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Signet Ring Cell colon cancer survivors?

PaulZA
Posts: 10
Joined: Mar 2012

Hi,

I was diagnosed with SRC colon cancer last Wednesday (3/29). T3N1M0 Stage 3. I am scheduled for surgery on Friday.

I was wondering if there are any long term survivors out there. Five years or more.

thanks,
Paul

jasminsaba
Posts: 149
Joined: Jul 2011

Hi Paul - sorry to hear about your diagnosis. I can't offer any specific information on this topic that may be helpful, but I was wondering since you haven't had surgery yet, how you've already been given your specific TNM information (T3N1M0)?

PaulZA
Posts: 10
Joined: Mar 2012

The T3N1M0 staging is the surgeon' estimate at this stage based on all the available data.

I think they have a pretty good idea of the size of the tumour from the CT scan and colonsocopy. The CT scan report said 15cm.

We aren't sure about the N1 part. I guess I have to wait until the removed lymph nodes have been tested after surgery. The CT scan picked up 3 enlarged lymph nodes but hopefully they are just inflamed.

bye for now,
Paul

peterz54's picture
peterz54
Posts: 230
Joined: Feb 2012

Paul, I have done a lot of research on behalf of my wife with the same type of colon cancer - signet ring. but she's stage 4 because of significant cancer in her liver. my take, after reading so much, is that any stage other than IV has fairly high odds of 5 year survival. just refered to a 2009 paper by US Ocology (who my wife uses) which analyszed their patients and it put 4 year disease free survival at 70+% for patients following 1st line therapy. graph didn't go to 5 years.

good luck.

peter

PaulZA
Posts: 10
Joined: Mar 2012

hope it goes well with your wife

janklo
Posts: 23
Joined: Mar 2010

Hi Paul! My daughter has signet ring cell colon cancer and she's still here 2 years after diagnosis. One thing to remember is you have to be your own advocate. Question everything because you have to stay one step ahead of the cancer!

Here is another forum where you will find several signet cell survivors: The Colon Club
http://coloncancersupport.colonclub.com/index.php

And here is a link to a long term (10 years) signet cell appendix cancer survivor:
http://appendix-cancer.blogspot.com/

Ask if you have any more questions!
Janet

PaulZA
Posts: 10
Joined: Mar 2012

glad to hear your daughter is doing well

tootsie1's picture
tootsie1
Posts: 5006
Joined: Feb 2008

I just want to offer my prayers and best wishes for you.

*hugs*
Gail

PaulZA
Posts: 10
Joined: Mar 2012

appreciate it

thxmiker's picture
thxmiker
Posts: 1220
Joined: Oct 2010

I had been diagnosed in Sept 2007 with SRC to the colon. I have had surgery in Sept 2007 and again in Nov 2007. Third Surgery in June 2010, followed by 6 months of FolFox chemo. Which put me in the hospital twice. My CEA was 1125 in June 2010, and is now 3.4.

Keep up a good attitude, and we will make 5 Years together!
Best Always, mike

PaulZA
Posts: 10
Joined: Mar 2012

Thanks for the post. Glad to hear that you have got your CEA down.

My first challenge is to get through and recover from tomorrow's surgery. (left hemi colectomy)

ciao,
Paul

PaulZA
Posts: 10
Joined: Mar 2012

I just saw this earlier post of mine and thought I'd give an update.

The operation on 3/9 (left hemicolectomy) went well. Unfortunately the surgeon discovered tht the tumour had invaded the bladder and the abdominal wall, making it a T4. He removed the affected piece of bladder, which still works fine by the way, and marked where the tumour had attached to the abdominal wall with clips.

The removed pieve of colon was tested an 1 out of 11 lymph nodes were found to be affected.

So it is now T4N2M0 or stage IIIc

Nnext steps are radiation therapy for one month combined with one hour of 5FU per day for week 1 and 3. This is going to start next week.

After this it is the usual 6 months of FOLFOX.

So, there we are. I guess I had no choice but to ride it out, and maybe find a HIPEC surgeon in my neck of the woods, just in case.

PaulZA
Posts: 10
Joined: Mar 2012

I just saw this earlier post of mine and thought I'd give an update.

The operation on 3/9 (left hemicolectomy) went well. Unfortunately the surgeon discovered tht the tumour had invaded the bladder and the abdominal wall, making it a T4. He removed the affected piece of bladder, which still works fine by the way, and marked where the tumour had attached to the abdominal wall with clips.

The removed pieve of colon was tested an 1 out of 11 lymph nodes were found to be affected.

So it is now T4N2M0 or stage IIIc

Nnext steps are radiation therapy for one month combined with one hour of 5FU per day for week 1 and 3. This is going to start next week.

After this it is the usual 6 months of FOLFOX.

So, there we are. I guess I had no choice but to ride it out, and maybe find a HIPEC surgeon in my neck of the woods, just in case.

PaulZA
Posts: 10
Joined: Mar 2012

.

PaulZA
Posts: 10
Joined: Mar 2012

I just saw this earlier post of mine and thought I'd give an update.

The operation on 3/9 (left hemicolectomy) went well. Unfortunately the surgeon discovered tht the tumour had invaded the bladder and the abdominal wall, making it a T4. He removed the affected piece of bladder, which still works fine by the way, and marked where the tumour had attached to the abdominal wall with clips.

The removed piece of colon was tested an 10 out of 11 lymph nodes were found to be affected. :-(

So it is now T4N2M0 or stage IIIc

Nnext steps are radiation therapy for one month combined with one hour of 5FU per day for week 1 and 3. This is going to start next week.

After this it is the usual 6 months of FOLFOX.

So, there we are. I guess I had no choice but to ride it out, and maybe find a HIPEC surgeon in my neck of the woods, just in case.

thxmiker's picture
thxmiker
Posts: 1220
Joined: Oct 2010

Glad all went well!

When looking for articles about treatment of Signet Ring Cell, be sure to read the date before reading the article. Pre 2007 the diagnosis was not positive. The change in treatments and refining of FolFox has improved greatly.

Diet, attitude, exercise, etc... will also have a large impact on how well everything goes. Chemo is a terrible experience, but can made bearable with good attitude. My wife went with me for most treatments, else a long term friend went with me. That made the trips and experience less traumatic. Having someone there to drive me home, and get food, or just talk to me during treatments was a real benefit.

I met several people facing chemo on their own, and one could see the pain in their faces during treatments. Could I have done Chemo by myself, Yes, but it would have been much more difficult.

Best Always, mike

LivinginNH's picture
LivinginNH
Posts: 1295
Joined: Apr 2010

Hi Paul,

I'm glad that the surgery went well for you, that's great news. If you decide to go the HIPEC route, please feel free to send me a note. Also, if you live in the Northeast, I can provide you with the name of a good HIPEC surgeon.

Take care,

Cynthia

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