Feb 01, 2012 - 11:16 pm
Hi all. My husband had one tumor removed in 2010 which was believed to be the only one. They told us that this was the fibrolamellar type of cancer with very good prognosis. We had a couple of follow ups and the scans came back clean. We then lost our health insurance coverage. Now, his CT scan shows many tumors of varying sizes throughout the liver. There is also one tumor on the abdominal wall right under the surgical incision site. They are saying it is NOT fibrolamellar but the traditional HCC (primary). They say he is now in stage 4. We live in the Chicago area and are seeing doctors out of Northwestern Memorial. Any other hospitals or doctors you care to refer?
Since we don't have health insurance, we have applied for financial aid through the hospital and are waiting to hear back. We have two young children. I also just started the life insurance application process, and food stamp and medicaid process. My husband is not eligible for social security disability. Any other financial resources?
Can any of you share your experiences with the various treatment options? I don't believe my husband will want to participate in a trial. Any guidance or advice is greatly appreciated.