Jan 28, 2012 - 4:29 pm
I recently had a total thyroidectomy and got the news that it was cancer. My doctor told me that I should consider the Radioactive Iodine Treatment. I sad yes, I would like to be aggressive in the treatment.
Then he gave me the good news that I need to go to the hospital for the treatment. I could barely handle staying the 1 night in the hospital after surgery. I was literally dressed and ready to go within an hour after surgery and had to sit around for 19 more hours just waiting to get out of there. I did not need any pain meds and did fine with recovery.
So, Can anyone tell me what the treatment was like, is it an all day thing? Are there several tests? He told me it was a drink, but I am wondering if I have to stay there all day? Are you actually admitted to the hospital? Do you get to keep your clothes on, or do you have to wear the hospital gown? Do you have an IV? Is it a general room with others getting treatment, or are you actually in a hospital bed and in a patient room?
I was told I would take thyrogen. Is that a shot they give you the day of the treatment or does the treatment involve several trips to the hospital? He told me it was stage 1 and the lymph node they took was clear, but I had cancer in both sides of the thyroid. FYI my biopsy was negative and I had to be aggressive for my endroconoligist to refer me to a surgeon. So if anyone is reading this trying to decide on surgery or not, for me I was worried about the complications and once I met with the surgeon he was confident that a total thyroidectomy was a good plan, but it was up to me. My mass was 4.5*3.5 on the right side and 1.5*2 on the left side. I only noticed the right side and had pain in the right side.
I understand that you need to stay away from people the first 2-5 days and my plan was to rent a hotel room near the hospital and stay there, since I do not live alone and have pets. I thought I would be able to drive, but mostly planned on hanging out and watching movies for a few days. Is that realistic given the way you feel after treatment? I specifically asked if I would get sick and my doctor said no you should be fine, but I notice some people comment on how weak they are.
I am eager to hear from anyone that has had this treatment. I don’t know if age makes a big difference in recovery but I am 33.