CSN Login
Members Online: 4

New melanoma victim...

Shawna1972
Posts: 1
Joined: Feb 2012

For anyone out there who has experience with this battle, I would love to discuss what may be upcoming for me. I went for what I thought was a cosmetic procedure and a couple of weeks later, walked out with a lab report stating 'very worrisome for malignant melanoma'. I live in Iowa and my primary care Dr. is sending me to the University of Iowa Hospitals & Clinics to see a hematologist/oncologist for an initial consult. What can I expect of this visit? So far all I know is my punch biopsy did not have any clear margins, so I expect to at least have another excision and re-test. I can't really read my lab report...what is low mitotic index, is this good? Does this mean the cells aren't dividing rapidly? Any insight into this new process I will be going through would be much appreciated!

dearfoam's picture
dearfoam
Posts: 82
Joined: Apr 2011

I hope that you have found some answers by now, but I haven't been on in a while. I found there are a lot of very informed and helpful people at the Melanoma.org message board - so many people who do understand the lab reports etc, and are quick to reply!

http://www.melanoma.org/community/mpip-melanoma-patients-information-page

Best to you,
DF

Sheenah
Posts: 1
Joined: Feb 2012

Hi Shawna1972,

I was diagnosed about a year and a half ago. At first I was kind of freaked out, not really as scared as stunned. I have a lot of friends with all different kinds of cancer, but from a mole, really? Sounds so unlikely.

So three surgeries later, they cut the initial mole off my right arm and tested it, staged it as II, but then they found a node that looked suspicious. They re-excised the original site and checked the nodes. Became Stage III. They took all the Axillary nodes on the right side.

The good news (I think) is that so far I seem to be fine. It has been a year and a half and my last PET Scan showed as clear of Melanoma. I do not know what or how I am supposed to feel either, but I do not really feel all that bad. My Oncologist originally said I had a 70% chance of it returning, but now I am at 50/50, so I'll take that. I have heard a lot of scary stuff related to melanoma, but lately it seems like I am hearing more and more success stories, so I guess I am not going to worry about it (hahaha liar!)

Hang in there, I will keep you in my prayers too.
Sheenah

melanoma-2007
Posts: 2
Joined: Mar 2012

You can see my treatment choice and experience on my profile, but let me know if you want to talk to me by phone. I will be happy to tell you all about it and how we dealt with it.

melanoma-2007
Posts: 2
Joined: Mar 2012

You can see my treatment choice and experience on my profile, but let me know if you want to talk to me by phone. I will be happy to tell you all about it and how we dealt with it.

luvinsmile
Posts: 4
Joined: Mar 2012

I was diagnosed with a black mole on my back in may of 2008. I had the mole and surrounding tissue removed, along with 2 lymph nodes under each armpit. The biopsy from the nodes showed cancer in 1 from the left side. They removed the rest of my lymph nodes from the left side, of which only 1 showed cancer. I went through 5 times a week for 30 days of IV Interferon (they had inserted an infusion port in my upper right arm) at the hospital. I then was put on Interferon injections 3 times a week at home for 13 months. My husband was pretty good at giving me my shots.
I would feel pretty crappy the day after the shot, I would have a hard time eating certain foods or eating at all, sometimes I would be lucky to get 300 calories in me. I threw up once in a while. My hair fell out, about 1/3 of it anyway. It was a really rough 14 month ride, but in the end, I have been cancer free for the last 3 years.
I wish you luck, stay stong and posative, lean on your family and friends, they will help you through this. Take care, I will check back for any replies in the next few days if you like. : )

peterpeter857
Posts: 1
Joined: Apr 2012

Take a deep breath! It sounds like you are in good shape right now, so I wouldn't worry excessively. If you have questions about your lab report, make sure that you talk extensively with the doctor at the University of Iowa Hospitals & Clinics to clear up everything. You will probably have to have the excision, but it is not that intrusive, so all should go well with a good surgeon and hospital.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network