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2 years since diagnosis

mhrosado
Posts: 37
Joined: Jan 2011

Hello everyone. When Ed was first diagnosed I searched for information and hoped that what the doctors were saying did not have to be true. I found so much hope here.
Ed was given 2-6 months to live. He asked every time he went to see a doctor hoping to get a different answer but only one doctor said to him that he expected him to live past what the data showed. Needless to say it has been extremely difficult, there were days that I had to spoon feed him and he would only take the tip of the spoon and later vomited what he ate plus. and then there were days that he got up and drove my son to school. days that he stayed in bed all day...many, many days that he stayed in bed. Days that he went out to dinner or on a day trip with my granddaughter and me.
It's been 2 years!! he was diagnosed in January 2010. the best thing that happened is that he is now being treated by the VA and getting chemoambulization treatment through Travis Medical Center. the last scan showed no "detectable" turmors. but as we all know this can change in a minute and so we will wait until the next scan later this month. I continue to recommend a healthy diet of very little or no meat, a vitamin shake, mulivitamis, and an enjoy your life attitude. Not easy, prayers help.
Ascitis is really getting to him. his stomach is full within 2 weeks of getting drained and he is very uncomfortable. Pain medicine is helping him get by. once the meds kick in he is able to do a few things. this is the way it is, so every opportunity that we have to enjoy life we take it. he loves the ocean so I am hoping to take him to the coast for a couple of days - even if it is just to take a short walk on the beach. thanks for listening. please keep up the hope and let's work to change the statistics. please post if you are past the 6 months. we all need hope. thanks Xtreme!

slg
Posts: 200
Joined: Jan 2010

Hi Maria,
I so know what you are saying. Do keep that positive outlook. I hope that Ed can beat the odds. Let me know if you want to talk off line..... Thinking about you and Ed. Wish we could have come to his party...

Sue

mhrosado
Posts: 37
Joined: Jan 2011

Thank you Sue. Ed had a scan last week and it showed that a little spec that was too small to identify as cancer is now growing. He is going to have a TACE later this month to hopefully get this cancer completely gone. I still hurt for Paul and you but I know that like you said finally he is not in pain anymore. pray for us and yes lets talk. you are a great example of strength-take care.

mhrosado
Posts: 37
Joined: Jan 2011

Thank you Sue. Ed had a scan last week and it showed that a little spec that was too small to identify as cancer is now growing. He is going to have a TACE later this month to hopefully get this cancer completely gone. I still hurt for Paul and you but I know that like you said finally he is not in pain anymore. pray for us and yes lets talk. you are a great example of strength-take care.

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