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PSA rising, 9 years after RP

CuriousCanuck
Posts: 3
Joined: Jan 2012

I've put my full story here as a 'story' under 'Expressions':
http://csn.cancer.org/node/233532
Please respond here or privately if there's more info I can add.

Curious what the thoughts are about how urgent it is to start IHT, and links to men's experience of side effects from IHT.

Links to previous postings are welcome.

I have an appointment with a radiologist at the local cancer centre Feb 7.

VascodaGama's picture
VascodaGama
Posts: 1255
Joined: Nov 2010

Curious

Thanks for posting your well described story since 2000. I am a survivor from those times and was similarly 50 years old at my open surgery (RP). Our stories living with the cancer have similar length but with different “directions”. I got recurrence at the initial six month post op and you got it 9 years later.
There is no doubt that both cases serve as examples for the many guys that visit this forum looking for answers to their problems.

I may have been one of the patients used in the statics of the study you indicate in your blog because I was a patient of the same team of doctors at JH at the time and were recommended to follow Watchful Waiting (now re-named AS but with lesser regimens).

A big difference in our cases in “Recurrence” status is that my cancer was doubling at 14 months while yours was at 9 months. I was also a Gs5 against yours Gs7, which difference may justify the two PSADT in regards to aggressiveness.

With those parameters at hand and with the results from the studies you indicate, I may be cynic in opinioning that a PSADT of 9 months is at the border line which may require you to start a salvage treatment now instead of waiting for the 2 years.
Hormonal treatment may be a good solution to your case. Radiation can be part of your salvage protocol too in combination with HT or you can follow a palliative way of control which as you comment can last over 15 years in an Intermittent approach.

As a layman on PCa matters with no medical enrolment, I would suggest you to take this post as reference and that you follow your instinct after considering several second opinions from professionals.

I see your urologist’s comment below, to be right.
“... it's unlikely cancer is localised so SRT would not work - the cancer is more likely circulating and could be anywhere” (far places).
In my case, my urologist said the contrary, after receiving the results from SRT. He commented that my case was "Localized" because the RT has hit the cancer fully (almost all) as seen in the drop in PSA that went down from 3.8 before RT to 0.05, 15 months after RT. My view in both cases is that our different pathological conclusions after RP, (you with negative margins and negative extra capsular extensions against my positive margins and capsular extensions) drove the conclusions of the urologists. (Far Places, against, Localized)

In any case, one