First I want to say thanks for all the prayers....its so appriciated.
The surgery went well, all the cancer is gone. Yes I know it can come back anytime but for now its gone. It was a kind of a rough time in the hospital. My nurses were awesome but was just in so much pain. Then trying to adjust to the stoma & all that goes along with it. Three days after surgery I developed a bad infection where they sewed up my bottom. So that turned into 2 days of humiliation with having daily showers being sprayed by the nurse (to clean out the wound) then packing the wound with changes every 6 hrs. I don't think some realize what we go thru with this type of cancer. How we loose all modesty, the many drs looking at our butts...we are exposed for all! One day my nurse had to leave early so she asked another to take over. I overheard this nurse say to the effect of 'yea I want a douch up the butt then a tampon!' & 'I don't have time to do someone else's work!'!! Well why did she agree to do it then?! When she came to the room I told her my nt nurse will take care of (she'd done it without complaint the nt before). But she was determined to do it so I made sure she knew how embarrassing this was & how upsetting this whole 'cancer mess' has been.
So anyway got home Mon. & feels so good! My hubby is a great care giver....he does my packing 2 times/day for me (this will continue till wound closes) & can help with my ostomy things if needed. I have a home nurse 1-2 times/wk for a few wks to help adjust. There's so much to learn having an ostomy but so far its not going too bad. Just a huge adjustment having this bag, trying to not be 'paranoid' about leaks, making sure things stay clean & sterile. But it'll all come with time & practice.