Feb 14, 2012 - 11:55 pm
I was diagnosed back in October 2011 after an unplanned laparoscopic hysterectomy. After staging surgery I was pronounced 1A and my gyn onc at the time said I needed no further treatment, but given the morcellation of the tumor during the hysterectomy he'd understand if I wanted to do 3 rounds of chemo.
His attitude and recommendation were so wishy-washy that I sought out other opinions - from these boards, from a researcher at NIH, online searches - which led me to question the wisdom of the recommendation. I switched to the senior gyn onc in the practice, and when the 3 rounds of carbo/taxol were complete he recommended radiation and 3 additional rounds of chemo. He also said if I skipped radiation he'd still want me to do the additional chemo.
I met with a radiation oncologist who is recommending external treatment - 25 treatments plus 3 external vaginal boosts. This would zap the abdominopelvic area and kill any cancer cells that may exist but not show up on a CT scan.
Both the 2nd gyn onc and the radiation onc gave me similar prognoses: given the tumor morcellation, if I did nothing more than the 3 chemo rounds I've already had, my chances of recurrence are 65%. If I proceed with the external radiation, the chances of recurrence drop to 50%. If I skip the radiation but do the 3 additional rounds of chemo, the chances drop to 30%. If I do both the radiation and the additional chemo my chance of recurrence falls to 15%.
For all I know these numbers are pulled out of thin air. But as someone said in another discussion thread "we are our own advocates" and I'm glad I'd done enough digging around to question the first recommendation.
When you were given your treatment reco, were you given odds of recurrence broken down by treatment?
Liz in Dallas, starting radiation on Monday