Feb 25, 2012 - 11:24 am
Wondering if any of you have experience with this type of cancer?
My 25-year old daughter was diagnosed about a month ago with squamous cell cervical cancer stage I.
Three weeks ago the PET scan revealed it had metastasized to her lymph system with one pelvic node definitely involved.
Two weeks ago she underwent a radical hysterectomy.
Last Saturday she was released from surgery to recover. The oncologist called her on Monday to come in immediately for pathology results which revealed metastatic large cell neuroendocrine carcinoma. They wouldn't even stage it for us, simply saying that it is "extremely resistant to treatment and very difficult to cure."
Yesterday she finished three straight days of carboplatin and etoposide chemo.
In two weeks she will begin six weeks of daily external radiation with one weekly cisplatin treatment, followed by another round of carbo/etoposide.
Outlook doesn't look good, but we're believing that statistics are the LAST thing we should focus on.
Anyone have experiences or advice to share? Thanks so much!