Feb 24, 2012 - 3:20 pm
I have UPSC. I have recently had my one year CT scan. This is the first CT since being diagnosed and finishing treatment, which my oncologist reluctantly agreed to. My CA125 at the time of diagnosis was only 22.1, after surgery it went to 84 and then, during chemo, quickly came down to single digits, where it had remained. During brachy therapy radiation it went up to 11.5. My last blood test, 3 months ago, showed CA125 at 7.1, which I was happy with. My CT scans this week, came back with no evidence of disease, for which I am VERY grateful. However, the blood work showed that my CA125 had jumped up to 16.3. Although, this number is still in the normal range, I feel that it is high for me. I have had some pinching/discomfort in my right side for the last couple of the months. I mentioned this to my doctor and he said that the CT reports did not mention detecting anything in that area. I asked if this discomfort could be the reason for the raise of the CA125, but did not receive a definite answer. He said that he would not worry about the CA125 until it got to a number in the hundreds!! I will be worried long before then! He pretty much blew off my concerns. While I am thrilled with the good scan results, I cannot shake the feeling that there is something going on to cause the rise of my CA135 numbers. I feel guilty even asking for an opinion here because I know that there are many others that are in a much worse place medically than I am. Should I go with the good scan results and forget about the CA125 or should I be concerned about the rising number indicating something?
Has anyone had similar test results to mine? I feel like I am whining about nothing but still would like to know what others with this disease think. I know that many of the ladies on this site are much more knowledgeable than I am concerning test results and UPSC, therefore I would appreciate and welcome any and all opinions.
Note: This is the same doctor and hospital that recently misread a couple of scans on a relative of mine. After several complaints to the doctor about pain in the ribs and finally insisting that it be checked, they found that there was a tumor on/near his rib that grew and crack the rib. This tumor went unnoticed on at least two scans. Perhaps this is what is influencing my apprehension.