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Von Hippel Lindau

rae_rae's picture
rae_rae
Posts: 266
Joined: Oct 2010

Back in October I underwent testing for VHL as recommended by a genetics counselor since both my father and I had RCC in our 40's. It took me longer than imagined to fill the little vial up with saliva as bubbles do not count. Anyway, I am happy to report that I tested negative for the disease. I have taken the time to learn much about it and I must say I am so thankful I do not have it. It is one hereditary cause of RCC.

I was advised to tell my son, who is 23, to ask for a scan in his late 30's- early 40's and also that there could still be a genetic factor that they just haven't uncovered yet.

Rae

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Rae, very glad to hear you tested negative. I'm presently easing out of morphine withdrawal symptoms and seem not to have enough hours in the day (and night!). So maybe you can spare me the time trying to re-find the reference - I remember reading that research is indicating that many more occurrences of RCC may have a genetic origin. Can you confirm and, if so, can you point me to info. on the subject?

rae_rae's picture
rae_rae
Posts: 266
Joined: Oct 2010

TW,

This link is a good place to start for information about genetic factors and hereditary RCC. http://www.cancer.net/patient/All+About+Cancer/Genetics/The+Genetics+of+Kidney+Cancer

Rae

live life 4 u
Posts: 25
Joined: Dec 2011

Thanks for the link

live life 4 u
Posts: 25
Joined: Dec 2011

Thanks for the link

Txgrl
Posts: 24
Joined: Apr 2014

Did you have any risk factors for kidney cancer?

GSRon's picture
GSRon
Posts: 1211
Joined: Jan 2013

TXgrl... FYI you have posted to a posting that is from 2012.  Sadly we lost TW last year.. Rae Rae is still around though..  If you click on their ICON it tells you when they last were here..

Ron

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