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45 yr. old Husband diagnosed with traditional HCC -Stage 4
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Feb 01, 2012 - 11:16 pm
Hi all. My husband had one tumor removed in 2010 which was believed to be the only one. They told us that this was the fibrolamellar type of cancer with very good prognosis. We had a couple of follow ups and the scans came back clean. We then lost our health insurance coverage. Now, his CT scan shows many tumors of varying sizes throughout the liver. There is also one tumor on the abdominal wall right under the surgical incision site. They are saying it is NOT fibrolamellar but the traditional HCC (primary). They say he is now in stage 4. We live in the Chicago area and are seeing doctors out of Northwestern Memorial. Any other hospitals or doctors you care to refer? Since we don't have health insurance, we have applied for financial aid through the hospital and are waiting to hear back. We have two young children. I also just started the life insurance application process, and food stamp and medicaid process. My husband is not eligible for social security disability. Any other financial resources? Can any of you share your experiences with the various treatment options? I don't believe my husband will want to participate in a trial. Any guidance or advice is greatly appreciated. Worried Wife |
Joined: Feb 2011
Is he a veteran by any chance? I use doctors at the University of Michigan for my HCC and have survived 5 years now with one recurrence two years post initial diagnosis and subsequent resection. U of M is a comprehensive cancer center which is what you want for treatment. There may be a study that he can get involved in at this or some other center if you don't have one in the Chicago area. Studies are generally fully funded and allow you to be on the cutting edge of technology and treatment and are not necessarily a bad thing. I have participated twice now in studies at my hospital and have nothing bad to say about them. Others may have something else to share, though. I will pray for you and your husband that he might get the treatment he needs.
Joined: Feb 2012
Can you please