Feb 21, 2012 - 6:48 pm
Hi everyone. I'm a divorced 56 year old heterosexual woman and had this irritating condition between my buttocks for about three years before it was diagnosed by my OBGYN.
Approximately 20 years ago, I had a partial hysterectomy (they left my ovaries) due to HPV and Level III dysplasia. Until now, I haven't had any further problems although my doctors have told me that I've probably had the HPV dormant in my system for many years.
I don't know if this is actually anal cancer and if it's not and I'm in the wrong place, please tell me. I know it's not colorectal cancer - that's been confirmed.
I've read a lot of information that's out there on the internet about carcinoma in situ and I have been trying to educate myself about the disease and the procedure.
I understand the surgery I'm going to have this week will include - along with the excision - a total of twelve biopsies both externally and inside my anus to make sure the cancer hasn't spread.
What's confusing to me is that my colorectal specialist tells me I don't have cancer, but yet he is doing the biopsies to make sure "it" hasn't spread. He told me the term "carcinoma in situ" is a misnomer and that it's actually just a high level dysplasia.
Naturally, I'd rather have a high level dysplasia than actual cancer - who wouldn't - but this doctor just seems to be giving me a song and dance. Maybe he won't really know the true level until he does the excision and biopsies. He's difficult to talk with and is very matter of fact about the whole thing.
On the one hand he tells me that the post-surgical treatment is extremely important: sitz baths, cleanliness, rest, etc. On the other hand, he tells me I should be up and about and ready to perform my usual activities within two weeks. Then, on the other hand he tells me that because this is an open excision - there will be no sutures, graft or flap - it will take two or three months to heal. But in the meantime, I can put a gauze pad in place and pretty much go my merry way with no worries about infection. In the rectal area?? Really??
Does anyone out there have any personal experience with this type of thing? Any input, experience, advice or help would be greatly appreciated. I'm so nervous about this whole thing and at the time I terribly embarrassed.
Thanks for any help and support you can give.