Jan 16, 2012 - 9:25 pm
I'm new here and like many of you, I never thought I would be on this page looking for information or support.
I'm 39, I turn 40 in about 17 days. Happily married for the past 5+ years and have a 3 year old daughter whom the husband and I adore.
I just had a hysterectomy on Jan 10, 2012 and was told I have high grade endometrial stromal sarcoma. So far I am stage 2. Within the next 2 weeks, I'm having surgery to finish staging and to remove the remaining ovary and possibly lymph nodes. (This was a surprise diagnosis, we thought I just had heavy menstrual bleeding and the surgery was planned as such.)
I am looking for anyone who has information about this since I understand it is one of the rarest cancers and information on the internet is sketchy at best. Your support is most appreciated!