Feb 24, 2012 - 6:08 pm
Well, we heard from our son's NO this morning, and the Tumor Board recommends Avastin. Apparently, they thought that additional surgery was too risky for creating more severe deficits for the little gain that might be achieved.
On one hand, it seems like we've given up. Truthfully, today it feels like it. I am just too tired to fight anymore. David is taking it better. He had appointment today with a chaplain at Ho****e and apparently it was very helpful.
I was thinking of getting a second opinion, but where? I attended a brain tumor support group last week, and a woman there had gotten a second opinion at MD Anderson without traveling there: had her husband's records etc. faxed and got an opionion over the phone.
David wanted to know what it would be like down the road, when the Avastin stopped working. Dr. C was very gently and empathetic,....said that he would mostly start sleeping more and more. And that they could control the pain. He said the trajectory would be very level for a while but once a decline started, it would be a steep decline
Well, that's that. I am really tired and tense. Our daughter is flying in tonight and David's birthday is Tuesday. It's going to be a real bitter sweet party I'm giving.