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Cyberknife vs. traditional radiation

froggy1
Posts: 208
Joined: Nov 2008

Hello all,
I have on and off these boards since 2008. I have been fighting the beast since then with little break. I just had surgery to try to remove four tumors that chemo didn't get. Unfortunately one was in a life threatening place and could not be fully removed.
My Doctor is suggesting radiation and chemo. I had this same treatment last summer for a para-aortic lymph node. I was told it worked, but later found out it didn't. They removed the para-aortic growth two weeks ago....
Now, I don't know what to do. I know a lot of ladies have had success with cyberknife. It is not offered in my area. I mentioned it to my oncologist at one point and he just kind of laughed....He is not one you can easily talk to.
I am supposed to start chemo next week already. I am so tired. They removed my spleen, gallbladder and a few other small cancers.
I know Cleveland Clinic and University Hospital do cyberknife, as do a lot of other places, but I'm not sure what to do. I'm not sure if my radiation oncologist will tell me the truth, since he doesn't do it....
Any input greatly appreciated. I am beginning to lose hope. By the way, my CA125 was only 26 when all the new cancer was discovered.

lovesanimals's picture
lovesanimals
Posts: 1235
Joined: Sep 2011

I don't have any personal experience with either the cyberknife or radiation, but wanted you to know that I'm sending you good thoughts and prayers. You've been through so much over the last four years and I can only imagine how tired you are, but please don't give up hope that your doctors will find something that will work for you.

Take care,
Kelly

froggy1
Posts: 208
Joined: Nov 2008

Thanks for the good wishes Kelly. I have always had hope, but I am starting to lose it...I am getting into the "tough times." I'm hoping a plan will come to me soon.

lovesanimals's picture
lovesanimals
Posts: 1235
Joined: Sep 2011

that a plan will come to you soon!

Hugs and prayers,
Kelly

viperfred
Posts: 20
Joined: Jun 2010

Hi froggy1,

The Cyberknife is a fantastic innovation without equal for many cancer tumors.

Suggest you consult with a cancer center that offers the Cyberknife. Don Fuller MD a radiation oncologist in San Diego is a great place to start.

There are over 100 Cyberknifes in the US. They are located coast to coast.

I was treated for prostate cancer in 2008 with the Cyberknife, no side effects and lowering PSA.

Best Wishes,
Fred

froggy1
Posts: 208
Joined: Nov 2008

Thanks for the response, Fred. I am just in the info seeking stage now, but don't have time on my side. San Diego is a little far, but my husband is willing to take me anywhere. I am surprised that most hospitals don't offer it and wonder if it is money related...
Best wishes for continuing good health.

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Hi Froggy, I don't know where you live but in my area, the hospital Barnes Jewish Hospital (Washington University) has the Cyberknife. It is located in St. Louis, MO.

Linda

leesag's picture
leesag
Posts: 624
Joined: Jan 2010

I haven't done cyber knife, but I've had whole brain radiation and gamma knife. If there's any comparison, let me know. My only side effects were hair loss (not a big deal by now lol) and extreme fatigue!

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