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Anyone due for scans?

lizdeli's picture
lizdeli
Posts: 524
Joined: Jul 2009

I'm going to MDA this weekend, scans on Monday. At the 30 month mark, you would think I would calm down a little but no...scanxiety has set in. Anyone else going for scans in the next week or so? If so, I want to wish you well and keep you close in my thoughts and prayers.

Hoping to post good news next week!
Hugs to all,
Liz

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

Hi Liz,

I go for my 3 1/2 year colo-rectal appt in a couple of weeks - yes, scanxiety is already there. :) Actually, I moved my appointment up because I was having some issues, but naturally now the issues have disappeared. I guess scanxiety will always be with us.

Hope all goes well for you on Monday - I will keep you close in my thoughts and prayers as well.

As a side note concerning prayers: my family gained a new addition last week. My niece gave birth to a new baby boy. He was born 3 months premature because of problems with the placenta not properly nourishing him, but he's doing very well. 1 pound 4 ounces - can you believe it? He's a little living miracle.

Rose

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I hope your appt. will go well. I go tomorrow for my 3 1/2 year colorectal appt., so you and I are right in pace with each other. May we both get good news!

Congrats on the new family member--he sounds like a real fighter!

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

Yes, he's quite the fighter - he's the smallest baby in the natal unit and he's doing so well it's amazing. Thanks.

Hope your appointment went well today!

Rose

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I hope all goes well for you at MDA. I understand the anxiety associated with scans and exams. I just had a CT on Feb. 3rd. (all good news) and tomorrow, I go for my 3-month appt. with my colorectal doc. It seems to never end. I am sure we will both be getting good news. Please post when you know and have a safe trip! Hugs!

mxperry220
Posts: 372
Joined: Mar 2011

I see my chemo doctor Monday for a routine 6 month exam. I am 37 months post treatment. I currently am having no scans, just office exams by colorectal surgeon and chemo doctor.

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

Good luck with your upcoming appt! May you get great news!

mxperry220
Posts: 372
Joined: Mar 2011

Thanks Martha. Same to you.
Mike

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

Thank you for the good wishes!

Lorikat's picture
Lorikat
Posts: 569
Joined: Jul 2011

Good luck and let us know! I go back end of April and am already anxious!

lizdeli's picture
lizdeli
Posts: 524
Joined: Jul 2009

Rose, Martha and Mike
Wishing you all great results! Rose, my brother's son was born 1.3 ounces. That was almost 30 years ago and he is a strong, healthy man today and recently became a father himself six months ago. I'll keep your new nephew in my prayers. They are miracles!
Hugs,
Liz

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

Thanks Liz - it's so good to hear stories like yours. Our little one is doing very well - amazing!

Boobits
Posts: 28
Joined: Oct 2011

Funny you should ask...I just had my 3 month Pet and CT scans yesterday. Tomorrow I see my oncologist, then next week my colorectal surgeon, and finally the week after, my radiologist. Whew! Enough docs? Plus sandwiched in-between I have a dental app't, PT, and dermatologist! Argh!

eihtak
Posts: 901
Joined: Oct 2011

That pre scan worry must never go away...tho is good we have to go because any problems will be found earlier than people who were never sick and don't get scanned like us. My prayers are with you and anyone else. I had one year scans a couple weeks ago and have an appointment today to discuss treatment for a lump on my breast that fortunately was caught at an AC follow-up. Although not what I wanted to hear, as I said, caught early and would otherwise not know....so a good thing!!! Lots of positive thoughts to you!

dasspears
Posts: 233
Joined: Feb 2009

Scan in 2 weeks and I hope this will be my last year for scans!!! Good luck to everyone!

sephie's picture
sephie
Posts: 548
Joined: Apr 2009

i go to MDA for ct scan on the 11th. see docs on the 12th. this is my 32 month after tx. am having the same issue on left anal side that they keep watching. good luck to you. sephie

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

Best wishes to everyone - you're a wonderful bunch of people!

lizdeli's picture
lizdeli
Posts: 524
Joined: Jul 2009

Well a lot of us going for scans, check ups, etc. Wishing everyone great results and let's fill up the board over the next couple weeks with all that good news!

Sephie, I'll miss meeting you at MDA by just 5 days! I wish we could have met in person. Maybe we can coordinate our next appointments around the same time.

Eihtak, wishing you well. So sorry you have to go through this again. As you said, we do have the opportunity to catch things earlier because we are watched so closely.

Okay, banana flavored barium, I'm ready for you! (Yuck...)
Hugs to all. Don't know what I'd do without all of you. You make this journey lighter and your understanding and friendship is priceless.

Liz

torrance
Posts: 118
Joined: Jan 2012

I actually look forward to my rectal anoscopes every two months and now every four months. They give me peace of mind so as weird as it seems, I do look forward to it. I just had my exam under anesthesia because of vaginal stenosis and all was good. Continue with the pelvic physical therapy and no reason to think we can't make a full "recovery!" My PT has asked me to be a guest speaker at a conference she is hosting for pelvic physical therapist this coming April. Ironicially, I'd rather have pelvic physical therapy, than speak in front of a group! But, I am gonna do it if it helps give a voice to those of us in this situation. In the meantime severe depression has set in and I find myself a complete mess. Love having this place to unload.

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I just wanted to post a short note that my exam with the colorectal doc went very well yesterday. She says everything looks great! I will have a colonoscopy in June.

Thank you to everyone for the good wishes and prayers--it always helps!

mxperry220
Posts: 372
Joined: Mar 2011

Glad to hear the good news. I know you are relieved. Good luck on the colonosopy in June. I had my colonoscopy in November and everything looked fine. The colorectal surgeon removed two precancerous polyps. My mom's side of the family has a history of polyps. My next colonoscopy will be in three years.
Mike

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I am hoping for good news on my upcoming colonoscopy like you got. Congrats! I wish my doc would put me on a 3-year schedule for those! Maybe after the one in June.

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

I missed this - congratulations Martha!!!!

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

That's great of you to speak at that conference. There is nothing like hearing from someone who has been there, done that. I'm sorry you are dealing with depression. Come here anytime to find lots of broad shoulders. I wish you a good day and a nice weekend.

Phoebesnow
Posts: 457
Joined: Apr 2011

Have you seen your doctor about the depression. I too am often on the brink. I have other health issues now. Acceptance has become a dirty word.I am really struggling with my physical decline. I am working with several doctors, who treat me as if it is in my head, but when I fall down on the floor it is hard to ignore.

The mental aspect really affects the physical, my therapists is helping me cope.

Work hard to rise above adversity it is worth it.

All the best to u.

P.s. I succumbed and got the cane yesterday, almost broke my heart. Last week I was swinging like a pendulum at the top of two flight of stairs, when I got to the bottom of the stairs, I was so out of breath, I had to hold onto the valets booth to get myself together so I could move on. As I jerked my way across the street in my white pants, white high heels, and sailor jacket, swinging drunkenly about a group of young men catcalled to me as they drove by. I experienced Beverly hills a little differently than normal. It hurt, there's even more to this story, I had purchased a group on for mani pedi and when I arrived the receptionst asked if I was drunk. I wish one of these episodes would take place at the doctors office and not the beauty salon.

sephie's picture
sephie
Posts: 548
Joined: Apr 2009

hey, your outfit sounded lovely but do not wear high heels. you can still dress in a very chic way with them on. sephie

Boobits
Posts: 28
Joined: Oct 2011

Visited my oncologist today. My abdominal and pelvic scans were fine, but he said there were a couple of tiny spots at the bottom of my left lung. He did not seem concerned, said we would keep a close watch on them. I did have a bad sinus infection that went to my chest this past week, lots of coughing, so that could be it, maybe bits of phlegm.

Next stop, the colorectal surgeon next week for that followup, then to the radiologist the following week.

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

Wishing everyone good news - scans, dr. appts! I see my colorectal dr Wednesday for another 3 month check up. Another scan in May...

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I hope all goes well for you on Wednesday!

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

I did receive good news today!

cap630
Posts: 150
Joined: Jul 2011

Praying all goes well for you today. I see the surgeon and radation ongologist this week too. ~Carol

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

Best wishes to you too on your appts. this week. May you hear all good news!

shirlann54
Posts: 161
Joined: Aug 2011

Good luck on your scans ,I have my colonoscopy next friday.I,m at my 14 month mark.My prayers will be with you.

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I want to wish you all the best on the colonoscopy--may you get all good news!

shirlann54
Posts: 161
Joined: Aug 2011

Thank you. Hope i do have good news on my colonoscopy i have it on the 16th this mo.Good luck on your colonoscopy too.How many years out of treatment do have to be before its every 3 years do you know?I,m 14 mo out of treatments.How many years out of treatment are you ? Mike had said hes is every 3 years. Shirley

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

It's hard for me to answer your question, as my colorectal doctor told me at the time of my last colonoscopy that I would have my next one in 3 years. However, at the time of my visit in December 2011, she said she wanted one this coming June. My anoscopes and DRE's have been normal, so I think she is just being cautious. I also think she forgot she had originally told me 3 years. I am officially 3 1/2 years out of treatment as of March 9th. I think we are finding that doctors are all over the place on this topic. Follow-up varies from person to person. I think we just have to trust in our doctors.

shirlann54
Posts: 161
Joined: Aug 2011

Thank you .Your right that would be hard to answer.I,ll ask my colorectal DR .And i trust my doctors They saved my life .I Thank God for them . Shirley

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

A lot of it probably depends on a person's individual circumstances - like whether there's colon cancer history in the family or whether or not there have been previous polyps found - that and the doctor's own preferences. Just my guess, but it sounds logical. My colo-rectal surgeon said I don't have to have another colonoscopy for 5 years, but she'll be doing an anoscopy every 6 months. Since the colonoscopy doesn't detect anal cancer and the anoscopy does, I'm cool with that - no history in my family of colon cancer and my previous 2 colonoscopies were clean.

Sending you and everyone else prayers for good results.

shirlann54
Posts: 161
Joined: Aug 2011

Thank you too .It is so nice to have someone to talk to that understands.I will talk to my Dr about it. Theres no history of colon cancer in my family thank God.

lizdeli's picture
lizdeli
Posts: 524
Joined: Jul 2009

I remain NED thank God. Of course I know much more about my body that I think I care to. cysts here, cystes there, noduals over there. I was told it was nothing to worry about, just part of the aging process. pooh to that! lol. New think popped up though. Athesceloric calicification on aorta which showed on adominal scan. I was so excited abuot the good news that I didn't see it and she didn't mention it. I sent an email back to MDA to ask about it. Sounds scary to me but we'll see.

Glad to here the other good news!!!!
Hugs to all,
Liz

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

Congratulations on your continued NED status! That's wonderful! I know what you mean about knowing more about our insides than we'd really like to sometimes! I hope you get an answer about the aorta question. Hopefully, it can be easily explained as nothing of concern. Again, congrats--I'm so happy for you!

sephie's picture
sephie
Posts: 548
Joined: Apr 2009

so glad for your NED. i do all my stuff this sunday and monday at MDA. i have bumps and swelling around my anus but perhaps nothing except radiation damage. also have had chronic diarrhea for the past 3 weeks . but i will know by Monday pm. sephie

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

I hope all will go well for you at MDA. Please let us know how things go! I will send up some prayers for you to get all good news.

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

Hope everything is normal Sephie! I too find that the weeks prior to an exam are the weeks when I have the dreaded 'd' and find all kinds of lumps and bumps to worry about. Then it turns out to be ok (just radiation damage) when I see the colo doctor and things go back to normal. How weird are we?!?!? Not at all, most likely. That old unconscious stress and anxiety can do so much to our bodies!

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

NED is the one acronym I don't mind seeing or using - congratulations! I'm 58 now and continually find a variety of 'things' on my body. Ick. Remember way back when, when we worried continually about hair on our legs, did we look ok, and a variety of other non-important things? Haha! Well, they were important then - but now? not so much. Hugs are being sent your way, and prayers too, that this athesceloric calcification is another of the non-important things that come with aging. Stay well, be well.

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

Congrats, Liz on your NED news!

z's picture
z
Posts: 1283
Joined: May 2009

Great News! I wish you continued great news. I'll just bet if the aorta calcification was anything to worry about you would have been told about it right away. Like you said the aging process and being that we are scanned we know a lot about our insides. Someone said in a post one time, look at our skin, we have bumps and sores and discoloration, why not on the inside too. I wish you well. Lori

lizdeli's picture
lizdeli
Posts: 524
Joined: Jul 2009

Well the abdominal aorta calcification is another way of saying that the heart isn't the only place plaque builds up! Nothing to worry about per my doctor, but just continue to monitor my cholestorol levels. I inherited a cholestrol problem. I could eat just lettuce and still have high cholestorol if I don't take Lipitor. Been on Lipitor and my levels are really good.

I just continue learn more and more about the complexities of the human body. Actually, learning way too much!

Liz

mp327's picture
mp327
Posts: 3148
Joined: Jan 2010

This is good to hear. I am on Lipitor too and just like you, could eat only rabbit food and still have LDL levels through the roof. Thanks mom, dad, grandma and grandpa! lol! The Lipitor seems to be working for me too and no adverse side effects that I'm aware of. It would be nice to get off of it, but I don't think my internist is going to grant that wish. I hear you about TMI when it comes to my own body now. Every scan has all these things that seem scary, but I'm always assured they are not. Times were better when I didn't know about all that stuff! I wish you all good news in the future and the next time I eat lettuce, I'll think of you!

RoseC's picture
RoseC
Posts: 517
Joined: Jun 2011

Happy to hear this! Well, not that lettuce gives you high cholesterol - but that the calcification isn't something to worry about. Yippee!

torrance
Posts: 118
Joined: Jan 2012

It is so reassuring to hear everyones great news on recovery. My one year of end of treatment is 15th of this month and you know I will be celebrating for sure! Congratulations to those of you already celebrating multiple anniversaries and to all of us "passing" each and every scan that comes along. Hugs all around.

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