Mar 07, 2012 - 2:38 pm
My dad was diagnosed with stage 4 stomach ca in Dec 2009. That in itself was a shocking time as he was asymptomatic the only thing was being breathless and tired from a really low Hb level and this is how all the investigations were started. At that time we were told, the consultant (gastroenterologist not a oncology consultant) said he could not be sure of the outcome, some people are not suitable for surgery etc etc and he did mention a 6 month prognosis.
Obviously we are in 2012 now, so there was good news for my dad up until now, which I would like to share with you as I think at least this will give some hope to a lot of people who have just been initially diagnosed. My father was responsive to 3 cycles of ECX chemo, underwent a subtotal gastrectomy in 2010 and had a further 3 cycles of ECX post op. All of the above he tolerated fairly well. At the moment he seems fit and healthy just a little thin. So he has had a about 17 months of being well after the end of post op chemo.
However this week following a routine outpatient apt and a CT scan and blood test results show his tumour markers are increasing (just under 100) now and CT scan showed lymph node involvement at distant sites to the stomach area but no spread to other organs and no recurrence in the stomach itself but we were given a prognosis of 6 months ( if he were to have no chemo), a couple of months more (if he has chemo EOX regimen this time and they are offering 6-8 cycles).
This is just such a shock, as my dad seems so well in himself and I cannot fathom how they predict he will deteriorate so much and so quick over 6 months. As I said he is really well in himself. I think as a family we are ignoring the issues and pretending that everything is normal as my dad is currently well and just living life as normal. To be honest I do not really know how to deal with this. Just would like to know what other peoples experiences have been?
Would love to hear some responses.