Feb 23, 2012 - 9:28 am
Our hearts broke yesterday...
My husband (age 48) was dx with stage 3B NSLC 2/11. He had radiation and chemo (etopocide + cisplatin) and was NED until this last scan on 2/21/12. He has activity in lymph nodes again, but no signs of metastisis and there's no tumor except the scar tissue, which is not lighting up on the PET.
We're devastated in that the focus moves from cure to management. He's EGFR positive and a good candidate for Tarceva, but he's struggling with this whole idea of being constantly under medical care and patching together a variety of treatments to keep going. He's not giving up--kind of the opposite--he looks and feels great and is skiing and hiking and having a hard time wrapping his head around the fact that he would have constant side effects to keep going.
I hope he goes for the Tarceva, but maybe I'm being selfish. I want him around for as long as possible.
ps: He did tell the oncologist about his cold, which he'd recovered from over a week ago, and the oncologist felt it would be fine to proceed. He doesn't attribute this lymph node activity to anything but cancer and was willing to biopsy it to double check, but we said no since our doc is one of the rock stars in lung cancer research and treatment, we trusted his take.