Jan 18, 2012 - 10:21 pm
I appear to finally have an answer to the vaginal bleeding I have been experiencing for the past 7 or 8 months. Just 6 months after a TAH/BSO I started to spot/bleed and the oncologist has been unable to find what is causing the bleeding. Finally they have identified 2 masses at the vaginal cuff - believed to be a recurrence (you think?)
When I had my hysterectomy I was told I did not need any further treatment and I had a 2% chance of recurrence. He continued to tell me how surprised he would be if this bleeding was a recurrence - "your chances were so low of that" - yet here we are.
My question is this -- if it is this aggressive - and has recurred when the oncologist was so confident it would not -- does that mean I am going to be fighting this beast for the rest of my life - for however long that turns out to be? Or is there anyone on here who had a quick recurrence and has been more than 5 years since that recurrence?
I was feeling so good about this for the first few months but when that first blood appeared I knew something was wrong. It has been like fighting Goliath to get a proper diagnosis and now I wish I had left my head dug in the sand!