Jan 05, 2012 - 11:26 pm
Back in October I underwent testing for VHL as recommended by a genetics counselor since both my father and I had RCC in our 40's. It took me longer than imagined to fill the little vial up with saliva as bubbles do not count. Anyway, I am happy to report that I tested negative for the disease. I have taken the time to learn much about it and I must say I am so thankful I do not have it. It is one hereditary cause of RCC.
I was advised to tell my son, who is 23, to ask for a scan in his late 30's- early 40's and also that there could still be a genetic factor that they just haven't uncovered yet.