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metastatic adenocarcinoma -small intestine from uterine cancer

maryhopeful
Posts: 7
Joined: Dec 2011

My heart has broken as I'm sure many of you have felt when dealing with cancer.
A woman that I love DEARLY has recently been told that she has metastatic adenocarcinoma.
Her plight began with colon cancer nine years ago which was successfully resected. Four years ago, she underwent a hysterectomy due to uterine cancer. Both cancers were low grade level one and no one ever expected any complications.
Over the past few months, she started to lose weight and to not feel well. After endless visits to ER, family doctor, etc. we were able to get a cat scan and a surgeon to explain what was going on. She was told that she has a tumor in the mesentry of the small intestine and that the cancer has spread but is contained currently in the small intestine. She had relief surgery performed to bypass the tumor, but since has had complications and has not begun chemotherapy as of yet.
All who love her are deeply terrified, and unsure about what to expect. I'm looking for anyone who has had a similar situation, and who could tell me about there experience, their recovery, treatment, and how they are doing not only physically but mentally as well. I'm hoping to hear that this is something that you can live with, and that the spread and effects can be stopped, although at this point the oncologist has literally only given us five minutes of his time. We are in Toronto Canada and if anyone has a referral to a doctor they have dealt with that would also be greatly appreciated. Any and all help will be accepted and cherished. I hope you all find peace and that God is with all of you.

p53 study conducted by scientists at the U.S. Department of Energy's (DOE) -this explains a bit about p53's role in cancer. ›

carl17's picture
carl17
Posts: 15
Joined: Jul 2012

I am 63 year old male living in Toronto Canada.

I was diagnosed in May 2012. I had the first warning sign when I got deep vein thrombosis (DVT) in January - this turned into a pulmonary embollisim. My low hemaglobin sent them looking for Cancer and I had an upper GI and Colonoscopy both of which were clear. They considered an abdominal scan but didn't do it ("In my 40 years I have only had one that was positive" said the doctor). Actually he has had at least two one he got and me he missed. In May I was back in the hospital after a second set of blood clots and a second pullomanary embollisim. My body was telling them something.

I had the surgery June 1. I had a resection of the small bowel. They removed a 6.5 cm tumour which was maglnant. It is termed an aggressive variant of macropapilliary adenocarcenoma in the small bowel. (4th section of the dudodema). The margins were clear in the resection but the circumference of the tumour ill defined. I am in stage 3a - Spread to one lymph node.
During surgery only 3 lymph nodes were taken out. The surgeon said the others were too close to viens that feed the small intestine with blood and an error could be fatal.

I am surprised that in the US it seems that removal of lymph nodes seemed more prevalent. Certianly I would have preferred that. I am going for a second opinion surgical consult to see if more can be removed. As what I read about the efficay of Folfoxchemo therapy is not encouraging. One study I saw said it was 'sucessful' in 13% of cases - success being defined as prolonging expectancy by 12-14 months.
I also find it disconcertuing that there seems to be no way of knowing whether the chemo is actualling killing the microscopic cells, so a rational decision as to whether to continue with chemo is impossible.

I had a second CT scan which showed a suspicious 1.6 cm soft tissue nodual which is spread of cancer. If I am extremely lucky it could be post surgical trauma.

I started my Folfox chem on Thursday and wore the chemo bag fannie pack for two days which nas now been disconnected. I have had no side effects yet (accept for the occassional hicup spells) but have been told 5-7 days from the initial chemo is the time the side effects of nausea etc. may materialize.

The second difference I see from a lot of the posts is that radiation is used in the US but not here - too much danger of hitting and damaging other organs I was told.

Please stay in touch.

carl

Sir William
Posts: 1
Joined: Aug 2013

My dad,who lives in Australia has adena carcinoma metastastic bowel cancer.  It has an "unknown primary" which means it has been difficult to treat cause they don't know where it originated. One tumour in small intestine but has spread to surrounding tissues. After 3 different chemo treatments with no affect on the cancer cells, 2 heart attacks and now a feeding tube through his nose, the Dr's have said there is nothing more that they can do.

Can anybody help please!!!!  I need any information or contact details of someone who can help.

It has only been 3 months since we found out he has cancer. It has been a really scary time as i know many of you can relate to.

Thank you in advance.

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