Feb 17, 2012 - 6:35 pm
Am a bit baffled.
For nearly a year, my onc has said nothing to me about CA125. I always checked my blood test results and it looked as if they didn't always test for it. When they did (4-5 times), it was always less than 15.
Since finishing all treatment in late August, NOBODY at my center has kept an eye on my blood counts--even after I needed two transfusions near the end of treatment.
It was I who had to ask if I shouldn't still be having a blood test every three months or so.
THe answer was "No, we don't check your blood routinely anymore; you can do that at your internist's ofice. "
Yet after I made this inquiry, I got a call yesterday from my onc's assistant saying, "Yes, we'd like to check your CA125 every three months."
When I protested that my onc, during my 3-month checkup with her in November, had never even mentioned this, the assistant said, "I just checked with her now and we think it might be a good idea; besides, it can't hurt."
So I'd like to know how many of you have an onc who vigilantly watches your CA125. I had always heard it was NOT a reliable marker for carcinosarcoma.
As for the claim that it "can't hurt to check it," I beg to disagree. It subjects us to worry and tension four times a year that might be unnecessary.
Would like your opinions.