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What was your age at diagnosis?

tmpage1273's picture
tmpage1273
Posts: 93
Joined: Feb 2012

What was your age at diagnosis?

AND

If you're done with treatment, how long have you been in remission?

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Not to change the topic, but Sandy - LOVE your picture!

lil lady
Posts: 36
Joined: May 2009

I was 69 at diagnosis it will be 3 year post treatment in July

MattButts's picture
MattButts
Posts: 34
Joined: Mar 2012

I guess this is as good a place as any to introduce myself. My name is Matt, and I just joined CSN this morning. I received my cancer diagnosis last week at the age of 51 years. It was a blow, but I'm going to stand up, brush myself off and keep going. I have always lived by the immortal words of Nietzsche: "That which does not kill me makes me stronger." I see no reason to stop now.

So far the only treatment I have received has been surgical excision, and my doctors are optimistic that I won't need radiation or chemo.

sephie's picture
sephie
Posts: 523
Joined: Apr 2009

sorry u are here but so wonderful to not have to do radiation and chemo. was yours insitu or stage 1??? thx sephie

mp327's picture
mp327
Posts: 2892
Joined: Jan 2010

I always hate to see newbies here--one more person with this crappy diagnosis. However, if you can be rid of this with total excision only, that's great. I wish you all the best and hope you'll keep us posted on how things are going.

MattButts's picture
MattButts
Posts: 34
Joined: Mar 2012

Thank you all for the warm welcome. I believe that the most effective treatment for any disease is to keep a sense of humor about you and surround yourself with friends. I am blessed with a very strong support network.

I know what you mean about hating to welcome newbies. As a person with AIDS as well, I am active in a local group called The Aliveness Project where I've also been able to connect with others who have been diagnosed with the same cancer I have. There, too, I hate welcoming new members.

Nobody has really talked about "staging" with me yet, though I suspect the answer will be Stage I or in situ, since they're not talking radiation and/or chemo yet. As I learn more I hope to be able to use CSN as a resource to learn more.

Thanks again for the warm welcome. I feel I am truly among friends.

Matt

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Hi and welcome to the group. Like everyone, I'm sorry you have to be here - but it's nice to meet you.
Have to ask - that's not your real last name, right? Just kidding - with us, our butts are the focus of a lot of attention.
Now this is a funny kind of congratulations, but congratulations on not needing radiation or chemo. I'm glad that it was found prior to being a stage where you need the radiation and chemo - there are so many side effects you won't need to deal with. And I imagine having AIDS as well, you've know your share of doctors, treatments, and all that goes with them.
Again, welcome and I wish you good health and happiness always.
Rose

MattButts's picture
MattButts
Posts: 34
Joined: Mar 2012

And you can imagine I was teased incessantly as a child.

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

Yes, I'll bet you WERE teased a lot. Kids just love to tease each other. I think it's a fine name.

tmpage1273's picture
tmpage1273
Posts: 93
Joined: Feb 2012

My name is Toni and I've been told my whole life it is a 'boy' name. Last time I checked, I'm not one of those.

I'm sure I wasn't picked on near as much as you, but I do empathize.

Take care!

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

Hi everyone. Age 53 here. This past Friday I was getting ready to have a thrombosed blood clot removed and the doctor got in there and saw some things that told him that was not what it was. He is 99% sure it is anal cancer and should have the biopsies back this coming week. I have an appt. with him on Thur. to discuss chemo and radiation for it. A bit scared, but keeping a positive outlook that I shall overcome this too. Glad I found this group. I don't know anyone else who has had this and will be nice to come here and found out what I am in for and also to celebrate with you all when I get done with treatment.
Thanks for you time.

tmpage1273's picture
tmpage1273
Posts: 93
Joined: Feb 2012

Will be lifting you up in prayer that the doctor's fears are wrong.

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

Thank you so much!

mohoper's picture
mohoper
Posts: 19
Joined: Mar 2012

Really do hate welcoming new people here. This cancer is indeed a pain in the butt. Yes, a sense of humor helped get me thru; helps get a lot of us thru. MattButts, I hope they caught this early enough to avoid chemo/radiation, & Pattie13, I pray the docs don't find it to be cancer. BUT there are enough people here to help answer questions, & guide you if need be. Thinking of ya'll with positive thoughts, & healing energy.

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

Thanks so much Mohoper. I am praying too, but he seemed pretty certain. I will come back on Thur. afternoon and let you all know the results. Thinking and praying for all of you for continued healing.

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

I did get a call from my doctor and he got the biopsy back and confirmed that it is indeed anal cancer.... (big breath) So, now I just have to meet with him on Thurs and we will go over my plan of attack for kicking this thing in the butt. Going to stay positive here. Will let you all know what he says on Thur.

mp327's picture
mp327
Posts: 2892
Joined: Jan 2010

I'm very sorry that you have gotten this diagnosis, but keep in mind that the treatment has a high success rate. I'm glad you are meeting with the doctor so quickly and hopefully, things will get underway very soon with your treatment. Please keep us posted. We are all here for you!

tmpage1273's picture
tmpage1273
Posts: 93
Joined: Feb 2012

Still praying. Keep us posted.

dasspears
Posts: 233
Joined: Feb 2009

Sorry it took me so long!!

RoseC's picture
RoseC
Posts: 503
Joined: Jun 2011

You'll be all right. You've got a few rough months ahead of you, but you'll be all right. Stay with us - we'll help you get through it. You're with friends.

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

Thank you all so much. You have no idea (then again, I think you do) how much this means to me to have someplace to go where people have been through this and are so willing to help others through it. I will be keeping a positive attitude through this. After all I think they say you can do just about anything for a short time. And this will be a short time, as far as I am concerned. Just a 5-6 wk period out of my life to be cancer free. Or at least I think that is what it will be. Will keep you posted on what my doctor tells me Thur. afternoon. Thanks again! Hugs and prayers for you all.

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

Thank you all so much. You have no idea (then again, I think you do) how much this means to me to have someplace to go where people have been through this and are so willing to help others through it. I will be keeping a positive attitude through this. After all I think they say you can do just about anything for a short time. And this will be a short time, as far as I am concerned. Just a 5-6 wk period out of my life to be cancer free. Or at least I think that is what it will be. Will keep you posted on what my doctor tells me Thur. afternoon. Thanks again! Hugs and prayers for you all.

lizdeli's picture
lizdeli
Posts: 521
Joined: Jul 2009

Like everyone else, I am sorry you have to be here, but grateful that you found this forum
Many of us didn't have a forum to go to when we were first diagonosed. But then a wonderful woman named Joanne began this forum and what an incredible blessing it has been for us.

We will help you through this. It's not an easy road by any means, but it is a curable form of cancer and that cannot be said for many kinds of cancer. The treatment period is comparatively short but challenging.

Wishing you both the best, most of all strength and healing.

Hugs,
Liz

Captain11
Posts: 88
Joined: Apr 2011

Sorry to have any newcomers to this nasty disease... But, you will find tons of love and support from all of us here. I was 58 when diagnosed in June 2009. I am currently 2 years NED. Pattie, Matt, remember to keep a positive attitude and to laugh. As you read through these posts you will find so many scenarios about who gets what side effects, etc. We have all been through this. We will offer our stories and experiences as a means for you to cope with your own situations. Keep us posted with your progress. While I am glad for myself, and that I will hopefully continue to get good reports, my husband's cancer has returned. He was diagnosed in June 2008 with esophogeal cancer. He only had surgery, which took out about 8 inches of his esophagus and about a third of his stomach... then connected the remaining portions together, so that his stomach is now behind his lungs. He had many complications from the surgery. He was in intensive care from September 2008 to December 2008 and then in isolation with MRSA until the end of January 2009. His February 2012 scan showed multiple activity throughout his body... so far, after several PET and CAT scans, they still cannot locate the source of the cancer.... possibly, the bones so more scans and biopsies are needed. At this point surgery is not a good option for him... just chemo. Sorry to ramble on... but, this is the place to vent, ask questions, and receive loads of support.
I wish both of you good health and an easy journey through the treatments. Keep the faith and God Bless.

Pattie13's picture
Pattie13
Posts: 47
Joined: Mar 2012

Thank you for the warm welcome Captain11. I did see my Dr. yesterday and we talked a bit, but he was not able to give me too many answers because I need to ask the oncologist those questions. But he did answer any questions he could. I did find out the reason that I have been in such pain is that the cancer is laying right on top of my muscle down there so that is where the pain is coming in. After my Dr. appt with the VA I had a call waiting at home from the oncologist so I called back and have an appt. Mon afternoon to see him. Want to get this thing started and over with as soon as possible. I did find out that the VA works hand in hand with University Medical Center here in Tucson and thats where I will have my radiation.
Captain11 I will be praying for your continued success and for your husbands health to improve and I hope they can find the source and nip it in the bud.
I suppose I should start a thread for myself and my process/progress instead of keeping posting on this one. I thank you all for your suggestions, love and support.
Hugs
Pattie

dasspears
Posts: 233
Joined: Feb 2009

I just had my CT scan and I'm still clear and in my 5th year. The doctor said that statistically, I'm cured! But I will continue to be vigilant with my health. All the best to you - keep coming back to this site with questions and concerns - it's a great support group. You'll learn the little tricks that the medical staff may not know to tell you.

z's picture
z
Posts: 1250
Joined: May 2009

Great News! I wish you continued great news! Lori

AZANNIE
Posts: 386
Joined: Mar 2011

Congrats on your great news!

csimmons-taylor's picture
csimmons-taylor
Posts: 1
Joined: Apr 2012

46 Years old in 2003...remission for 4 years, second occurance in 2007, remission 5 years this August!

mp327's picture
mp327
Posts: 2892
Joined: Jan 2010

Thanks for coming here and telling us about your remissions. I hope you are doing well! I am curious to know what type of treatment you received for the initial diagnosis and then for the recurrence, if you wouldn't mind sharing. Thanks!

bgman1022
Posts: 7
Joined: Apr 2012

Diagnosed 03/28/12 63 1/2 years old. Begin treatment this comming Mon. 04/16

mp327's picture
mp327
Posts: 2892
Joined: Jan 2010

I'm sorry to hear of your diagnosis. This is a good place to be for support and I'm glad you found us.

danker
Posts: 736
Joined: Apr 2012

77 Two years next month

danker
Posts: 736
Joined: Apr 2012

you are all a bunch of kids so have 20 years or more ahead of you. I would like about 10 mor!

danker
Posts: 736
Joined: Apr 2012

you are all a bunch of kids so have 20 years or more ahead of you. I would like about 10 mor!

radarbaby
Posts: 8
Joined: Jul 2009

It was rough, but I am so happy to be alive!

AZANNIE
Posts: 386
Joined: Mar 2011

Congrats on being 8 years CA free!!!

Ann

Ann_i_
Posts: 47
Joined: Oct 2011

Diagnosed in January of 2011 at 44. (for some odd reason I thought 45, but did the math and as I am currently 45, well, I couldn't exactly have been diagnosed over a year ago and still be the same age.) Besides if there was an age I'd want to freeze at, it wouldn't be 45. lol

Finished treatments April 12, 2011. (One year out now and everything so far has come back with no cancer evident.)

Missgrace's picture
Missgrace
Posts: 36
Joined: Apr 2012

Hi. I'm new here, but thought I'd chime in on the age question. I was diagnosed last week at the age of 64.

Missgrace's picture
Missgrace
Posts: 36
Joined: Apr 2012

Hi. I'm new here, but thought I'd chime in on the age question. I was diagnosed last week at the age of 64.

Marckie
Posts: 2
Joined: Apr 2012

Sorry to hear about your diagnosis, but at least now you know and it won't be silently growing.

I remember freaking out the first week. Even had to stop coffee because I was too wired.
Then after that, just got used to the idea and dealt with it.

Hope you are ok emotionally. It's good that you found this forum.

Best, Marckie

Marckie
Posts: 2
Joined: Apr 2012

I finished treatment 2/16/11.

CRMan
Posts: 9
Joined: Apr 2011

Last day of radiation was Oct 20th 2010, one of the happiest days of my life walking away from that radiation machine and hoping never to see her again. 2 weeks ago I had colonoscopy, CAT scan and blood work and 100% cancer free! Still dealing with a fissure from the radiation and a few other side effects but with time they should go away.

Cheyenne's picture
Cheyenne
Posts: 72
Joined: Apr 2012

I'm 59 and was told of my diagnosis on March 29th. It was discovered during a routine colonoscopy on March 9th. The oncologist I was sent to spent most of the consultation trying to convince me that I had to be HIV. I fired him and now have a team that truly understands this particular cancer. I had the lesion excised on April 10th. I am Stage I, Grade 2. I was hoping to start the five weeks of chemo/radiation today but got put off by the surgeon who wants the excision to heal more. I see her tomorrow and hope to get the OK to start treatment on Monday, May 7th. I appreciate finding this site and know that every case is different but reading through the threads I certainly appreciate the advice from those who have gone before me.

mp327's picture
mp327
Posts: 2892
Joined: Jan 2010

Sorry you have a reason to join us here, but glad you are finding good info and support on this site. The experience you had with that first doctor is unfortunate--there are a lot of doctors who are uninformed when it comes to anal cancer. I'm glad you are now in good hands and I hope you'll be able to get underway with the treatment on the 7th. Please let us know how it goes and come here if you have any questions that we can answer. We've all been there, done that, so there's lots of wisdom here. I wish you all the best.

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