Jan 20, 2012 - 8:19 pm
Just another example of why you need to be your own advocate.
Standard treatment protocol for MMMT is usually 3 rounds of chemo, radiation, then 3 more rounds of chemo. I finished the first half of the chemo and all the radiation and was "recovering" for the last few weeks. I met with my oncologist for the first time since early October and happened to mention that I haven't had anything done with my port in almost two months.
She told me that I should be having it flushed every four weeks and she apologized if no one told me. Sure enough, when I went to have labs done they could not get anything from my port. Its clogged and after two hours of having stuff flushed through it...still...nothing. So now I have a port that doesn't work and I have 3 more rounds of chemo which actually involves 9 more chemo treatments (I get chemo, 3 days in a row).
I cannot believe that no one....not the radiologist that put it in, nor the chemo nurses that use it and draw blood from it for labs, nor my oncologist or her nurse, or the oncologist/radiologist or any of his staff, ever mentioned one thing about having my port flushed monthly. Yet every time I go in they ask me if I'm taking my "multi vitamin". Apparently there are dire consequences if I don't take that horse pill every day.
Next week they are going to try one more thing to unclog it (I think something with the radiologist who put it in), otherwise it looks like I"m going to have to role up my sleeves and have them stick me again. No way am I getting another port.
Just posting this so others don't make the same mistake I did.
Thanks for letting me vent.