CSN Login
Members Online: 14

Question about PCI (Prophylactic Cranial Irradiation) for small cell carcinoma

Jules68
Posts: 5
Joined: Oct 2011

Hello everyone. I’m new to this site and need some guidance if you can help. My mother is 65 and was diagnosed with small cell bladder cancer. From what I understand small cell is usually found in the lungs and is rare in the bladder. She’s been through chemo since August and began radiation partway through her chemo so they used the combination of the two for treatment.

She’s nearly finished with her bladder radiation treatments and now the radiation oncologist is recommending preventative brain radiation like they do for lung cancer patients. The scans never proved the cancer left the bladder but the doctor is talking about “one or two cells” that might have escaped and might later cause a brain tumor. Has anyone here had the brain radiation because my mother is really apprehensive about it.

First she’s scared of memory loss. Then she’s afraid the radiation will change her personality or have significant balance issues. I’m trying to gather as many experiences as possible so she can make a better decision when the time comes.

We really need input from people who have either had PCI or know someone who did. We appreciate your help so very much!

wilsel's picture
wilsel
Posts: 38
Joined: Nov 2010

Hi Jules68

You will notice there is not a lot a action on the bladder site so I would recommend trying another site I will give you the address for. I believe you will find a lot more interaction for srue:

http://www.inspire.com/conditions/bladder-cancer/

Wish you well,
Bill

urostomy 06-30-2012, stage 3a bladder cancer, very aggressive tumor

Jules68
Posts: 5
Joined: Oct 2011

Thanks Bill, I appreciate your help. It's getting close to the decision making time and my mom sure needs as much input as possible. I will move over to the other site and give that one a try! Thanks again and I hope and pray you do well too!

wilsel's picture
wilsel
Posts: 38
Joined: Nov 2010

Hi Jules68

You will notice there is not a lot a action on the bladder site so I would recommend trying another site I will give you the address for. I believe you will find a lot more interaction for srue:

http://www.inspire.com/conditions/bladder-cancer/

Wish you well,
Bill

urostomy 06-30-2012, stage 3a bladder cancer, very aggressive tumor

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network