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any other stage 4 stomach cancer people out there doing ok?

have2believe
Posts: 135
Joined: Dec 2010

My mom was diagnosed w/ stage 4 stomach cancer and she has been doing well. She actually does not have any debilitating pain and knock on wood, no major symptoms, aside from when she's on chemo.

Anyone else out there?

nwpassage
Posts: 1
Joined: Feb 2012

I was diagnosed in June/July 2011 with stage IV stomach cancer, spread to my lymph, my omentum, and along the outsides of my bowels. I was only 32 (am 33 now). My only symptom was a long history of a "sensitive stomach" and then I got a horrible pain in my left side that led to my diagnosis. Since then I have done 11 rounds of chemo. For the most part I have been symptom free, other then as you say the symptoms from chemo themselves. A few weeks ago I did develop pain ascites (liquid buildup in the abdomen) but have had that drained & am back off any pain meds at the moment. Keep your spirits up, this is a horrible disease but it sounds like you mom is doing good at the moment & it's best to focus on that.

I detail a lot of my experience on my blog: http://hollymariehill.blogspot.com

have2believe
Posts: 135
Joined: Dec 2010

I looked at your blog briefly, but I have bookmarked it and will definitely take the time to read about your experiences. I've been meaning to start a blog and still plan intend to esp now since blogspot allows you to date the posts..just need to go through my journal and such. My mom gets scanned on Feb 20 so just keeping fingers crossed that it'll be good news. Definitely keeping spirits up is good, and I know atleast 5 stage 4 people who have been doing well - 3 who've had liver mets (1 currently has no active cancer/ remission fighting for 4 yrs, 1 off treatment at the moment- depends on scan- fighting for 4yrs, 1 diagnosed stage 4 in 09 and achieved remission and did surgery. TWO with distant lymph mets - one in lungs and lymph- diagnosed in 08 but has been in remission since 10 i believe, and one who was diagnosed with lymph and abdomen metsand achieved remission and went ahead and did surgery not too long ago-- he is also very young- mid 30s.

Here's to hope!

Cpnqueen
Posts: 29
Joined: Nov 2011

Here is another one for you. My husband, mid 40's has stage 4 stomach with bone as secondary and lymph mets. He was diagnosed 10/2011, has had 6 rounds of chemo and has done very well. Has not had to take pain meds in over 2 months! Our issue now is they can not do anymore of the type of chemo they were doing so we have to change things up. Hoping things stay on the good side! Hope your mom's scan comes back with good news!

have2believe
Posts: 135
Joined: Dec 2010

actually, my mom told me that when she gets hungry or she's eaten too much, her stomach hurts but it is a fleeting pain and goes away. I am hoping it's the after effects of chemo. treatments take such an emotional toll.
Best of luck with the new course of action. having options is good.

mslayd02
Posts: 9
Joined: Feb 2012

have2believe, that was the only symptom my husband has had. Matter of fact that was the reason he ended up going to see the doctor and getting diagnosed.

nsmyth
Posts: 2
Joined: Nov 2012

My dad is 53 and has just been diagnosed with stage 4 stomach cancer that has also spread to his liver, lymph and the soft bone tissue in his hip. The diagnoses is so new treatment hasnt even started yet, and his is to weak to withstand chemo so its just radiation until hopefully the stomach tumor wwhich is blocking part of his esophogus shrinks and he can resume eating and get stronger. Its nice to hear that your husband is responding well, it restores some lost hope :)

Cpnqueen
Posts: 29
Joined: Nov 2011

Here is another one for you. My husband, mid 40's has stage 4 stomach with bone as secondary and lymph mets. He was diagnosed 10/2011, has had 6 rounds of chemo and has done very well. Has not had to take pain meds in over 2 months! Our issue now is they can not do anymore of the type of chemo they were doing so we have to change things up. Hoping things stay on the good side! Hope your mom's scan comes back with good news!

ambermaree36
Posts: 3
Joined: Mar 2012

Just a not to let you know that I had stage 4 stomach cancer ....I'm now in my 5th year and you know what ??? no sign of cancer.... It can be done !!!.... It is a bloody hard road as I'm sure you know but there are survivours....I know this because Iam one of them... I was 33 when I was diagnosed... I still take oral chemo everyday to keep it away but it is a small price to pay.... Sending you good wishes from Australia...xxx

mslayd02
Posts: 9
Joined: Feb 2012

ambermaree36, I would love to hear more of your story, if you dont mind sharing. For example what type of treatment you were on? Did you do any type of natural treatment? My Husband was just diagnosed with stage 4 stomach cancer and has mets on his liver. Thanks in advance.

Godheals
Posts: 6
Joined: Jul 2012

Good morning Amber,
I read your post, amazing!!! Praise God. My friend has been diagnosed with stage 4 stomach cancer Jan 2012, he has undergone 7 chemo sessions. He has lost almost 30kg. We are praying and believing. I desperately need any advice for them, please. I am also trying to find out any information regarding surgery. I pray and hope you are well. Blessings

Brun
Posts: 1
Joined: Nov 2012

Hi holly
A friend of mine has stomach cancer stage 4, just like to ask have you changed your diet, do you ever check your body ph level and keep it controlled, what can he do to help either by eating or by exercising. I had lymphoma finished treatment in July 2012, all went well so far, I drank bi carb of soda much to everyone's disgust, I'm back doing an intense exercise program 2x per week which helps neopathy nerve damage, from chemotherapy, can you suggest anything else for him, he is a real gentle giant and I am worried about his future cheers and good luck to you god bless Bruno

Hillarjr's picture
Hillarjr
Posts: 5
Joined: Nov 2012

I am now two years out from gastrectomy, radiation and oxaliplatin infusions. I am still on every three week Herceptin infusions and oral Xeloda two out of three weeks. My main problems have been fatigue (for this, I have had to adjust my work schedule to 8 or fewer hours a day and give myself at least a half hour to rest in the evenings), nausea (prescription Zofran works well when nothing else does, but Altoids work surprisingly well, as does mint tea. Regularly scheduled small meals, including lots of fruit have kept me, well, regular), peripheral neuropathy (I have not yet figured out what to do about this yet. Do you have some ideas about it?) and, last but not least, chemobrain (I have just admitted to myself that I have it. Other than writing a lot of stuff down, I have not figured out yet what to do about. Will be starting a physical conditioning program next week, hoping that will help with the mental, as well). Congratulations on having knocked out a lymphoma!

Ara1
Posts: 4
Joined: Mar 2014

I have a question,

I was diagnosed with Stage 2 cancer. Seven months later elevetated to stage 4. The surgeon performed laparoscopic surgery to remove half my stomach but he found two small cancer spots on each side of my peritoneum. now suggested if the odds are with me full stomach removal. I am not sold yet on the Idea of full gastrectomy. Did you have partial or full removal?

shanhetao
Posts: 2
Joined: Nov 2012

Hello amermaree36,
I would also love to hear more of your story, if you don't mind sharing. For example what type of treatment you were on? Did you do any type of natural treatment? what kind of diet you are on. I am young and just diagnosed with stage 4 stomach cancer. If you can provide any information,that will be really appreciated.

Azirov
Posts: 1
Joined: Jul 2013

I'm so happy that you were able to survive the cancer! I also would like to know more about how you fought it. My father has stage 4 stomach cancer and we are looking for treatments.

czysaguirre
Posts: 2
Joined: Dec 2013

Hello,

  My wife has been diagnosed with stage 4 stomach cancer as well.  It has spread to her colon and peritoneal as well.  The oncologist has mentioned clinical trials might be a good fit and we both think it is a good idea.  We are tentatively waiting for results to identify the cell and what chemo would best suit to fight the disease.  She is also 33 and I thought you could share some insight with us at your convenience.  Anything helps please!

 

Carlos Ysaguirre

Austin, Texas  USA

 

Eltakiam
Posts: 1
Joined: Mar 2013

I'm sorry to hear about your wife's diagnosis.

Unfortunately, Holly passed away in May 2012.

Her blog still holds her experience with this awful disease, so you may want to check it out.

pregnya143
Posts: 6
Joined: Jul 2013

Hi,My husband has his total stomach removed in Oct 2012 and has undergone chemo and radiation.He is facing lots of problems.I just want to contact any person who is from india.Im from India,Hyderabd.Are you from india?

Can my husband lead a normal life..?Please do respond..Thankq

ambermaree36
Posts: 3
Joined: Mar 2012

hi there,

I hope your mum is doing well, I am managing to beat stomach cancer ...she can too.

have2believe
Posts: 135
Joined: Dec 2010

Can you tell us a little more about your story? What mets did you have, and have you only been on chemo?

liveinhope
Posts: 83
Joined: Mar 2010

Sorry ambermaree36,got your id wrong!

danimuscolino
Posts: 2
Joined: Mar 2012

Hello to all! Stay positive!! My husband is doing well and has been in chemo since august 2009. Already has in his body 60 cycles of chemotherapy. He was diagnosed with gastric cancer and mets to the liver. He is 33 now and he is a very strong man! I am so proud of him! He taught me how to fight in this life and how to be positive!

We live in Sag Harbor NY and we try to enjoy life everyday! now we are trying to get pregnant.. I know many of you and even myself will think that is creazy to add more stress in our lives but we have to keep living! this cancer cannot take all from us!

My husband is taking herbal teas, chemotherapy in Sloan kettering every other week, and suplements. We changed our diet to most of all organic, not chicken, not meat!
If you need any help send me a message and I am happy to let you know what are we doing to keep our body strong and keep beating cancer!

It is tough! but you can do it! fight fight fight!!

Love you all!!

Daniela

have2believe
Posts: 135
Joined: Dec 2010

I'd love to know what you're doing....will send you a private message. COngrats on the baby! I honestly believe that having something to look forward to is what keeps my mom going. And w/ a baby, that will bring so many gifts of love and more good memories.

have2believe
Posts: 135
Joined: Dec 2010

sry, see now that you wrote trying for a baby. Hoping for success!!!

liveinhope
Posts: 83
Joined: Mar 2010

Daniela,Ambamari,your stories give us hope and we would be happy to have more details of the chemotherapy given.I have not been on this site for the last 5 months since my son developed lymphnode mets.He was diagnosed in August 09,underwent 3 cycle before and after total gastrectomy at 30.Since October he is on irinotecan,leucovorin 5F_U and Erlotinib and responding well.I am interested in finding out more about maintenance chemotherapy and the drug doses and frequency.The road ahead is tough but we have to give it a good fight.Good wishes to you all and love from a mother from India.

danimuscolino
Posts: 2
Joined: Mar 2012

Mom from India,

Keep up the good fight! your son is young like my husband and they have a lot of strength to fight this horrible illness! stay strong next to him. He needs you!

My husband started with 5 FU, avastin, docetaxel and Cisplatin. After the 13th cycle of chemo, his doctor discontinued cisplatin because of an allergic reaction and now after long time with docetaxel, 5 Fu and Avastin his dr. decided to stop docetaxel to give him a chemo break. So in summary he is now with 5fu and avastin . The tumors reduced 85% in size since diagnose and now they are stable.

He also, takes many supplements from dr. Block and dr. Dalzell and 4 herbal teas from dr. Wong.

I hope this helps. Take care!

Daniela

liveinhope
Posts: 83
Joined: Mar 2010

Hi Daniela,I haven't been on this site for months.Our son Atish lost his fight to gastric cancer on the 17th of this month.Though his body weakened his spirit was unconquerable and he smiled to the end.Left us a lot of happy memories.
Love and good wishes to you and to your husband.
Nisha-Mom from India!!

Godheals
Posts: 6
Joined: Jul 2012

Good morning Daniela,
I have been reading your posts, I hope and pray your husband are doing well. I am asking help for a very dear friend of mine in South Africa. He has been diagnosed with stage 4 stomach cancer in Jan 2012. He has undergone 7 chemo sessions. Any advise for him and his family, please? He has lost almost 30kg, his family is devastated. I am also trying to find out why is surgery not an option? The cancer has not spread to any of his organs - praise God!! We are praying and believing, please help. Blessings.

have2believe
Posts: 135
Joined: Dec 2010

Many doctors do chemo and then surgery followed by more chemo and radiation. Also, it may not have spread to other organs, but if it has spread to the abdominal wall, peritoneum, distant lymph nodes, it is still stage 4. Weight loss is often an issue. My recommendation is to try to eat a little every few hours even if it's just a few bites. Try different foods to see what you can stomach, as your taste preferences will change/ have changed.

Godheals
Posts: 6
Joined: Jul 2012

Thank you very much for your e-mail. Yes it has spread to the peritoneum, that is why the dr now say he cannot do surgery. Also spread to the lymph nodes. He is starting Monday with new course intensive chemo, we keep praying and believing. God bless

Coach B's picture
Coach B
Posts: 21
Joined: Apr 2012

most dr wud say no to stage 4 cancer and one of my surgeon are willing to have surgery to remove my distant left illiac lymph node then in two weeks start chemo and recover then stomach surgery... my question what are the risk of having surgery taking lymph node then chemo then stomach .. i had one cycle of cisplatin and 5 weeks of radiation...is this too risky to have surgery.. pardon my language because i am deaf i hope u understand if u have question anything just ask me and i will try my best to answer back to you

have2believe
Posts: 135
Joined: Dec 2010

Hi Coach B,

I think it's important really listen to what all the doctors say, bring someone with you to the appointments, and take everything into consideration. Surgery is usually the best chance of a cure, but if the chances of success is extremely slim, many doctors worry there will be more complications than benefit. Stomach removal is major surgery and has a high risk of complications. With my mom's situation, I looked at it like this... my mom had a 95 percent chance of having the disease reoccur with stomach removal, so there was no benefit. In addition, it has a high risk of complications. But then there's that 5% it could work. Does one take the chance of surgery knowing it could be successful, but it could also lead to an earlier death? In all honesty, we wanted surgery, but we were not presented with that option.

You are in a situation where the choice is yours. Something else to consider is maybe having more chemo to see if it gets rid of the disease and then doing surgery.

I hope this helps.

hopeforever
Posts: 1
Joined: Sep 2012

My husband was diagnosed stage 4 in april 2012. He is 46 and we have 4 children aged 14 to 4. He had a small 1.5cm junctional tumour but a laparoscopy revealed microscopic cancer cells in the peritoneal cavity which we were told was incurable so surgery was not an option. He was put om palliative Chemotherapy and given 1 to 2 years to live. We found it unacceptable that this could be the case considering it hadnt spread ro any other organs, We found another oncologist who didnt agree....my husband had 5 cycles of ECF and was then retested. The laparoscopy now showed the tumour had shrunk and returned negative gastric biopsies, the microscopic cells had also been neutralised, Now he is able to have the surgery that will save his life. My advice...never give up....chemo works wonders and if we'd never tried he would still be facing a life with no future. My best wishes to you.

snk1787
Posts: 4
Joined: Jul 2012

Thank you for writing, hopeforever. This is a great story to share!

liveinhope
Posts: 83
Joined: Mar 2010

Keep fighting on,hopeforever.Cycles of chemotherapy,surgery,low-dose oral chemo,keep at it with all the ammunition available and be prepared for tough times.All the best to you and your family!!There is an FB page "Stomach cancer Warriors"that would also be helpful.Gives a lot of information and support and I could add you there.You can mail me on nishamunshi@gmail.com

czysaguirre
Posts: 2
Joined: Dec 2013

Thank you for sharing!  Awesome story of hope.  My wife was recently diagnosed with stage 4 stomach cancer and it too has spread to the peritoneal.  Do you happen to have any more advice for us?  Anythign would help and we greatly appreciate it.

 

Carlos 

Austin, Texas

totoro530
Posts: 1
Joined: Oct 2012

Hi Daniela,

could you tell me a little more of what your husband eat? My dad has stage 4 stomach cancer too.

shanhetao
Posts: 2
Joined: Nov 2012

Hi danimuscolino,

Do you mind share a little bit details of the type of chemo medicine your husband has been using. I am also interested in the herbal teas and supplements, his diet. I am newly diagnosed with stage 4. Looking for all the information to try to help myself.
If you can share to me, I would be really appreciated.

borchman
Posts: 2
Joined: Dec 2012

I was diagnosed with stage 4 stomach cancer in Sept., with major mets to the liver. Am on chemo. Your story is one of very few positives, as I am sure you know, and I keep loooking even though everyone tells me not to.
How are you doing?

borchman
Posts: 2
Joined: Dec 2012

Thank you for the positive comment. As you know, they are scarce and I had yet to find any 5+ year stage 4 survivors. Everyone tells me to stay off the internet because all I read is bad news and I am terrified. I was diagnosed in Sept. with stage 4 stomach cancer w/mets to the liver(substantial). I am on chemo and the first CT scan showed no change. I am on a macrobiotic diet and am a 62 year old formerly healthy female.
How is your husbad and is there a prognosis? Do they expect remisssion?

Thanks

silos
Posts: 1
Joined: Aug 2013

My Mom has stage 4 stomach cancer that spread to the liver.  She had 70% of her stomach removed.  She just started her first round of chemo.  Please advise on any tips tricks or suggestions to fight this.  Thank you very much.

 

summergirl197281
Posts: 2
Joined: Mar 2013

thanks for starting any thing good like that.we are in Downingtown PA.She is having chemotheropy in brandywine hospital.she got her second round so far.she feels very week all the time and throw up  in 2 early days of chemo.she been through 4 surgries.her age is 41.we need to know how he is fighting good and what he eats in break fast and then dinner and lunch.any exercise or any other thing that is important for us.please give us little bit of detail.We  will be very thankful to you.our email address is imranahla786@hotmail.com. or in here .thanks thanks

summergirl197281
Posts: 2
Joined: Mar 2013

thanks for starting any thing good like that.we are in Downingtown PA. she has ring cell sigmenta cancer stage 4 .She is having chemotheropy in brandywine hospital.she got her second round so far.she feels very week all the time and throw up  in 2 early days of chemo.she been through 4 surgries.her age is 41.we need to know how he is fighting good and what he eats in break fast and then dinner and lunch.any exercise or any other thing that is important for us.please give us little bit of detail.We  will be very thankful to you.our email address is  imranahla786@hotmail.com inhere .thanks than

Hillarjr's picture
Hillarjr
Posts: 5
Joined: Nov 2012

Fat and happy two years after Stage 4 diagnosis
I was diagnosed with stage 4 adenocarcinoma of the stomach, HER-2 positive, full stomach wall thickness, lots of positive lymph nodes, maybe a tiny metastasis to the peritoneum. Partial gastrectomy, oxaloplatin for 6 or 7 cycles (yes, I do have some chemobrain), Xeloda two weeks on, one week off since then. Herceptin infusions every three weeks since them.

Currently, I am almost two years out with no cancer symptoms (only treatment side effects) and no evidence of disease. My long term prognosis remains a little questionable, but the prognosis for stage 4 is much less grim than it was even a few years ago,particularly stage 4 that is HER-2 positive.

I first read this thread two years ago and almost despaired. Please do not despair. In addition to the much improved three aments now available, there several more in development that may be available in the next couple years :-)

hope-india
Posts: 1
Joined: Dec 2012

Heartening to read your story Hillajr..my father has been diagnosed with Stage 4 stomach cancer and liver mets two days back..am totally devastated and shattered on receiving this news:( we are to meet the medical oncologist tomorrow to explore treatment options..hwever,discussions so far with the surgical oncologist have given us the impression that chemo therapy will be the way to go..bt of course the trtmnt course will finally be decided by the medical oncologist..am worried since my father is 69 years old and of mediim stature(weight ~60kg)..will he be able to tk the chemo or am i pushing him towards sumthng untoward!! Havnt bn able to sleep these past few days..my father means everythng to me and i cnt simply bear the thought of him being afflicted with such a deadly disease:'( ny words of advice will be highly appreciated...thnx in adv

darcymom
Posts: 1
Joined: Dec 2012

Thank you So much Hillarjr for your positive writing. My husbands best friend was dx'd today w/LP. Don't know much more since I just spoke with him and he has just left surgeons office w/the grim news. He is 50ish, always been in poor health (has pacemaker, heart problems, had gall bladder surgery 2 wks ago) and compulsive smoker & drinker. But because of reading yours and these other positive posts, we have some hope for him. A lovable curmudgeon, he has always lived his life the way he wanted and with obvious abandon, but now has been stopped in his tracks. Can you or anyone please give me some eating hints to pass to him. He has lost 30+lbs and cannot keep food down. He may be hospitalized again for hydration. Thank you again and I wish you ALL the BEST!!!! I myself am a melanoma survivor and now that feels like a hangnail compared to what y'all have to deal with. Hang in there and keep smiling!!!

pooja009
Posts: 1
Joined: Jan 2013

Hi All,

In the month of October we came to know that my mother is suffering from Stomach cancer 4th Stage and it was spreading in chest , had bowl obstruction also. Due to this bowl obstruction she was not able to eat anything, she was throwing any intake and no motions at all. We were suggested to get the bowl obstruction cleared first , so that she can start eating as Chemo ( which is the only option at fourth stage) is very strenious. Post her surgery she is able to eat now and has become better then before and also soon doctors are planning to start chemo sessions for her. Want to mention that doctors have asked her to eat anything. No restrictions at all, not sure if this is right for her or not.

But as of now all looks good so we going on with what doctor is suggesting.

Thanks & Prayers for all.

 

Robleyd's picture
Robleyd
Posts: 13
Joined: Jan 2013

 

Hi All: I am a 79 year old male. Last year I was a 185 lb 5' 11" male, but for the last several months was not feeling strong and easly short of breath, tieying out easy. In med Nov 2011 I admitted myself to the hospital for a check-up, and when the EDG showed that I had Stomach Cancer I opt for surgery, so on 30 Nov. 2011, the doctor. removed my entire stomoch, my gallbladder, part of my esophagus and 30 lymph nodes, of the 30, 23 were already infected with the Cancer. He then attached my small intestines to my esophagus. I stayed 10 days in the hospital. I recovered nicely, even tho I was having some trouble with what foods to eat & not eat. Even tho I was having some mild diarreah, on 9 Jan 2012 I started Chemo. 5 days then 3 weeks off and then another for the next 6 months. After the first round, my mouth was so infected with mouth sores and my tongue so swollen, I was having a hard time eating and drinking, that I got dehydrated and ended up in the hospital. My GP had me tested and found that I had an infection that was causing the diarreah. She gave me med to help with this infection causing the diarreah.
The next time they gave me a lesser dose of Chemo and a nurse told me to suck on ice cubes all while I was getting the Chemo to help with the mouth sores, that did help a lot, but again I ended up in the hospital as I needed blood transfusion, 2 units. I then told the doctor, no more Chemo., it was killing me.
I got my diarreah in check, learned what foods to stay away from ( I stayed away from sugger and coffee) and what to eat. I have gained back some 10 lbs of my lose weight, and now can eat allmost anything I want. I am not back at 100% but doing much better.
Now I eat about 7 times a day, small meal and CHEW my food very much as so to let my mouth do the breaking down of the food that my stomach use to do, and drinking water with every bite. Needless to say that I try to get as much protien as I can. I use power protian. My wife makes me some fruit drinks ( 1 hole banana, over ripe when possible, plus other , apples, paers, peiches, ect. with a hole scop of protien power and lactaid free milk). I drink about 16 oz a day of this, even at night time when I wake. I eat creamy peanut butter sandwichs in the mid day. Right now I eat any thing I want, just small amounts at a time.
A few months after I stop taking Chemo, the wife and I went on a 2+ months car trip around the US and Canada. I did most of the driving.
Ihope that this might help some one that is looking for info on Stomach Cancer as I know how hard it is to find info. Please fell free to ask anything you might want to know that I might help you, as I know how HARD it is to find info on this Cancer.

RemiCat
Posts: 1
Joined: Jan 2013

Greetings,

 

My cancer was almost identical to yours. Same everything. The only difference is the age I was 60 at the time. I am now 62.

Everything was fine until I picked up something heavy. I now have this huge hernia bulging out where my stomach used to be.

I am also hypoglycemic as a side effect of not having a stomach

Ray

Welland Ontario

Canada

Robleyd's picture
Robleyd
Posts: 13
Joined: Jan 2013

Hi, RemiCat, Sorry to hear about your hemia. I hope that it does not set you back too much. When are you due for another Scan?. I am due for one in med April.

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