Mar 13, 2012 - 8:19 pm
My wife had a brain tumor diagnosed over three years ago (anaplastic astrocytoma, grade III). All of her MRIs looked good over the last few years but we got a bad surprise in December, 2011. A couple of small lesions had formed away from her original tumor.
So, a gamma knife was scheduled a few weeks later and she was put back on low doses of temodar.
The gamma knife was cancelled the day of the procedure when the pre-op MRI showed that the lesions had jumped around and grown to about 10. Also, the previous lesions -- especially the bigger of the two -- had doubled in size in a very short time.
My wife had a biopsy later that week and goes in for her second avastin and CPT11 drip tomorrow (along with a ton of anti-nausea and steroid drips). She is scheduled for six months of chemo, once every two weeks. She understandably hates it and has mentioned more then once that she has pondered not doing any more chemo due to the awful side effects.
As far as the pathology report goes, the tumor board at her hospital believes she has gliomatosis cerebri, but as with so much of brain cancers, cannot be 100% certain.
She has not shown any of the 'usual' signs, however, such as seizures, loss of balance, etc. I am hypersensitive to looking out for any problems, but maybe am over-thinking it.
Has anyone been through this, or is currently going through this? I am so lost...I just don't know what to expect.