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ROLL CALL 2012 - Updated as of January 16, 2012 (CLOSED 10/12/2013)

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

In year 2011, we had 89 folks who registered or checked back in. You only need to enroll and check in once a year. If you have not enrolled and checked back in this year (2012), please do so. Thank you. How to Enroll We started this list a few years ago. It is a voluntary enrollment for Head and Neck Cancer folks and you enroll in this thread. I noticed that H+N had a very high survival rate and the enrollment/reporting would provide incentive and good news on our survival to those checking in for the first time. I am sure that many of the 50 plus who failed to report back in are still around. There may be others who post in this section and unless they enrolled, I have not included their names. We welcome your enrollment. As noted, please include your state, date diagnosed, type of cancer, brief description of your treatment and your status. After you have enrolled, we hope you will check back in at least once a year even if you had left this forum. A brief statement that you are still around and doing okay would suffice. The date of enrollment will be different from date diagnosed. The enrollment date is when you checked in for the first time for Roll Call. Adamson 091654, state unk, HPV-16 neck cancer in January 2011. Tumor removed 01/03/2011. Enrolled January 24, 2011. Agatha, Toronto, Canada, DX stage IV left side of tongue in 2010. Enrolled on January 4, 2011. Adventurebob, California, diagnosed Nasopharyngeal stage IV in May 2010, enrolled August 21, 2010. Checked in January 20, 2011. Aeromech, state unk, DX stage 1 SCC right tonsil on September 24, 2011, enrolled July 21, 2011 Akotke, Alabama, DX tonsil stage 4b scc tonsil in November 2010, enrolled August 12, 2011. Army_Guy, Maryland, diagnosed SCC right base of tongue-April 30, 2010, left salivary gland-May 2010. Enrolled January 15, 2010. Enrolled January 16, 2011 Areomech, Cincinnati, Ohio, DX I1N0M0 on September 24, 2010, enrolled January 5, 2011. Checked in July 21, 2011. Arjenkins, state unk, enrolled dad diagnosed stage IV cancer base of tongue w/lymph node on both sides. Enrolled January 20, 1011. Arndog64, DX left tongue base tumor w/lymph node invasion on January 28, 2011. Enrolled April 18, 2011. Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010. Checked in August 13, 2011. Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010. Checked in August 4, 2011. Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked in January 9, 2012, doing better than OK. Able to eat again and put back 17 pounds of lost weight. His book going through some final edits. CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010. Checked in January 8, 2012 and doing well. Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011. Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010. Checked in January 23, 2011. CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010, Checked in August 7, 2011. Connieprice1, Texas, DX SCC stage IV, base of tongue in October 2010. Enrolled July 17, 2011. D Lewis, Sierra foothills, California, DX SCC base on tongue, January, 2010, enrolled February 5, 2010, checked in July 23, 2010. Checked back on January 16, 2011. Checked back in January 4, 2012 and all is well. PET-CT NED in October 2011. Few lingering effects of radiation, but all is well. Davidgskinner, California, DX stage 4, SCC right tonsil, enrolled July 13, 2010. Checked in August 5, 2011. Checked in January 7, 2012, doing okay. Side effects discouraging and lot of depression, but seeing professionals. Wishing you the best. Dazey, New York, diagnosed SCC unknown primary in 2009, DX SCC, enrolled on 01-31-2010, checked back in December 29, 2010. Checked in July 15, 2011. Checked in January 5, 2012 and doing well. Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010. Checked in January 17, 2011. Denistd, state unknown, enrolled January 8, 2012, DX March 2009 w/larygeal cancer, stage 3, still going strong. Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011. Rehired after losing job/works a few days. Making small, but positive steps. DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010. Checked in November 30, 2011. Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010. Checked in August 15, 2011 Donnahamblin, Fairborn, Ohio, enrolled January 11, 2012, husband DX September 16, 2011, stage 4, tonsil cancer, SCC and is HPV positive. Start radiation January 12, 2012. Also DX with Parkinsons Disease at age 45 in year 2005. Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010, Checked in January 16, 2011 Ed_PortOrange, state unk, diagnosed SCC of Valledupar-December 2009. Enrolled on January 17, 2011. Checked in July 29, 2011. Ekdeennie, Oklahoma, diagnosed Mucoepidermoid carcinoma of hard palate w/growth into maxillary sinus-June 30, 2010. Enrolled on January 17, 2011. Finz2lift, North Carolina, DX SCC base of tongue, enrolled on 07-11-2010, Did not check in. Reported by Skiffin16 on January 4, 2012 that he is around and doing well. Fire34, Illinois, DX unknown primary June 2009, enrolled March 17, 2010, checked back in July 23, 2010. Checked in August 12, 2011. Checked in January 5, 2012, starting annual checkups, so far-good. Fisrpotpe, Champaign, Illinois, diagnosed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident, enrolled on December 29, 2010. Reported by Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010. Reported by Hondo on December 17, 2011 that he is in treatment for second NPC and doing well. Glenna M, New Hampshire, diagnosed SCC laryngeal and NSCLC Aden carcinoma in left lung in May 2009, enrolled on 1-31-2010. Checked back in on January 1, 2011. Reported in January 16, 2012. Just finished chemo and waiting to start clinical trial w/Sinutinub for recorrence of NSCLC now in both lungs. No problems w laryngeal after 2 ½ years. GraceLibby, Renton, Washington, diagnosed Stage 3 SCC, right tonsil primary, enrolled in 07-14-2010. Checked in January 16, 2011. Reported in January 9, 2012. Had one year post treatment checkup in November 2011 and doing great. Saliva not good and worst is constant tinnitus. Greend, Prattville, Alabama, enrolled January 16, 2012, DX SCC Right tonsil, still above ground and enjoying life. Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010. Checked in January 10, 2012 and doing good. Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 6, 2011. Hawk711, California, enrolled January 1, 2012, diagnosed SCC base of tongue January 2010, NED July 2011. Checked in January 4, 2012. HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008. Checked in August 4, 2011. Checked in January 1, 2012 and still okay. Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010. Second time in 2005 and last in March 2006. Checked back in July 25, 2010. Reported back in on January 20, 2011. Will be five years from treatment in March 2011. Checked in Aug 5, 2011. Irishgypsie, Rochester, New York, DX SCC right tonsil, enrolled on 07-11-2010. Did not check in, but reported by Skiffin 16 on January 4, 2012 that he is still around and doing well. Reported in January 16, 2012 and now accounted for. J3rey, Florida, SCC left lymph node April 2010, enrolled July 26, 2010. Did not check in but reported by Skiffin16 on August 4, 2012 that J3rey is still around and doing well. Jan Trinks, Atlanta, Georgia, posted as being in forum on August 12, 2011. Janymac, UK, DX in 2002, enrolled on April 18, 2011. Jeepman, enrolled January 8, 2012, DX stage 4 SCC primary right tonsil/BOT. Neck dissection following rads showed NED. Also had abscess in neck. Jim & I, registered on August 7, 2011. No information provided. Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010. Checked back in July 16, 2011. Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010. Checked in August 7, 2011. Kent Cass, Quad cities, Midwest, NPC unknown primary in 2009, enrolled July 22, 2010. Checked in January 20, 2011. Checked in January 6, 2012, still dealing with teeth issues/neck spasms, but still okay. Kingcole42005, California, DX Mucoepidermoid Carcinoma in 2010. Enrolled January 3, 2011 Klynten, Washington State, enrolled January 10, 2012, DX November 2011 w/Stage IV Mestatic SCC, unknown primar, starting radiation in two weeks. KristynRuth, Texas, Enrolled January 6, 2012, DS SCC of a lymphnode, unknown primary, completed treatment October 25, 2010. Considered "cured". Kteacher, California, DX SCC HPV - Spindel cell varient, perineural involvement, enrolled July 20, 2011. Checked in December 27, 2011. Ktjt, state unk, diagnosed SCC NPC in May 2010, SCC on check, Mohs Sx, BCC Jan 2011 Mohs Sx, enrolled January 24, 2011. Kokom, state unknown, enrolled August 12, 2011, spouse treated for NPC in year 2006. Landranger25, state unk 2009, enrolled on 01-31-2010. Checked in January 24, 2011 Lena Rose, New Jersey, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010. Checked back in January 16, 2011. Longtermsurvivor on October 25, 2011 that he is still around. Checked in January 4, 2012. Had 4 teeth removed, 4 checkups and continued NED. Checked in January 11, 2012, DX SCC soft palate. Third cancer and still in treatment. Luv2cut1, Myka Landry, Colorado, husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Enrolled January 6, 2011. Checked in January 15, 2012, husband doing well 27 months out. Now in treatment for CLL (chronic lumphocytic leukemia). Luv4lacrosse, St Louis-Missouri, SCC right tonsil in June 2010, enrolled December 28, 2010. Reported in January 16, 2012 and almost 15 months NED. MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011. Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010. Checked in January 21, 2011. Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010. Checked in August 4, 2011. Michdjp, New York, daughter Michelle enrolled Dad on December 28, 2011. DX’ed with right tonsil and lymph stage IV, hpv. Mikemetz, state unknown, enrolled January 11, 2012, DX Mucoepidermoid in February 2009, Currently being treated for ORN, otherwise doing well, next scan 2012. Nankster, zip code 30033. Enrolled for wife on January 3, 2012. DX Adenoid Cystic Carcinoma and completed radiation December 16, 2011. Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube. Checked in November 30, 2011. Nwasen, Ohio, enrolled January 9, 2012, DX Stage 4, base of tongue w/3 lymph nodes in October 2010. Last treatment December 18, 2010, PEG removed July 2011. Grateful to be alive. Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive” Olivia46, New Jersey. DX olfactory neuroblastoma (ethesioneuroblastoma) in the sphenoid sinus. Surgery in October and will start radiation therapy January 2012. Enrolled January 3, 2012. Olybee, Washington, DX March 2011 on tonsil/lymph node. Enrolled July 21, 2011. Oldpaint03, Utah, enrolled January 14, 2012 for husband Jack. DX w/stage 4 SCC BOT w/nodes on both side of neck. Completed 7 weeks chemo/35 rad treatments on January 15, 2011. Three Pet scans all clear for cancer, but having problems w/blood clot in jugular vein. Also had nerve damage. Still fighting, but unable to return to work due to dizziness. Osmotar (Linda), Airzona. DX June 2011 with SCC Rt tonsil, 1 lymph node. Completed chemo October 2011 & radiation in December 2011. Enrolled January 5, 2012. Palmyrafan, Ohio, enrolled January 11, 2012. DX 1994 multiple megiomas. Sinus surgery 1993, brain surgery 1994, Radiation therapy 1996, Sinus surgery 1997. Tumors returned in all areas that were resected and radiated. On W&W with upcoming sinus surgery. Have lost most of hearing and trying to preserve her vision. My prayers and wish you the very best. PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010. Checked in October 30, 2011. Pattyanny, New York, Undiagnosed primary head and neck in June 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back. Checked in August 1, 2011. Posted on October 25, 2011 appreciating the list. Pascotty, Bunbury, Western Australia, diagnosed SCC right tonsil in November 2009. Enrolled January 7, 2011. Checked in August 12, 2011. Checked in January 8, 2012. 2 years/3 months survivor as of January 7, 2012. Paula002, Montreal, 2007, Nasopharyngeal , enrolled November 7, 2008. Reported by Soccerfreaks on November 30, 2011 that he was still around. Puggle, Pennsylvania, enrolled, January 4, 2012, caregiver for husband, DX June 2011, primary epiglottis with node involvement (1 side). Completed 32 rads and 3 chemo (cisplatin) Aug 2011. First scan post treatment shows NED Rarph123 responded to an entry on January 17, 2011 but did not enroll. Rascal52, Michigan, enrolled January 11, 2012, DX SCC of neck on January 19, 2009, unknown primary Ratface, Illinois, DX July 2009 BOT, T1N2BMX, Stage IV-BOT-2 nodes right side, selective disection 11-30-09 9 nodes removed. Checked in August 4, 2011. RayTodd, Checked in December 31, 2011. Cannot locate enrollment data, checked back in January 7, 2012. RJC-still-vertical, Illinois, enrolled January 15, 2012. DX June 1991 w/SCC base of tongue. Non-operable chemo and radiation. Long term survivor and no recurrence except for issues from complications associated w/treatment. NPO (No food or fluids orally), Gastic (Gtube) insertion in stomach for nutrition, medication and fluids. Rmdgy, Georgia, SCC right tonsil in 2009, enrolled December 28, 2010. Checked in August 18, 2011. Checked in October 27, 2011. Checked in January 4, 2012. Scans clear and NED. Robinleigh, Montgomery, Alabama, caregiver for Andy. Andy DX January 2011, SCC primary tonsil. Had surgery, metastasis to pelvic region bone, in clinical trial and fighting hard. Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011. Checked back January 16, 2011. Rush1958, Kansas City, Kansas, SCC base of tongue January 12, 2010, enrolled July 20,2010. Checked in July 23, 2010. Checked back January 16, 2011. RushFan, Cypress, Texas, diagnosed HPV=T) N2b MO unk primary in January 2010, Enrolled August 3, 2010. Checked in January 11, 2012. Regained 25 of 35 pounds lost. Saliva doing well and taste back to normal w/exception of sweets. Minor issues with jaw still tightening and w/tinnitus. Sash, Florida, DX SCC base of tongue September 2009, enrolled August 24, 2008. Checked in okay, Jan 20 2009. Checked in August 10, 2011. Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010. Reported on Aug 5, 2011 by Skiffin 15 and Hondo that he left the forum. Reported by Hondo on December 17, 2011 that he is doing well working between Vietnam/Singapore and had no more problems with cancer. Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010. Checked in August 10, 2011. SeenanN, Maryland, DX 2004 NPC state 4 metastasis to lung, enrolled July 21, 2011. Shoeloy, state unknown, Enrolled January 5, 2012. DX hypopharyngeal SCC State 3 in December 2010, Completed treatment in April 2011 and NED as of this date. Shoemandanl, state unknown, enrolled January 5, 2012. DX March 2011. Had neck disection and 19 lympnoids removed. Pet scan was clear in November 2011. Scope also clear in December 2011. Skiffin16, Lakeland, Florida, DX right tonsil, January 2009, enrolled January 31, 2010, checked in July 23, 2010, rechecked on January 5, 2011. Checked in July 15, 2011 & Aug 5, 2011. Reported in January 4, 2012 w/status of finz2left ~ Lloyd, j3rey ~ Mark, irishgypsie ~ Charles (all doing okay) Soccerfreaks, not enrolled, but posted on welcoming Sash back. May have missed enrollment, but he has been around a long time. Staceya, Whitefish, Montana, originally from Brooklyn, NY. DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010. Checked back January 16, 2011. Checked in August 5, 2011. Last scan December 2011 - NED. Checked in January 4, 2012. Stevenl, Fort Worth, Texas, DX SCC right tonsil, enrolled January 31, 2010, checked in July 23, 2010. Checked in January 9, 2012 and doing well. Sukichu61832, Danville, Illinois. Enrolled January 9, 2012, DX September 9, 2011 w/stage 3, SCC left tonsil. Surgery removed on 10/4/1011. Started radiation in November 2011 and still have four more treatments. Lost weight and have issues with shoulder/arm due to surgery. Sumarah8, state unknown. DX September 2011 with NPC, Stage 2b. Treatment until February 2012. Enrolled January 5, 2012. Susan0803, New Jersey, enrolling husband Joe, SCC of left tonsil (primary tumor)-August 3, 2010, enrolled January 20, 2011. Reported in January 11, 2012. All news good, no scans needed in foreseeable future, weight back up and eating normal. Still have hearing loss and tinnitus still bad.. Swartpb, state unk, DX SCC right side tongue on July 21, 2010. Enrolled March 6, 2011. Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 DX December 2008. Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011. Checked in July 19, 2011. Checked in January 3, 2012, everything appears okay. January 2012 is 3rd anniversary. Tanager75, Washington, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010. Checked in August 4, 2011. Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011. Timreichhart, Ohio, DX NPC March 2010. Enrolled January 16, 2011. Checked in December 17, 2011. Checked in January 6, 2012. Still dealing with lung problems and other minor ailments, but otherwise okay. Tommyodavey, Las Vegas, Nevada. DX October 2011 w/Mucoepidermoid Carcinoma. Tumor on base of tongue removed November 9, 2011. Scheduled for radical/modified dissection on January 11, 2012. Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011. Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011. Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010. Checked in January 20, 2011. Checked in August 16, 2011. The following 52 were once enrolled and have not reported back. Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked back in on December 29, 2010 Bughunter, Tennessee, Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan, enrolled August 5, 2008. Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010. Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009 Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010. Cwctcher, Virginia. Tonsillar in 1997, enrolled November 6, 2008 Davidgskinner, state unk, DX stage 4, SCC right tonsil, enrolled July 13, 2010. Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010. Devildawg, Michigan, 2004, Nasopharyngeal. Enrolled August 29, 2008 Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010. Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010 Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010. Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy) Garyr, New Mexico. 1999, Throat & Lymph glands Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV. Geezer, Florida, Tonsilar in 2006, enrolled August 5, 2008 Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010. JGE, state unk, checked in 03-17-2010. 2008, BOT w/2 nodes. Had chemo and rads. All scans cleared, return to work 01 2009. Jkinobay, Arizona & Mexico, HPV16 positive lymph nodes in 2007, Enrolled April 21, 2009, checked in July 27, 2010. Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005. Enrolled August 30, 2008 Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010. Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010. Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007) Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse) Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, enrolled August 28, 2008 Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010 Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008, Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010 MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment. Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010. Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010. PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil, enrolled August 25, 2008 Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010. Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus and Naspharnyx,, Name Sienna Finch. Checked in 03-25-2009, doing okay completed June 2009. Followup. PET and CT were clean. (John) Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010. Slickwilly, Michigan, Large B-cell lymphoma, cancer from sinus to jaw bone in 2003, enrolled, August 7, 2008 Checked in 01-20-2009 Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen) Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009 TereB, Houston, Texas, Milignant Paraganglioma (started as glomus jugulare tumor) in 1987, enrolled August 6, 2008. TIM_WWJD, Oregon, 2009, Checked in 01-31-2010. SCC Stage 4, left tonsil, last ENT clear, chest X-Ray clear. Was removing port in early February. Tom55, Michigan. 2006, Medullary thyroidTootsie47, Oregon, 2009, enrolled November 7, 2008. Checked in 01-31-2010, husband Dx June 2009, occult primary, clean scan 12-2009Train-nut, Oklahoma. 2007? Checked in on 01-31-2010, SCC of the hypopharnx. Thanks for keeping tab. It's great to see such a long list. Still doing well. Keeping on eye on my teeth. Otherwise, I'm putting on too much weight. I may have to increase dosage of thyroid medication. Trainnut, Tulsa, Oklahoma, hypo pharyngeal cancer in 2007, enrolled August 5, 2008 Wboaz, Oregon, 2006 Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010. Victor53, Rhode Island, Tonsil into base of tongue, Lives in Costa Rica, enrolled August 5, 2008. Had been actively checking in. Last check in on March 3, 2010 and hanging tough. MAY THEY REST IN PEACE Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby Mswijik, New York, husband Patrick diagnosed laryngeal stage 4 - September 2010, enrolled January 16, 2010. Condolences extended. Reported on March 6, 2011 that Patrick passed away on February 17, 2011. Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.

jkinobay's picture
jkinobay
Posts: 247
Joined: May 2007

For whenever you do the 2013 ROLLCALL:

 

Sorry for getting a bit complacent but glad to report that I am at the 5&1/2 yr. mark and still NED.

 

Hoping all are well and continue to improve.

lts's picture
lts
Posts: 75
Joined: Nov 2012

 

Luke Sandzik from Michigan. DX Oct 2012 Adenoid Cystic Carcinoma right submandibular gland. Enrolled 11/12/2012. Had neck dissection to remove gland, 30 lymph nodes , fat bed gland was in and some local muscle. Currently in radiation treatment and have completed 10 of 33 as of 1/2/2013. The holiday was great and I hope for many more.

 

JGE
Posts: 50
Joined: Mar 2009

Was 4 years in November. I forget sometimes and I love it! D-mn scar on my neck always makes people ask the dreaded question... usually in a whisper... "How are you doing?"

I usually say "I'm fine, how are you". Then I realize that they meant "how are you doing (with your cancer)" and then I tell them I was doing great until they reminded me about it!  LOL

I have a sore throat and I am hoarse a lot which is annoying but tolerable. I am a bit more fearful that every single ache and pain is something serious, but, I am sure attempted murder victims are a little gun shy sometimes too. ;)

I don't have much tolerance for the bulk of the people in this world taking life for granted, but I think I am just jealous. One thing for sure, I am glad to be on the top side of the grass.

For all of you just starting out, you can definitely do it. Get it done and get back to living.

John

Cincinnati Ohio

 

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

Enrolled July 2, 2012
Southern California
Diagnosed March 28, 2012 stage IV laryngeal SCC with a few nodes involved on R side. Finished erbitux(chemo) and rads on June 28th 2012.
PET/CT NED 9/28/12
Hoping for many many more!

vermontgirl's picture
vermontgirl
Posts: 66
Joined: Nov 2012

Vermontgirl, Vermont lol, husband dx on 11/19/12 with scc tonsils stage IV one lymph node same side, 7 weekly cisplatin and 35 rads.

Vikeman10
Posts: 62
Joined: Jul 2012

 

Vikeman10  enrolled Oct. 2012, diagnosed Dec. 2010 SCC of posterior Hypopharyngeal wall. Carbol & Taxol Dec. 2010 to Mar. 2012, tracheotomy April 2012, Erbitux & 35 Rads May 2012 to July 2012 . NED  Oct. 2012, recurrent Dec. 2012 SCC wrapping around carotid arteries & exposed C-2 bone in throat, treatment not possible Hospice care terminal diagnoses.

Randy

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

NJShore, New Jersey, dx October 11, 2012, stage VI, left tonsil cancer, metastatic to left neck, 3 involved lymph nodes of which 2 are extra capsular, tx 30 rads(66 gys), 6 chemo's of cisplatin & taxol, started on Dec 3, 2012. Currently undergoing treatment ( January 3, 2013.)

CynthiaB1's picture
CynthiaB1
Posts: 6
Joined: Dec 2012

Cindy, Buffalo, New york diagnosed May 2012 SCC nasopharynx Stage III concurent radiation (33) Cisplatin and Consolidation therapy with Cisplatin and 5 FU. Completed tx Oct.21, 2012 enrolled 1/3/2013

Mrs. Sarge
Posts: 202
Joined: Apr 2012

Enrolled April 2012.  Stage 1 vocal cord.  Rads only, finished June 15th.  Several scopes/3 CT and all NED!!!  Voice better, appetite too good, feeling better but with the dark cloud of recurrence hovering overhead!  This forum has been a lifesaver to me, tho the side effects and recurrences that sometimes are discussed are heartbreaking.  Hoping and praying for us all!

ekdennie's picture
ekdennie
Posts: 231
Joined: Aug 2010

please change ekdeennie to ekdennie.  otherwise, everything else is correct!  i am doing great, just chasing after my kids and seeing the doctors for each of my scheduled visits. no sign of regrowth!!  next PET sometime in March.

sumarah8
Posts: 32
Joined: Sep 2011

i got diagnosed sept. 2011 for npc stage 2b, still here, struggling to gain weight but im okay...

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Have been gone a while.  Will be updating roll call in the next couple weeks and decided only to do it annually in January.  If checking back in, please post after the last entry.  Aloha and thank you all for posting.  Johnny "HAWVET"

fishmanpa's picture
fishmanpa
Posts: 1134
Joined: Jan 2013

Awesome! So many survivors doing well! Being one that's about to battle this beast, this post was much needed and appreciated. Hooah!

"T"

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

NPC, diagnosed in March, 2012.....Finished rads in June.....finished chemo in August.....I don't go a day without checking into this forum.  You guys saved my bacon!!

p

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

Skiffin16 in the house...

Lakeland, Florida 

STGIII SCC Tonsils and a lymphnode HPV+ Dx January 2009...

 All clear as of January 2013...

Nous Defions's picture
Nous Defions
Posts: 30
Joined: Jun 2012

I was diagnosed June 27, 2012 with T2N2CM0 Stage IV SCC (HPV+) primary right tonsil with left and right lymph node involvement.

First surgery conducted on July 3, 2012.  They conducted a right radical tonsillectomy, left tonsillectomy, partial BOT glossectomy and some other stuff that I dont remember.

Wisdom teeth removed July 25, 2012.

Started treatment on August 6, 2012 which consisted of 6 weeks of chemo (Cisplatin) and Rads concurrently.

Radical Neck Dissection performed on November 8, 2012.

First NED given on November 16, 2012.Cool

I recently returned to work and started my physical rehab, which is kicking my butt.  I went into my first surgery weighing 225 lbs and came out of treatment at 165 lbs.  So, i have a lot of work to do in order to return to my fighting weight.

As of today I feel great and look forward to deploying with my guys in the very near future.

Will

CivilMatt's picture
CivilMatt
Posts: 3093
Joined: May 2012

Howdy,

CivilMatt , Oregon, dx December 23, 2011, Stage IVa, SCC, BOT, HPV+, & 1 Lymph node left side of neck, surgery neck & tongue, 35 rads / 8 Erbitux cocktails.

Checking-in 9:40pm (PST) January 18, 2013.

(692 smoothies later, still a rookie)

Matt

Grandmax4's picture
Grandmax4
Posts: 597
Joined: Dec 2011

Carolyn, Green Camp Township, Ohio...dx September 2011..De Vinci Robot surgery November 2, 2011. Removed epiglottis...by the Grace of God all is well, can eat anything..loveing my family including CNS loved ones.....

jim and i's picture
jim and i
Posts: 1686
Joined: May 2011

Checking in for 2013. Caretaker of husband Jim who was diagnosed with base of tongue stage 4 and two lyph nodes in  April 2011, 35 rads, 2 cisplatin, 3 erbitux. Finished August 2011. Three months later spread to both lungs. September 2012 told less than a year to live. Started gaining weight Jan. 2013. Still believe in miracles. Praising God for time we have together and catching fish, what else could you ask for.

Debbie

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Aloha Skiffin.  Thanks to all for enrolling or updating your status.  Will release the 2013 roll call list shortly.

luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Hope it is not too late!  Husband Pat diagnosed stage II cancer of epiglottis May 2008, treated with chemo & rads.  Recurrence in lymph nodes (4) with extracapuslar spread in April 2009, radical neck dissection, chemo and reirradiation.  For today NED on head and neck cancer.  Chronic lymphocytic leukemia (CLL) diagnosed 2000, finally needed treatment Jan - June 2012.  Complete remission (yes!), but fighting lung infections due to compromised immune system.  Overall, quality of life is good.  Working full time, playing full time and eating just about anything.  I worry always about recurrence, second primary and side effects, but husband does not.  He just lives life to the fullest each day.

Have not posted much lately, but always follow the board.  I am always uplifted by the victories, large or small, and am always broken hearted by the losses.  Each and every one of you are in my prayers always.

 

Myka

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Checking in – almost 3 years out and doing well!  Thanks for keeping this going Hawvet.

 

Greg

Mrs. Sarge
Posts: 202
Joined: Apr 2012

Checking in, several CTscans and scopes and all is well!  I read everyone's comments and questions, so sad for our recent losses!  Mostly lurk now but so concerned and interested in everyone's journey!

greg from pa
Posts: 86
Joined: Jun 2010

greg from pa    5/2010  diagnosed scc base of tounge w/ mets to lymph nodes stage 4      chemo and radiation   nodes removed    NED on          11/10    very happy and gratefull    only 20# shy of my diagnosed weight  going for the last 20 this year ,  going back to work soon

 

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

boyfriend dx SCC base of tongue/1 lymphnode Nov 2012. Almost done with 35 rads and 6 chemo 3 cisplati 3 Erbitux. Will be done Jan 31,2013

sassysrice's picture
sassysrice
Posts: 117
Joined: Nov 2012

boyfriend dx SCC base of tongue/1 lymphnode Nov 2012. Almost done with 35 rads and 6 chemo 3 cisplati 3 Erbitux. Will be done Jan 31,2013

Cape Cod MA

rush1958's picture
rush1958
Posts: 201
Joined: Jul 2010

Howdy everyone. Just checking in for the annual roll call. Please mark me down as "present and accounted for!"

Rush

 

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

July 26, 2012 husband diagnosed stage IV BOT cancer.  Davinci robotic surgery, lymph node extraction, 14 rads.  David was diagnosed with Primary Plasma Cell Leukemia on November 24, 2012.  This cancer is not curable and has been given a 3% chance of living until the next roll call.  I sure hope he is here for it.

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

July 26, 2012 husband diagnosed stage IV BOT cancer.  Davinci robotic surgery, lymph node extraction, 14 rads.  David was diagnosed with Primary Plasma Cell Leukemia on November 24, 2012.  This cancer is not curable and has been given a 3% chance of living until the next roll call.  I sure hope he is here for it.

TheOtherDitto
Posts: 57
Joined: Apr 2012

Ditto1 (patient) and TheOtherDitto (caretaker).  Ditto1 had stage IV BOT, multiple lymph nodes on both sides.  Dx in March 2012 began treatment in June 2012, finished treatment August 2012.  2 cisplatin (3 weeks apart) then 9 Erbitux concurrent with 33 rads.  CT in October was clear, PET in Dec was concerning so additional biopsies were done Jan 16, 2013.  Unofficially all clear - will have follow-up from biopsies on Jan 26th, 2013. 

bjohn
Posts: 17
Joined: Oct 2011

husband dxd with olfactory neuroblastoma 5/11. reoccurance in neck 5/12. good response and feeling well now. Don't post much but read post often for encouragment. Chicago area

Noellesmom
Posts: 1317
Joined: Aug 2010

Dx hypopharyngeal cancer May 2010; 37 rounds of radiation/3 doses of Cisplatin.  NED as of November 2012 PET.

JohnMack's picture
JohnMack
Posts: 1
Joined: Nov 2013

63-year old father who lives in the NJ / NYC area and newly diagnosed.  The news has shaken our family indeed but we're ready to get smart on this and begin the battle to conquer this! MRI scheduled for tomorrow so not sure yet as to the phase.   Any doctor recommendations would be greatly appreciated.  Should we have  both an ENT surgeon and an oncologist? What about a neurosurgeon? What are the best hospitals in the US for surgergy and radiation?

Many thanks to all & positive vibes to all!

 

Heather

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

heather, this is an old thread and could be overlooked.  go to the first page and start a new thread so you can get the responses you are looking for.  Just click, "start

 a new topic".  You will get plenty of information with a new thread.

God bless you,

dj

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Thank you for those who have posted in this 2012 roll call thread.  I will include you in the 2014 listing.  Thank you and Aloha.

 

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