Jan 11, 2012 - 5:57 pm
When I was diagnosed with cancer, I asked the doctor for the "cancer's" name. It was not something she disclosed and she was walking out when I asked the question. She told me the name. Telling her I was going to research it, I wrote it down. She said do not believe everything you read out on the web.
I have heard that and variations of that since my diagnosis. I have outright had people tell me not to research, as it would cause more worry than it was worth. I have had people tell me not to immerse myself in the cancer world...too late...I was/am already here.
I ignored them and researched. Yup, I got all the percentages and "Poor Prognosis's" But I also got empowered. I had a decent idea of what the doctors were telling me. I was able to say yay or nay to treatments knowing what were the consequences. I found this forum and learned more.
For all the hours I researched, I missed an opportunity for a trial. The only thing I lacked was time. I needed to enter the trial x number of weeks after chemo.
If you can bear it, research and learn. Take things with a grain of salt. Be your own advocate. I had a great doctor whom I thought was up to speed on all the trials that I might benefit from....but even then I missed this opportunity. Wading through the information is time consuming and yes....can make this feel absolutely impossible, but sometimes you strike gold.