Jan 13, 2012 - 12:52 pm
Found a lump on my upper arm near my armpit, but more on my bicep. Biopsy results came back suspicious for lymphoma and were sent on to Pittsburgh for consult. Those results came back as chronic lymphocytic lymphoma which translates to SLL/CLL. Had Bmbx, a full CT series and blood work in October 2011. My CT scan showed no enlarged nodes, blood work was normal, and I have a 5% marrow involvement. I felt like I was dropped into the middle of the ocean with no idea which direction I should swim. I am a 44 year old wife and mother of 2. When I met doctor after my testing he said I may never need treatment. I follow up with him on Jan 23, 2012 and that I need another CT series at 6 months, which will be March 2012. At my first visit with doc in October 2011, the scope of what it could have been was so large that I couldn't even go in there with good solid questions. Since then, I have been working at getting a list of questions together for my Jan 23 appointment. I have been able to answer some questions on my own as I poke around and do some research. Sometimes I can look at research and say wow...24 year median survival seems long but when I add 24 to my age, 44...it doesn't seem so great.
I did like doc but I'm even confused on staging...He said it was one lymph node so it would be stage I but it was in my bone marrow so that means stage IV and said I would quite possibly never need to be treated. So I have no idea what my stage is. He also seemed to indicate that 5% marrow involvement was nothing at all to be concerned with.
Help if you can...thanks!