Mar 20, 2012 - 2:53 am
I have a question: I know this upsc is rare, was told it's really 1 in 1,000,000. I was also told there is no genetic link, no family link, no life-style link, no enviromental link, nor anything else that causes this. All this by the doctors. Also no drug just for UPSC, very little research being done, and no trial studies being done. So WHERE does this come from and are we in the group the government calls an "orphan disease?" I would like someone to tell me their best guess since I'm not getting any feed-back from the Dr.