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How many Stage 3 Rectal Cancer Survivors are there here?

Minnesotagirl
Posts: 141
Joined: Sep 2011

Hey everyone...I find myself searching old posts to see what has happened to the Stage 3
Rectal Cancer members...finally decided this would be a better way and hopefully encouraging as well. I NEED TO SEE that there are many survivors out there. Please reply.

~Minnesotagirl

neons356
Posts: 51
Joined: Dec 2010

Diagnosed stage 3, age 53, 1993. Permanent colostomy, chemo, radiation, and 2 more surgeries. One to remove another piece of colon damaged by the radiation, and the other to remove adhesions which kept causing blockages. 18 years later still NED, very little change in lifestyle or diet.
Carl

Dyanclark's picture
Dyanclark
Posts: 245
Joined: Apr 2012

Your case is almost the same as my husbands. He is going in to have surgery to remove scaring from radiation. Very encouraging. He had been in total remission 3 years then started having problems about 9 months ago just finished 5 mons chemo scan normal, CEA at 4 and still doing Avastin but will have to take a break for surgery.

valley
Posts: 93
Joined: Jun 2007

MY HUSBAND WAS DIAGNOSED STAGE 3 RECTAL CANCER JAN. 2006. HE HAD CHEMO AND RADIATION FIRST FOLLOWED BY SURGERY AND 4 MORE MONTHS OF CHEMO. HE HAS BEEN NED SINCE. HOPE THIS HELPS !

KathiM's picture
KathiM
Posts: 7864
Joined: Aug 2005

November 27, 2004 was the rectal.

I was given 6 months to 'get my affairs in order'.

At 6 months, not only did I survive, but I was well enough to start treatment for the breast cancer that was found during a PET scan for the rectal...different type cancer.

I finished all treatment for both cancers 7/4/2006, except for Tamoxifen (breast cancer was hormone receptor positive) which I finished 12/12/2011...

I am well. And living an entirely different life. I live in America (So Calif) and The Netherlands (Holland). Switch every 3 months, because I am a US citizen and the EU won't allow visits of more than 90 days out of every 180 days. I am retired, and my beau and I travel in whichever continent we find ourselves in...

Dutch hugs, Kathi

taraHK
Posts: 1961
Joined: Aug 2003

ME! More than 9 years since my diagnosis. I've had some recurrences, I'm afraid -- but still alive and kicking and enjoying life

Good luck!

Tara

braelee2's picture
braelee2
Posts: 126
Joined: Sep 2010

Hi, I am 38, I was diagnosed August 2010 with stage 3, I went through surgery and had a foot of my colon removed, and 6 months of chemo. Now I am doing real good. No cancer but being monitored.(go for blood work and cat scan.) And so far so good. Feel real good.

Minnesotagirl
Posts: 141
Joined: Sep 2011

Thank you so very much for responding and so great to meet you. I was 49 when I was diagnosed...
I certainly appreciate your courage and wisdom and insight. Kind of scary stuff but I feel better when I see people, as yourselves, who are doing well and fighting back. So greatful for all of you here~

"Minnie"

plh4gail's picture
plh4gail
Posts: 1232
Joined: Oct 2010

Stage 3C rectal 6/12 lymph nodes...diagnosed June 2010. Radiation/chemo pump, resection with ileostomy then reversal, and 3 months Folfox, 3 months Folfiri. Ended treatment May 2011. NED now :)
There are some others that are 10 years NED! Makes my day to know that! Thank you for the post asking...its a good reminder.

plh4gail

Minnesotagirl
Posts: 141
Joined: Sep 2011

Hi,
So wonderful that you are NED:) I hope the "10 years NED" come out and introduce themselves once again...I need to be reminded of the good! Best wishes to you and thanks for responding.

"Minnie"

zirotra
Posts: 30
Joined: Dec 2011

Stage 3 with groin lymph nodes met. diagnosed Jan1-2011.
had neo-adjuvant chemo/radiation. surgery for permanent colostomy.
followed on by oxaliplatin and xeloda.. now trying to get a break from chemo
but CEA is slowly climbing back up to 5.8

Minnesotagirl
Posts: 141
Joined: Sep 2011

Zirotra,

I am so sorry that you are facing all of this at such a young age. Unbelieveable and to think you have also lost your mother. I am so very, very sorry. I see that you believe in God also from your bio...I will add you to my prayer list. I am hoping that the CEA is nothing but something definitely to take seriously`...take good care of yourself and make sure you ask lots of questions. Were you tested for Lynch Syndrome being you are so young or does your family have a cancer history? I am curious why they did not give you chemo prior to surgery? Well, enough questions from me...you can tell I am a mother at heart? I have three grown children and a 1 year old grandson.

Keep in touch...I want to make sure you are not alone on this journey. Prayers of healing to you Dear One and God Bless.

Minnesotagirl

zirotra
Posts: 30
Joined: Dec 2011

They did give me some chemo and radiation b4 surgery, they are unsure why i got cancer. they did test me for lynch syndrome and it was -ve . life throws curve balls at you and in my case all the curve balls came too fast, right after one another. currently i tried to switch treatment strategy from Xelox (nasty drug which worked) to CPT-11/Xeloda (it didnt work for me). Now i have to see if i should go onto clinical trials and or take xelox... best of luck to you also. will PM you for your treatment details

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

There is a group at colontalk that call themselves the Olymphians. All with lymph only involvement.

Two years later and it still seems to be limited to my lymph system. If the node gets bad be watchful for lymphedema. It did not strike me till year two, and seems to have been triggered by air travel, but it is probably the most debilitating thing I've suffered so far.

zirotra
Posts: 30
Joined: Dec 2011

Stage 3 with groin lymph nodes met. diagnosed Jan1-2011.
had neo-adjuvant chemo/radiation. surgery for permanent colostomy.
followed on by oxaliplatin and xeloda.. now trying to get a break from chemo
but CEA is slowly climbing back up to 5.8

zirotra
Posts: 30
Joined: Dec 2011

Stage 3 with groin lymph nodes met. diagnosed Jan1-2011.
had neo-adjuvant chemo/radiation. surgery for permanent colostomy.
followed on by oxaliplatin and xeloda.. now trying to get a break from chemo
but CEA is slowly climbing back up to 5.8

Age 29.

And sorry for multiple posts. Something wrong with the server and i don't know how to delete it.

mamalea333's picture
mamalea333
Posts: 27
Joined: Feb 2012

Thank you Minne for asking for these type of stories..we need to see these right now too...it gives us such hope..I am praying for you and for all I have seen here on this site. My husband is in the beginning of his fight ..today he will complete his first 2 weeks of 6 weeks of chemo/radiation. We count each step as a blessing and we know that God's hand is in this all the way...I have been envisioning the Savior with His Hand on my husband each time he goes in for radiation...It gives me peace to envision this..He is gently laying his hands on him and healing him...He is healing you too..and all those here who ask for His help. God bless you & stay strong in the fight!
mamalea

rlridings's picture
rlridings
Posts: 43
Joined: Nov 2011

stage 3 - diagnosed as stage 2 in Jan 09 - have had spread to liver with first surgery march '10 and then april '11 - one tumor showed up on check up this August - chemo has shrunk it w recent CT showing NED - surgery for clean up scheduled hopefully for april - making progress and very hopeful

khl8
Posts: 809
Joined: Nov 2009

Stage 3 diagnosed 11/2008, Xeloda and radaition, resection,9 rounds of Folfox,temporary illeostomy, reversal of Ileostomy, hernia repair from resection surgical site, currently cancer free, clear colonoscopies and see the oncologist for blood work and monitoring every 6 months so far.

Kathy

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

It is so good to see these posts! I was dx Spring 2009, Stage 3 rectal cancer and am doing just fine right now.

Moesimo's picture
Moesimo
Posts: 1075
Joined: Aug 2003

diagnosed 3/17/2003. NED Wow almost 9 years ago. Where did the time go.

Maureen

need support
Posts: 40
Joined: Feb 2012

6 months of chemo and no radiation, tough choice surgeon and oncology doctor wouldn't agree but I went with my surgeon's advice with no radiation. So far so good. Just 1 question how long does this numbness of the hands and feet last. I feel like i could stick a pin in my foot and not feel it. chuck

Minnesotagirl
Posts: 141
Joined: Sep 2011

Thanks to everyone who took the time to respond ~ you are all great and inspiring too. I am so scared ~ just can't quite get over this daily fear thing. I lift it to the Lord everyday and night...but always lurking in my thoughts throughout the day. I think what I most struggle with is thinking about the future...beyond 1 year. I have a tough time when my husband asks me "where should we be 3-4 years from now", I just seem to freeze and usually get a tear in my eye of wondering what my response should be~

I pray we will all still be corresponding together 5 - 10 -15 years from now!!!

Oh "Need Support" ~ numbness in your hands and feet can last for up to 1 year from treatment or forever...I am still dealing with it in my ankles, feet, toes, hands...about 9 months out now from last treatment ~ be careful so you don't fall or burn yourself taking a shower/bath...been there and done that~ I take Vitamin B6 but I don't think it helps. I also did swimming prior to hip fracture and I think that kept blood flow going but hard to swim when you don't feel your ankles or feet ~ but it can be done! Good luck to you and I hope yours leaves quickly...

Thanks again everyone, ~"Minnie"

Lovekitties's picture
Lovekitties
Posts: 2878
Joined: Jan 2010

Plan for a long future and have answers prepared for when hubby asks about years out from now.

After all, no one knows what tomorrow will bring so might as well make those plans!

Hugs,

Marie who loves kitties

KathiM's picture
KathiM
Posts: 7864
Joined: Aug 2005

Who knows what the future is....

One of my favs:

"Life is a journey, not a destination".

Who really should care about the future, unless it's about financial stuff or your kid's well being?

(If you look at my pic....I never imagined I would be skating on a piece of frozen canal in a far off land....but I did and I enjoy every experience to the hilt...file it away in my head for memories when I'm old and grey...*smile*).

Dutch knuffels, Kathi

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

HI, dx feb 2009 stage 3 rectal, chemo, radiation, suregery, ostomy takedown, bowel obstruction needing emergency surgery on last day of chemo jan 13,2010.. NED since... I lurk alot on here, but dont write much anymore..

plh4gail's picture
plh4gail
Posts: 1232
Joined: Oct 2010

Minnie...honestly I have a tough time with the future question my self. But I pretty much try to keep it to myself. For my kids I tell them a long time so lets plan for great vacations. The month after I finished chemo my 12 yr old son asked me what if it comes back and without taking a second to take a breath I said then I'll do it again. And that satisfied him. And for now that is what I want. My family to be comfortable enough to not worry about me not being here. I'm still new here in the cancer world, so I hope that the longer I play the part of a survivor that it will become habit and I will too believe it. It's what I want and reach for. I still follow Emily and Scouty's paths (the best I can as I'm a work in progress) but I sure hope I never have the delima again of to chemo or not to chemo.

Cheers to a long future, with a glass of veggie juice!

gail

RobinKaye
Posts: 93
Joined: Nov 2011

Check out this thread: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=10574 at the Colon Club, it's over two years old and filled with Stage 3 and NED.

LOUSWIFT
Posts: 359
Joined: Aug 2006

2006 stage 3 rectal cancer - radiation- chemo- surgery - chemo - NED 2006
2008 Stage 3 colon cancer with three lcalized nodes involved - surgery - chemo NED 2010
chemo induced cirrhosis from Folfox so I will likely die of cirrhosis but still NED tests in August 2012 to see if cancer has returned and how the cirrohosis is doing. Race is on to see which will kill me first. Best of luck Lou

steved
Posts: 836
Joined: Apr 2004

Was stage 3 at resection in 2004 (age 31) and had 7 years clear. Now dealing with recurrence in pelvis probably with radical surgery of hemipelvectomy and exenteration combined (linba nd pelcvic organs being removed). Not a great outcome but did get 7 good years in the interim and hoping to get many more in the future.
steve

YoVita's picture
YoVita
Posts: 539
Joined: Mar 2010

Diagnosized stage 3 rectal in February 2010. One lung nodule identified with ctscan in June 2012. Dealing with it. So - 2+ years NED. Hoping for good news for us all.

Helen321's picture
Helen321
Posts: 715
Joined: May 2012

I'm still in the ratrace with you but then I just finished round two of chemo. First resection was a flop. Went to stage 3 by the time I had my surgery checkup so now I'm doing xeloda, 7 on, 7 off and 5FU 8 rounds. Then it'll be chemo/rad 6 weeks. Then surgery one to remove rectum, then two to reverse ileostomy and then I'll be NED=) So please ask this question again next year! lol Because I plan to answer, ME!!! ME!!!

Minnesotagirl
Posts: 141
Joined: Sep 2011

Hi Everyone,

I was so surprised to see this old thread of mine resurface again. Thanks for the correspondence everyone! I pray for those of you who are still in this battle. I am having my next 6 month scan this week...really nervous about it. I try to stay positive but the fear is real and a bit overwhelming currently. I know you all can relate. I am concerned about a small bean size lump in my abdomen area...I can't help but worry about lymph node involvement again. Crazy but I hope it may just be the start of a hernia...

My prayers to those of you who lost your Stage 3 diagnosis and moved on to Stage 4. I cannot imagine how difficult that journey and news must be to hear and live with. I wish you all blessings and healing prayers from Minnesota.

"Minnesotagirl or Minnie"

Coppercent
Posts: 142
Joined: Jan 2012

I am only one year out from diagnosis but I am currently in remission after a challenging year. I had chemo/radiation then had my surgery. In the past year I have had 4 surgeries and a couple rounds of different chemos. I finished my last round of chemo in the beginning of June. I am currently in remission and will have my three month check up in September. It is so great reading all of the great success stories. Thanks for making the new post and asking the question. It is always nice to read the good stories!

RickMurtagh's picture
RickMurtagh
Posts: 529
Joined: Feb 2010

it has been so long i forget my exact dx (ok maybe chemo brain) - my dx was march of 2008, but it was stage 3 and i have no colon. pretty happy. life is good. who knew pooping in a bag could be so okay.

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