Jan 04, 2012 - 1:35 pm
I have been reading the site for awhile now and finally have decided to post. I am only 29 years old so I cannot believe any of this is happening. But it is and my symptoms have progressively gotten worse over the last 3 months. I have not officially been diagnosed with anal cancer although I feel it is coming. I have seen 2 doctors already, one general surgeon and a gynocologist who have not given me any diagnosis. So I went to a colorectal surgeon just last week. I have a mass or lump around my anus that has been there for months now. My colorectal surgeon says it is either a tumor or endometriosis in the anus(which is extremely rare, rarer than anal cancer even). I have had a anoscopy and colonscopy done which were both clear. The doctors I have seen can feel the lump they just cannot see it as it is in the perianal area. I do not have HPV and everything gynocologically is normal. I had a CT scan only of abdomen and it showed thickening of the uterus and fallopian tubes as well as excess fluid in the peritoneal cavity. The CT scan did not scan the anal area(I don't know why the doctor did not order it to!) which is of course why I am now getting the MRI done of the lower pelvis and thighs and anal area. I will have an MRI done tomorrow and an anal ultrasound next week. I have a few questions about these tests if anyone has any experience with them and getting the correct diagnosis. My questions are these:
If the mass is inside or around the sphincter muscle will it show up on the MRI scan? My fear is that the scan will show nothing but the lump is there. You can see and feel it as plain as day.
If the MRI and ultrasound show nothing then do I ask for a biopsy of the lump?
Have there been instances with any of you where the scan showed no tumor but you had a biopsy done and it was cancerous?
My doctor has not suggested a biopsy yet which I do not understand why. He just wanted the MRI and ultrasound done first. Is this normal procedure to have done first before a biopsy?
The last time I did an enema for the colonscopy it was extremely painful and burned. Have any of you had that experience with doing the bowel prep enemas? I have to do one again next week for the anal ultrasound and I am dreading it. Was this something that was painful for you all ever?
My myriad of symptoms has been ongoing but the most alarming of late are these:
Presence of the lump/mass in perianal area connected to the anal sphincter muscle. The lump is at least 3 cm but feels as if it has gotten bigger as it is now extending towards the back of my vagina entrance.
I am anxiously awaiting any response any of you have for me. I am trying so hard to make sure I get the correct tests done and get the correct diagnosis. Thank you for any of your help. You are all very brave and I have read many of your posts. Most of which have helped me to feel better already to know that if it is what I think it is then I can get through it.