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27 year old husband diagnosed with fibrolamellar hepatocellular carcinoma
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Feb 29, 2012 - 4:07 pm
We found out a few weeks ago that my husband has fibrolamellar hepatocellular carcinoma. They are starting him on Nexavar this week and we have an appointment with Sloan in a week and a half. I was just wondering what questions we should ask when we go or options we have. They have not mentioned anything about surgery, only that he could be able to do a trial. |
Joined: Apr 2011
Dear emokdc531
If I may suggest, when I am confused about a treatment or anything that is going on, I turn to my family doctor. He has often been able to take the time with Lee and myself to explain things and also, suggest what we may want to address. If you have a good relationship with your family doctor, (as we do), that might be an idea. If you do not, turn to other healthcare professionals who you do. Then again you can browse this site and the American Cancer Society for more information about this. When I am "stuck", I just type in my quiery to the computer and see what comes up. Just type in, "What questions to ask when diagnosed with cancer", and keep browsing till you find a good site. Sloan is an excellent choice for this disease and don't be shy about asking them about what you should be thinking about when it comes to treatment. Be very nosy when it comes to your husband's treatment. Ask them about what else there is and why his treatment vs any other. Sloan will be up with the best available. Hope I have picked your brain enough to help you with this question. All my best wishes to you and your husband and the future "living" with cancer.
Joined: Feb 2012
Thank you for your response!