Feb 01, 2012 - 5:54 pm
Big day for me tomorrow.
I've been trying to prepare my Wife for the possibility of a sobering pathology report and the ramifications therefrom. At the same time she has been trying to alert me to the probable exiguousness of information that our esteemed National Health Service is likely to vouchsafe to us. She has a profound knowledge of the subject so her forecast is likely to be vindicated. This makes it all the more imperative for us to ask all the appropriate questions.
We'll be seeing the Urologist who did the op. He is superb and has produced learned papers such as one entitled "Occult transfixation of the sigmoid colon by suprapubic catheter" - I think I had one of those myself but the wheels fell off! Within the National Cancer Quality Steering Group he is Chair of the Renal Cancer Quality Performance Indicators sub-group for "Treatment of Patients with Non-Metastatic Disease" so I reckon if I can stick with him I'll be alright!
However, if not I suppose I'll need to see oncologists, radiologists, counsellors ... I'll be asking for the bottom line of the path. report, advice on diet, my current exercise programme, surveillance modalities (are there tests apart from scans that are essential/helpful ?) and their optimal frequency, relevant clinical trials and new treatments (e.g. highly intense focused ultrasound - HIFU).
What else do those who've gone before recommend? Especially, what did you regret not having thought to ask?
I'll try to retire tonight with positive thoughts - from Julian of Norwich in the 14th century: "all shall be well, and all shall be well, and all manner of thing shall be well." to the Beatles' refrain in I'm Down: "Everything's gonna be alright".
All helpful suggestions received with gratitude.