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ct tomorrow

adobe
Posts: 72
Joined: Feb 2012

Tomorrow - First CT since trying votrient, then nexavar. Off both drugs now due to side effects. Will find out tomorrow what to do next??? It has been an up and down medication
cycle - hoping that it levels out.

cww71964's picture
cww71964
Posts: 95
Joined: Dec 2011

My prayer for you is that the scan comes back clear and there is no need for you to take anything else.

Health and happiness,
Wayne

adobe
Posts: 72
Joined: Feb 2012

I am keeping busy, but still counting the hours! So nice to have this site for encouragement!

DogRescuer's picture
DogRescuer
Posts: 49
Joined: Feb 2012

Wishing you clean scans for tomorrow. Until then keep your mind off everything, watch lots of movies and be extra nice to yourself.

adobe
Posts: 72
Joined: Feb 2012

I like that suggestion! Seen anything good lately? Thankyou
for the wishes!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

One comfort, adobe, is that it's not too clear what the latencies are between administration of these drugs and their beneficial effects. You might have gained a lot of benefit already and may continue to do so even after having come off the meds. Effects can be cumulative and can be delayed. Also, if the drugs have been working they've given your immune system a potential helping hand. Coming off them then cuts the side-effects that have been undermining your immune response meantime and allows it to resume the fight against a weakened enemy. So, both the Votrient and the Nexavar may have been of use. I sincerely hope so anyway. You could watch 50 : 50 which I hear is good but maybe a good bit of old Laurel and Hardy might be more salutary.

foxhd's picture
foxhd
Posts: 1876
Joined: Oct 2011

Dig in there Adobe. We can beat this thing. Hang tough.

adobe
Posts: 72
Joined: Feb 2012

Thanks,foxhd, I am digging! But, will be up early, come out, and face the day!

adobe
Posts: 72
Joined: Feb 2012

Thanks a bunch Texas, it is 8pm here and we are leaving at 3am for a 9am appt. in San Francisco. I will be thinking about your encouraging word as we make the drive. Thanks-Adobe

jam66
Posts: 55
Joined: Jun 2011

Good luck tomorrow, Adobe. Are you going to UCSF? My son goes there...not for kc, but for other kidney issues. I really like everyone there.
Anyways, sleep well. Thinking good thoughts for you......

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Can't wait to hear some more good news.

Think also of the inspiring exploits of our poster boy on MDX-1106 - that's enough to put anyone in good heart.

foxhd's picture
foxhd
Posts: 1876
Joined: Oct 2011

Yeah, as TW says, "Our MDX boy can put everyone in heat."

What?.. oh, nevermind.

Seriously, Good Luck, Adobe!!

adobe
Posts: 72
Joined: Feb 2012

You are working MDX Boy, sending your strength to all of us! Your vibes worked for me, I had good ct results yesterday, no new mets, existing mets the same. Sending same strength back to you!

ADOBE

adobe
Posts: 72
Joined: Feb 2012

Thank you for sending good luck, and my luck was good yesterday. I did not go to UCFS=a super great place to go!! I happen to go to CPMC. Stay in touch , this is a great site!

adobe
Posts: 72
Joined: Feb 2012

Thank you for sending good luck, and my luck was good yesterday. I did not go to UCFS=a super great place to go!! I happen to go to CPMC. Stay in touch , this is a great site!

adobe
Posts: 72
Joined: Feb 2012

Always appreciate your information - very comforting about the the benificial effects of these drugs, and the that the effects can be cumulative and delayed. Laurel and Hardy, thanks for reminding me, I like them and my husband Loves them!!

adobe
Posts: 72
Joined: Feb 2012

Read your info many times about the drug effects. Very encouraging, since when I am not taking something I get quite concerned about what is stopping the disease.

Now, about YOU! We are all here with you, and we all need you to keep us on on track- so while you are taking care of yourself, do not forget about all your friends out here, we need you!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Thanks adobe, that's a charming message and I shall remember it.

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