
Blockage due to Pyloric Valve not relaxing - Botox - End of Nov or begining of December (I think)

Dad just celebrated his 65th birthday yesterday (28), and had his 3 month check up on the 27 - All is WELL and NED! Wooohooo!

Beth (Luvs24)

My dad (and I) were so grateful for this site throughout his recovery while I was with him in Florida and I am now a "lurker". :)

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Beth,

That is WONDERFUL news! I am so very happy for your family.

Your dad has been added to the roll call :)

Terry

lilrusty's picture
lilrusty
Posts: 54
Joined: Sep 2011

My husband was diagnosed in July 2011 and lost his battle April 1,2012. My world has been shattered by this beast. I hope time heals all wounds, because my heart is broken.

Ericalynn's picture
Ericalynn
Posts: 207
Joined: Jun 2011

Hi Terry,
Quick update on John. He is feeling better everyday, still has an issue with discomfort if he eats too much at one setting. He goes to the gym 6-7 days per week. He saw his primary care physician on Friday and all vitals were good. Blood work was OK, his cholesterol was Great (his was high at one time) , his hemoglobin is still low but up from the last time. He was on Blood Pressure medication for years. His BP is normal with No Meds. He is scheduled for his first CT Scan next week and sees that surgeon on 4-12-12. I have a little scan anxiety but I am trying not to get to worked up over something I cannot control. John's weight is up to 157 ( 9 LBS more than when he was diagnosed) that has to be a good sign. He still is smoking but I cannot even think about that. I know I have not been on the site in a long time but I do read the post as much as possible. I have a new position at work and it has added many more hours to my day. I miss everyone here and everyone was such a great support during a very difficult time. I'm just having a hard time fitting everything into my day. My Mom is not well. It seems like she waited for John to feel better and she fell apart again.
So far so good John is doing great I will update when we get CT results.
Love to you and Nick and all that are here battling this disease!
Erica
Wife of John
Diagnosis-T-3, N-1,M-0-- 5-17-11
Chemo/Radiation-completed --7-11-11
MIE surgery with robotics-- 9-9-11
Dr. K. Meredith, Moffitt Hospital
29 lymph nodes & tumor-cancer free

Rick0311
Posts: 38
Joined: Jan 2012

Terry

I think I qualify for the 2011 class, I am six months NED. Next scan im May.

Richard (Rick) Watson
Neoga, Illinois

DX – 0411
EC – T2N2M0
Chemo – Cisplatin, four treatments
5FU, four treatments, five days times 24 hours each time
MIE – 083111
Barnes Hospital, St Louis
Dr Brian Meyer
NED

jthomas2333
Posts: 1
Joined: Jun 2013

Hey!  Jeff Thomas here.  Sorry I missed our class of 2011 graduation roll call.  I developed a leak after surgery as well as some other brutal complicatiions.  I spent a month at Fox Chase, most of it in intensive care.  My post surgery pathology was bad ( 7 out of 17 positive).  I had 6 months of chemo, and was pretty depressed. 

Fast forward to 2013...I run three miles three times a week.  My weight is a svelte 186 and trending up.  I play alot of golf and have been doing alot of traveling.  i took my son to Russia in April.

I am back at my business full time and I just won an election for school board where I live.  My 21 month scan, which I had on Monday, was clean.  I saw my oldeest son graduate from Cornell.

I apologize for not being there for everyone during their recovery.  I will post more when I have some more time.

NikiMo's picture
NikiMo
Posts: 344
Joined: Jul 2011

JEFF!!

Been so long since we heard from you, I was pretty worried.  Better late than never :) I don't check in too often, but when I do I awlays think of the class of 2011.  I am so happy to hear that you are doing so well.  Sadly we have lost classmates, I keep them and thier families in my thoughts.  A few others haven't been heard from in awhile and I really hope that they are ok as well.  That is awesome that you went to Russia with your son, AND you got to see your son graduate.  It is milestones like that which I am sure make the brutal receovery worth it.

 

My Jeff is doing well also, he had his 18 month scan in early April and was clear, they moved him to 6 month scans now.  This past weekend we had a BIG party for his 50th B-Day at our house.  He was surrounded by family and old friends, he had a great time.  He like you has throw himself into excercise.  He doesn't do cardio too often as he is having a little more trouble gaining weight.  He can bench over 100 pounds now and is feeling pretty good most of the time.  We also just celebrated our 8 year wedding anniversay, I feel really blessed to have these moments with him!

Again SOOO happy to hear from you and that you are doing well.

Niki

BobHaze's picture
BobHaze
Posts: 157
Joined: Sep 2011

Terry, Niki, Jeff and Jeff:

I feel like we’re having a reunion!  Sadly, not everyone is still here to attend, but with the Beast we have to be grateful for what we have.  I had my 18 month scan in April and am still NED and feeling great, and in fact the week after my scan I flew to Singapore and Russia for a 2 week business trip.  My weight is 35 lbs less than when I was diagnosed, but steady as long as I keep after it.  I can’t seem to get into a regular gym routine, but I ride my bike 20-30 miles every morning and try to do a 50-60 miler on the weekend.  That burns a lot of calories so eating and maintaining my weight is more of a challenge during the summer, but it’s doable.  I know how blessed I am, and if diet and occasional – er – intestinal issues are the worst thing, I can deal with that.

I sometimes wonder why I still follow this board and the FB group, because it can be so sad and depressing.  But then there are posts like Terry’s today and it’s uplifting to touch base with you all, as we’ve been through so much together.  I grieve for Nick, Lee, Eric, Jimbo and Don…and so many others, but I’m so happy that you all and I are still here to remember them.

FEC,

Bob

T1aN0M0

Dx   8/3/11

MIE 9/23/11

 

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Jeff,

I was so worried about you.  No news for such a long time usually doesn't mean good things.  I am so glad in your case that's wrong.  I knew things had gone wrong for you in surgery and that there was an extended ICU stay.  How wonderful to hear that you've done great things with your time since surgery.  Russia would be amazing!

 

@Bob - not sure what you're thinking of.  It wasn't my post that you saw.  I've had nothing good to post in many months.  :)  Delighted that you are doing well!

 

@NikkiMo - my dear friend!  So happy that things are good for you and Jeff.  Glad that he's found exercise.  That's got to be a key to keeping this beast at bay.  It's a joy to know that the 3 of you are all beating fEC.

with hugs and love to you all!

Terry

PROUD wife to Nick, age 49
lost battle to fEC, June 19, 2012 

NikiMo's picture
NikiMo
Posts: 344
Joined: Jul 2011

I like you was really relieved to see Jeff's post, the two of you were my first confidants during this journey and I will never forget either of you. I know that sounds strange since we never met, but cancer can build bonds - I know you get it. I understand everyone moving on with life or trying to and that is important, it's just good to hear updates once and awhile. I am hoping that you and the girls are ok, I think of you all often. Jeff and I are getting back to a more normal life, though now my grandfather who lives with us is on hospice so we are mentally dealing with that. Jeff has a really great outlook and I continue with counseling to deal with my anxiety, they think I have some form of caregiver PTSD. I am starting to manage that better and work through it to enjoy life again. We are going to Mexico in August, I am really excited to see the ruins, I have been reading up on the Mayans lately. Hoping that you and your family have some fun things planned for the summer.

Bob- I am not leaving you out here, I always look forward to hearing good scan updates from you. It gives me strength to know you are out there getting back to life too :)

Niki

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

Niki,

I am sure from my experience with EC that PSTD for caregivers is very real.  I have been so lost in my real life since the original diagnosis and time since.  Knowing how I face each day, I'm sure your experience must be similar.  Life is so precious, to have it so nearly yanked from your grasp is a life shattering ordeal.  It's difficult to trust, to smile, to move forward.  I realize that I face this from a different outcome than you, but the fears and what pushed us here is similar.

Blessings to you both as you consider the travel to Mexico.  What fun!  I've been there once and really enjoyed it.  I would love to travel there again some day.  Be prepared, the children will tug at your heartstrings as they beg for coins.  It can be a difficult trip.

I think of you often and am So Glad that you and Jeff are well!  Your number is still in my phone.  Who knows - I might call some day :)

 

{hugs} to you, Niki!

topaz1947
Posts: 24
Joined: Mar 2011

I had surgery in March of 2011. One node found so had to have chemo and rad after I got strong enough.  It was a long hard road and I still have some problems eating. My scans have all come back NED, thank the Lord.  My next one will be in August.  I had my surgery and treatments at Duke in Durham.  My team was wonderful.  Dr. Hurwitz is still my oncologist, and I could not ask for a more honest, considerate person.  Just hope I continue to have good scans.  God bless everyone here.  You were all so much help.  I did not post often, but I read the posts everyday.  Again, thank you,  Still miss Marshall.

MartinG5602's picture
MartinG5602
Posts: 22
Joined: Jun 2012

Hello, 

My husband, Martin, 75,  DX Stage 3b in Feb.2011, continues his fight with a great attitude and courage.  We continue at MDA in Houston with  Dr. Ho. Martin is now stage IV after the IL in Sept of '11 as a tumor on his Adrenal Gland returned in March of 2012. This tumor was removed in Sept of 2012, but new spots in his thigh and pelvis, lung and Adrenal Bed have returned.  His is now completing another round of chemo(3rd chemo round) and will return to Houston in August for new testing. He has held his  weight at 170 for the last year after starting at 238. He has great faith and does not worry which has helped me so much.  I read about everyone as I can, marveling at the fight and spirit all  have against this hated Beast. Bottom line, there MUST be a much quicker and easier way to detect diagnosis  before it becomes too late.  We insisted our grown children be tested , they are in their 40's.  Each has recently been tested, and lesions were found early. They will now be on Prilosec for the rest of their lives.  Prilosec will cure the lesions....we were told.  They had no EC yet! But I believe there must be some genetic link somewhere. 

I thank each of you for stories, continue to send prayers your way, and am so saddened by those no longer here. I am blessed to have Anderson and each of you brave warriors in our collective  corners.   You have taught me so, so  much....thank you! Thank you! God bless you all and your caregivers!

Barrie

 

 

callerid
Posts: 99
Joined: Dec 2012

Barrie

I also have two grown sons. One has been checked and no signs of Barrets Esophagus or esophageal abnormalities. The other has not.

The reason I am writing is that I have read an article(s) that in 2012 they discovered that it is highly probable that bile is causing Barretts Esophagus and Esophageal Cancer, not gastric acid as they once thought   They are trying to determine if proton pump inhibitors, such as Prilosec actually increases cancer risk. Studies have shown that controlling the acid in the stomach might allow the symptomless reflux of bile to go undetected, thereby posing a higher risk of causing cancer. They also note esophageal cancer has risen dramatically in the U.S.since these proton inhibitors have been on the market. 

I don't think anyone knows for sure what causes EC. My husband had some acid reflux thirty years ago. Rarely bad enough to even take over the counter medication, yet that's what the doctor attributes it to. Since his diagnosis, we have found that two first cousins and an uncle (all from the same family) have/had Barretts.

But when you said your kids had to be on Prilosec for life, I wanted to make you aware of these findings. Many mistakenly develop a false sense of security that medication will take care of it and fail to follow up with exams and lifestyle changes.

Janet Runge
Posts: 37
Joined: Aug 2011

Hello all,

Charlie had 2 year post op scan today (May 27th 2011 MIE) Completely clear and other than a few life changing things he is completely back to self and we are living the most grateful life. We never go long with thinking of this horrible cancer and thank God everyday for health

I think of you often and hope you are all well ...take care

Janet

wife Charlie

T3N1MO diagnosis 2/16/2011

2 year scan NED 6/20/2013

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

I think Rob qualifies as 'class of 2011'. Diagnosed summer of 2011. Stage three ardenocarcinoma.

Chemo for four months and an 'Ivor Lewis' in February 2012. Recovered well from the operation and

can eat almost everything. In England the huge cutbacks have meant that he has not had a PET scan

since his surgery and we couldn't afford to pay privately. The hospital have given all sorts of reasons

for not giving the scan, but we know it is a matter of cost. I try to give him a really healthy diet with

lots of fresh fruit and vegetables. The one thing that we have not been able to conquer is the dumping.

Rob has to take anti-diarrhea meds every day. Having said that he seems to be quite well. Very thin

obviously and he also sleeps a lot. Other than that he leads a normal life and  we thank God for that.

Prayers and hugs to all of you and once again thank you for all your support. I could not have gotten

through this without you. God bless and keep you all.

Marci

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