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How to minimize hot flashes from Tamoxifen?

ender
Posts: 167
Joined: Apr 2011

Hi everyone.

I am hoping some of you might have found the best way to minimize suffering from hot flashes. I have tried acupuncture and it worked initially but does not seem to work anymore. I take my tamoxifen at 7.30 pm everyday. During the night, I wake up every two hours like clock work. Is it better to take the pill in the morning? Are there other ways you have found to minimize your hot flashes?

All comments are much appreciated.

Eva

teresa41's picture
teresa41
Posts: 453
Joined: Jun 2009

i have been on tamoxifen since 2009 i was taking mine later in the day and was having night sweats i switched to taking it in the morning and the night sweats were gone. we are all different but i havent had the problem with hot flashes since i started taking it.

good luck to you hope it gets better.

teresa

epark's picture
epark
Posts: 338
Joined: Aug 2011

Hi eva ... I too get ridiculous night sweat and hot flashes it lasts for a couple of minute but it feel like forever..i take my pill before I go to bed..maybe I should switch it to the morning...

Good luck
Eva

LoveBabyJesus's picture
LoveBabyJesus
Posts: 1654
Joined: Jan 2011

I take it at night (about to take it now), at 9PM. I stopped having hot flashes last Nov. Started the pill last Aug. I even get my periods now! Since January of this year. Do you take vit D.? I hear it helps, which I find strange. I am taking vit. D. everyday. I hope it gets much better for you soon...

ender
Posts: 167
Joined: Apr 2011

Thanks for all the comments guys! I will try switching to mornings by taking it one hour earlier each day. I do take vitamin D and I have my periods yet still get hot flashes. Was told that hot flashes from tamoxifen are different from those from menopause. Again thanks so much!

Eva

sdukowitz
Posts: 250
Joined: Nov 2011

Try a small table fan on low at night and cotton sheets only ..... even in winter this hhas helped me at night If I take the tamoxifin in the morning the hot flashes are really bad while i am teaching soI take it abiut 8 at night and put up with the heat waves
I am extremeely tired though from waking up in such a sweat during the night but it reminds me that the tamoxifin is doing its job! Best of luck and prayers for your hot flashes .... I understand thoroughly it is the pits though!

robang13's picture
robang13
Posts: 333
Joined: Apr 2011

Eva, mine were so bad I was put on Effexor. Now they are tolerable. I would walk around with a beat red face and dripping, it was so bad. W/i 2 weeks of Effexor I felt 90% better.

angela

debi.18's picture
debi.18
Posts: 849
Joined: Jun 2011

My onc also prescribed Effexor for me. What a miracle! Mine are so mild now I hardly notice them. It started working after just a couple of days!

Now.....if they would only give me a pill for the weight gain!

Hugs, Debi

survivorbc09
Posts: 4378
Joined: Jun 2009

I am not on tamox, but, I know several pink sisters that do take Effexor and swear by it.

Good luck,

Jan

Frankie Shannon
Posts: 457
Joined: Oct 2011

I started Tamoxifen in Aug.2010 and my onc. put me on gabapentin which helps with the hot flashes they don't go away but are diminished and i sleep all night.I take my Tamoxifen in the morning and 2 gabapentin at lunch and 2 at night which comes to 1200 mg a day.So i never no if i have night sweats or not.Getting a good night sleep is very important for our recovery.
Hugs Frankie

bad121749's picture
bad121749
Posts: 28
Joined: Feb 2012

I've been on Arimidex close to 1 year and can't sleep for the hot flashes. The oncologist doesn't even want me on any soy products to decrease the flashes. I think I'll ask him about the Effexer. Thanks.

mom62
Posts: 600
Joined: Mar 2004

Hi,

I also was put on effexor for the hot flashes. I was on tamoxafin and now on Arimidex. It does help.

Terry

DebbyB's picture
DebbyB
Posts: 67
Joined: Nov 2011

A friend turned me on to peppermint oil Saturday morning. I rolled my eyes a bit, but tried it over the weekend. This is heaven sent! Put a few drops of peppermint oil on the back of your neck. Honestly, I didn't think it would work, but it does.

Battscave
Posts: 14
Joined: Mar 2012

I was told to try black cohosh from the local health food store. I take Effexor too to try and calm down the hot flashes, and this seems to be working for me. Thank God

DebbyB's picture
DebbyB
Posts: 67
Joined: Nov 2011

My Dr told me not to take black cohosh. He also said herbal medicines can interfere with breast cancer treatments, so I run everything past him first.

spiper41
Posts: 4
Joined: Mar 2012

At the very beginning of my mets diagnosis, my oncologist said no to anything estrogenic, including black cohosh and soy.  I would check with your doc before doing this.

Battscave
Posts: 14
Joined: Mar 2012

I was told to try black cohosh from the local health food store. I take Effexor too to try and calm down the hot flashes, and this seems to be working for me. Thank God

Battscave
Posts: 14
Joined: Mar 2012

I was told to try black cohosh from the local health food store. I take Effexor too to try and calm down the hot flashes, and this seems to be working for me. Thank God

disneyfan2008
Posts: 5388
Joined: Oct 2010

through meno and on tamoxifen I have very mild hot flashes is you want to call them that..compared to other discriptions. I had hysterectomy in May due to tamoxifen and still not bad afterwards. (I had thickening of uterus)

Denise

CypressCynthia's picture
CypressCynthia
Posts: 3983
Joined: Oct 2009

Back before antidepressants were used for menopausal symptoms (yes I am that old of a survivor!), I was put on an old drug called Bellergal-S. It is a little this and a little that. It has an ergot for headaches, a small amount of phenobarbital and belladonna. Sounds like witchcraft, but it saved me. It can be addicting (low potential), but I had no problem at all weaning off after perimenopause. I think it is still around, but not used much?

Heatherbelle's picture
Heatherbelle
Posts: 1221
Joined: Jun 2010

Hi Eva :) per my oncologist's suggestion I started taking vitamin e daily to help with the hot flashes. I'm no longer on tamoxifen, but since I had a hysterectomy last year i still get the hot flashes & night sweats - the vitamin e helps tremendously with those, and my hot flashes are less frequent and less intense, and the night sweats have all but disappeared!
*hugs*
heather

JuJuBeez's picture
JuJuBeez
Posts: 332
Joined: Apr 2010

I'm 2 1/2 years in with Tamoxifen. My hot flashes have reached Global Warming these past couple of weeks. I told my gyno today, and he prescribed Clonodine. I already use 75 mg of Effexor, taken as 37.5 mg 2x/day. I will report how it works after I've taken it for a while. If it works, he's my new BFF.

I am def going to get some Peppermint oil. I used that on the back of my neck once last summer, and it was soothing.

I'm thinking of making gel inserts for bras that go in the freezer and pop in for relief. Or make bras themselves that can go in the freezer. LOL. I'm getting desperate.

RozHopkins
Posts: 469
Joined: Dec 2010

Yes, terrible hot flashes. No matter when I take it I personally still get flashes through the night countless times. The ceiling fan we had put up is a godsend. Wear mainly or only cotton, bedding too as previously mentioned. Fan at work on your desk would be a good idea, if you have a desk, and a hand held fan in your purse. Effexor I use too and it does help some but they are still frequent and uncomfortable to say the least. Avoid if you can, spicy foods, hot drinks and alcohol. It's just not fare is it..................... Like one other lady mentions at least I know it is working. Good luck.

nokomarie
Posts: 3
Joined: Mar 2012

I am closing in on the last month of five years of tamoxifen and I actually think I might live through it. My oncology nurse practitioner put me on effexor and it made a little difference and then my regular doctor put me on effexor xr. Helps a little, but on even semi warm days I look like a melted, red faced, sweaty mess. I always wonder if people in the grocery store think I have something contagious. I will be glad when this is over.

I did find a couple of things that helped during the summer. A cool handkerchief around my neck helped and then I found a product that you can put in the freezer and put around your neck that keeps cooling for at least an hour or so. The product is called Black Ice and it worked for me. Looks a little dorky, but better than being "drippy"!

Hope you find something to work for you. Best wishes!!

spiper41
Posts: 4
Joined: Mar 2012

I tried Effexor but was not happy about the sexual side effects.  It was very difficult to get off of it, so I won't be doing that again.  My oncologist came up with clonidine patches.  Clonidine is a blood pressure medication that isn't very effective in pill form but is very effective in the patch.  I started on the smallest dose and am now up to the highest dose.  It has helped a lot with the hotflashes, and my blood pressure is great.  The longer I have been on Arimidex the worse they seem to get.  Now I'm using the patch and getting acupuncture twice a week and a Chinese herbal preparation called Zhi Bai di Huang Wan from Seven Forest.  The Zhi Bai was prescribed by my naturopath who is very knowledgeable about oncology.  I take six before bed time.  It seems to take all three for me to control the hot flashes, but I often don't wake at all at night.  When I do, I go back to sleep.  I will have a few mild ones during the day.  This is a huge improvement.  Before I was waking up three and four times a night and unable to sleep after 3 or 4 AM, and I was miserable during the day.  The acupuncture and some other herbs also help with general dryness.  My eyes are no longer painful, and the vaginal dryness has improved.  I'm a happy camper. 

peanutcat's picture
peanutcat
Posts: 104
Joined: Mar 2011

Yes, it is better to take it in themorning. Then you can dress in small layers take themoff as you get warm and cool. that is what I do. Try it. Let me know if you try it or if this works for you.

 

HUGS!!!

disneyfan2008
Posts: 5388
Joined: Oct 2010

I have six months to go on Tamoxifin and never had hot flashes-about 2 yrs into taking it i had to have total hysterctomy due to enlarge uterus.

I never knew it was an issue with the med...

RozHopkins
Posts: 469
Joined: Dec 2010

As previously said including anything soy plus imitation meat.  Sorry.  Hot flashes were all day and night and Effexor which I have been taking didnt touch them.  Sorry again. It depends where you are I think hormonally and where you are in the menopause.  It is so true all of our bodies react differently so go for it, try all Oncol suggests and see if something suits you.  Just recently changed from tamoxifen to three monthly implant.  It's a miracle, though early days, hot flashes are few.  I have a feeling ovaries may be dying, finally.  We'll see.  Good luck.

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