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Bendamustine with Rituxan

Susan55
Posts: 16
Joined: Mar 2012

My husband has Mantle Cell Lymphoma and now is getting his duo port in on Tuesday and begins treatment on Thursday with 2 rounds of bendamustine then following Thursday Rituxan. Anyone who has had this could you share your information with us we would greatly appreciate it. I know everyone reacts differently to the treatments but any information on what to expect when he walks into that infusion room for the first time.

allmost60's picture
allmost60
Posts: 3147
Joined: Jul 2010

Hi Susan,
Sounds like your dear husband has a rough road ahead of him with multiple issues to deal with. God bless both of you! Now that you know the cancer is also in his colon, you might want to check in on the colorectal discussion group. It's an excellent group and the wealth of information they share will be very helpful for both of you. We can also help with support here. I will keep you and your hubby in my prayers. Best wishes...Sue
Follicular NHL-stage3-grade2-typeA-diagnosed June 2010-age 61.

Susan55
Posts: 16
Joined: Mar 2012

Thank you I did any information is so helpful so scared because of the knowledge I don't have.

Tammie43
Posts: 5
Joined: Mar 2012

Hello Susan55. I was diagnosed with stage IV Mantle cell Lymphoma around the same time as your husband. I am being treated with Hyper CVAD Chemotherapy(I have two treatments left) followed by a bone marrow transplant in June. For most of the side effects, there are medications and home remedies that alleviate them. Over all, I havent felt to bad considering....I hope the treatments are going well for you and your husband.

Susan55
Posts: 16
Joined: Mar 2012

Hi Tammie 43 Thank You for your response you have alot going on, so glad to hear side effects are manageable if you feel up to it could you recommend home remedies useful to you. So glad you replied felt like my husband is the only one if you don't mind me asking where are you being treated? Take care

Tammie43
Posts: 5
Joined: Mar 2012

Hello Susan,

My doctor gave me a recipe for a mouth rinse to help with the mouth sores that works well. It is 1/4 teaspoon baking soda, 1/8 teaspoon a salt, and 1 cup distilled water. rinse and gargle after every meal and whenever you feel you need to. My doctor said take probiotics since the chemo affects your intestines. Along with the probiotics, he recommends eating hard cheeses and yogurt since they have the same bacteria as the probiotics. I am being treated at the Geisinger Henry Cancer center. I hope this helps.....

Susan55
Posts: 16
Joined: Mar 2012

Yes it does Thank You so much let us know how you are doing.

Susan55
Posts: 16
Joined: Mar 2012

Just wanted to let u know thinking of you hope you are doing well.

Tammie43
Posts: 5
Joined: Mar 2012

Hello Susan55,

I am doing good! I had a pet scan and a bone marrow biopsy the other day and there is no evidence of tumors. My doctor said I was in remission.. I couldnt be happier :-) How are you and your husband?

Susan55
Posts: 16
Joined: Mar 2012

So glad to hear your good news. Could I ask a few questions? You said you are getting a bone marrow transplant but my husband they are planning a stem cell transplant. Also prior to treatment did your labs before they knew you had MCL, were you very anemic? The reason ask is Tuesday Paul swallows a pill cam already done colon and endo test found cancer in colon but no bleeding the Dr. trying to find out why so anemic. Your news raises hope for us. Realize still you have a lot left but your post is like a light at the end of the tunnel.

Tammie43
Posts: 5
Joined: Mar 2012

Hello Susan55. How are you and your husband? I had no problems with anemia. I discovered I had MCL accidently. The doctors discovered I had an enlarged spleen but I had no symptoms of any kind.

Susan55
Posts: 16
Joined: Mar 2012

Just wanted to let u know thinking of you hope you are doing well.

diazr1's picture
diazr1
Posts: 101
Joined: Mar 2012

I have been treated and will be treated at COH and they are great. Your husband is in good hands

Susan55
Posts: 16
Joined: Mar 2012

Hi what type of lymphoma are you being treated for? So glad you replied.

diazr1's picture
diazr1
Posts: 101
Joined: Mar 2012

I am still being treated there for a new clinical study

Susan55
Posts: 16
Joined: Mar 2012

Will be thinking of you as I walk by that fountain please let us know how you are doing.

MJWhite914
Posts: 1
Joined: Apr 2012

Hi Susan, So sorry to hear that your husband has been diagnosed with this desease. My husband was diagnosed last July and had an enlarged spleen, night sweats, it was also in his bone marrow. He has had 4 rounds of hyper-cvad with rituximab in patient chemo and 2 rounds of ryce (sp?). He started treatment in August and finished in December. He just had his stem cell transplant and was released Saturday and is now home recovering.
This journey is not a pleasant one, however, you can make things easier on yourself and your husband by making sure you both STAY POSITIVE, always look for the bright side! Our faith and the support of others were huge. Let those who offer to help do just that. Your energies are needed to help your husband get through this. Keep him from small children if possible, make him wear gloves when he goes to any store and wash hands often. Tell those who are sick or have been exposed to an illness to kindly stay away. As they go through the chemo, their immune systems are compromised so protecting you and him from things is important. Tell him to keep moving! VERY IMPORTANT! Sometimes he will need to force himself to put one foot in front of the other, he has to keep his mind in a good place as much as possible and so do you! One day at a time Susan. The chemo has side affects that differ between patients. My husband experienced some nausea which was controlled with meds, diarrhea was another, some memory issue's, remember these are temporary. There is a nasty bug called c-dif that my husband picked up while in the hospital so make sure he washes his hands with soap and water before he eats or takes any meds, better yet, he should not touch his meds at all! Hand sanitizers don't kill it. I would be happy to share ANY of our experiences with you Susan at any time. Hugs and prayers to you both!
Merrie Jo White

Susan55
Posts: 16
Joined: Mar 2012

Wanted to give you time to enjoy being at home. How is your husband doing?

Susan55
Posts: 16
Joined: Mar 2012

My husband starts treatment with Bendamustine on Thursday next week rituxan. How is your husband doing? Paul gets a duo port in Tuesday did your husband have one? Susan

templaruk
Posts: 1
Joined: Apr 2012

Hi everyone!
This site has been a revelation to me, I was diagnosed with stage 1V Mantel Cell Lymphoma back in November 2011 and to be honest, I was beginning to think I was the only case! Reading some of your experiences is in many ways, comforting. At the moment, I'm on a "watch & wait" program, no real symptoms to speak of, but more recently, I am experiencing pain the ankle joints that really do make it difficult to walk and tiredness.... I could sleep forever! I go back to the Hospital in June and I think they will run another round of scans etc to see if the illness has progressed, but, up to now, guess it's holding off. I had never heard of MCL until I was diagnosed, then I did some research etc but to be honest, I still don't have enough knowledge where prognosis is concerned. I'm not sure what the protocols are within my part of the UK, the Dr's have discussed RCHOP and Autoglobus Transplant as possibilities, but I guess that's my next decision. I'm glad I found this group, people who I talk to, family included, have a problem relating when there are no physical signs of illness, it has taken us all by surprise...... best of luck to all of you!

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