Jan 12, 2012 - 10:37 pm
The lovely world of insurance company denied my sister's second chemo agent Xeloda. My sister has an anaplastic astrocytoma with no mgmt mutation that would make it sensitive to Temodar. (well 25% of it is according to the pathology stain). The tumor analysis showed that it could be sensitive to Xeloda. Could is the word. Our neuro-oncologist is on board and wanted my sis to do both Temodar and Xeloda starting this friday. Well the word from the insurance company, who are just clerks in ties, not doctors: it is not indicated for AA, just brain mets.
Our Neuro-Onc wrote an appeal. My mom and I got ready to liquidate our 401K. When I spoke to the insurance company they told me that Xeloda out of pocket would around 4,000 a treatment. I got ready to take my sister to the bank to get a loan at my mom's suggestion. But then my mom, is a pretty smart lady. We looked at how much it would cost in Canada: 126$. Wow what a difference!
So our Plan A: wait to see what happens with the appeal. Plan B, fly to Montreal or Toronto, be seen by a NO, and get the Xeloda.
Now I think we are living in an absurd novel of Kafka when dealing with the bureaucracy of it all. Isn't it enough that our heart and souls are ripped apart without having to deal with money hungry companies?
Disease wise, we hit a bit of a respite: she feels good. I breath a bit better. We are about to have her take prednisone instead of the dexamethasone. We are leaving for a ancient pharaoh trip soon. A trip filled with adventure and amazements. Like my friend Cindy says: day by day. Living in the moment. Not obsessing about the future.
Although... I always planing the next phase of her treatment. Once we get the Xeloda and she tolerates it, I will be adding DCA (low dose 10mg/kg divided into 2 doses per day).
I hate this disease. I want it out of her head. 4ever.