Feb 25, 2012 - 12:39 pm
So I met again with my doctors to discuss my test results. Again the PET showed NED in the Anal area tho lots of scar tissue that may or may not be improved with time and surgery. We have decided to leave my colostomy in place for now since he believes I at this time do not have enough musscle control to be continent. I have lots of exercises to do and should have a great looking 53yr old but in a few months if nothing else!!On the issue of my breast lump/biopsy....sad news!! After 5 pathology reports, yes 5...it came back a very rare secretory carcinoma. Apparently it is slow growing, can go on for 10 or more yrs unnoticed, and is more commonly seen in children and sometimes men. I could only find a few legit cases to read about on line so have consulted the breast cancer board for advice...I do hope they are as kind and helpful as you have all been. I fear that because of its rarity there is admittedly a lack of knowledge in treatment and thus no protocall to follow. My doc has already mentioned a probable mastectomy and that seems to be the case in the info I did find. Please if you for some reason are not getting regular mammograms do so.....I never wanted to join the pink shirt people and have always been annoyed by all the attention breast cancer gets in relation to many others. Is there an Anal Cancer walk in your town??? Now I need their help and am a mix of emotions. I will keep in touch, as I am not even a year post treatment for my AC and still have concerns along those lines. I beg of you for prayers that this rollercoaster ends on a happy note someday soon for all of us.