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*************CSN*****************can we get a Natural Remdedy Discussion Board????????????

Nana b's picture
Nana b
Posts: 2834
Joined: May 2009

There are many of us would love a discussion board where cancer survivors that are battling cancer can come to and speak freely about their natural remedy journey. Is this possible? Other then other.......

Nana b's picture
Nana b
Posts: 2834
Joined: May 2009

I did send CSN an email.

PhillieG's picture
PhillieG
Posts: 4666
Joined: May 2005

Unfortunately, civility is out of the question...Those who are against alternative treatments would post the same "stuff" over there anyway. There is PLENTY of room to discuss different successful cancer treatments provided people don't act like _ -_ _ _ _ '_*.
THERE IS NO KNOWN CURE FOR CANCER THAT WORKS 100% OF THE TIME FOR EVERYONE.

*I know that's a tough one...

plh4gail's picture
plh4gail
Posts: 1232
Joined: Oct 2010

I like what Phil said!

toyfox's picture
toyfox
Posts: 146
Joined: Apr 2011

My husband and I are all for that.
Linda

Sonia32's picture
Sonia32
Posts: 1067
Joined: Mar 2009

hugs

geotina's picture
geotina
Posts: 2053
Joined: Oct 2009

As long as it is a discussion as to what people did to stay healthy and cancer free and is not taken as medical advise. Its a fine line and I really do not know the answer. I would hate to see someone who was recently diagnosed, going against medical advise in favor of a stranger on a discussion board. Once they have done their homework and can make an informed decision on which treatment route they wish to take reading discussions can be very helpful.

Good luck with this one.

Tina

plh4gail's picture
plh4gail
Posts: 1232
Joined: Oct 2010

I thought any medical advice questions were supposed to be flagged. I dont know how things work on here to well. Sounds good to me. I can keep it to discussion and opinion. Get it going Raquel.

plh4gail

John23
Posts: 1832
Joined: Jan 2007

I had asked Greta about that years back, and the answer was
a resounding "NO".

The board is provided by the American Cancer Society, and
the National Cancer Institute, both of which are funded by the
cancer industry, manufacturers, etc.

The board is provided to promote information regarding
chemotherapy and radiation, along with all other mainstream
cancer practices.

It took years to go from not being able to post information
about "alternatives", to what it is today. Emily and Lisa
kept a low profile, but were always subjected to naysayers
and others opposing the thought that there can be another
viable way to fight cancer.

We have come a long, long way since the beginning of this
website, and I'm thankful for that. But I do not think that
having a "special forum" is a great idea.

The information regarding any alternative is best presented in
the context it presently is being provided. Most all "alternatives"
can be used along with chemotherapy, and knowing that can
help more people survive, than stuffing the information on
a back burner forum page.

The latest news from the Oncologists, is that there seems to
be a tremendous movement of cancer patients to the trying
of alternatives to compliment present therapy. Many oncologists
are welcoming this event, and supporting it!

In my opinion, the information regarding any/all alternatives
should remain right where it is. Allowing discussions and
opposing views is as important as the information itself.

You can't learn when you stifle information.

Best wishes to all!

John

lauragb
Posts: 368
Joined: Aug 2011

I know semantics matter to some and if it's called complementary as opposed to alternative, it is more acceptable. I for one would love to see this discussion. More complementary therapies are showing up on the websites of the big medical centers. I hope we can read about others journeys for resources for those who are interested.
Thanks for bringing this up.
Laura

elizabethgd
Posts: 146
Joined: May 2009

Yes yes yes... I would very much appreciate this type of information.. Knowing what people have tried and the results..and the ability to ask questions about specifics..I wonder if certain alternative therapies work for only KRAS wild vs KRAS mutated as do the chemo drugs. Those type of questions..The data gathered could be beneficial for many.
We are definitely seeing more "alternative or complementary therapies" at the larger centers. Maybe we are reaching a point where there is cooperation. The ACS recognizes acupuncture as a benefit, doesnt it?

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

I agree with what Phil said though, that I'd worry that some of the naysayers would go on that board and still banter back and forth. Back awhile, when all the religious stuff started, csn started a spiritual board. I was excited about that, but it turned out not to be like I had hoped. Nothing against the people who post there now, so please don't take offense if that's you, but I personally was thinking that I'd be able to talk with like minded people who share my same beliefs. As the word spirituality encompasses a lot more than Christianity (which is where I'm at and how I was thinking), there are people there who really just enjoy discussing various religions, debating, etc. That's fine for some people, just not what I was expecting or hoping for.
I'm afraid a board for alternatives may end up with lots of input, but not neccesarily all by people who think the same.

I think as long as it's allowed, discussions about any alternatives should remain here on the main colorectal board. We've obviously had some people disagree with that thought on here, but it seems like the majority of people like it or at least don't mind it, so my vote is to keep those discussions here. It doesn't appear, however, that Greta or anyone from CSN intervened into those discussions in anyway, does it? I wonder what her/their thoughts are on that.

Lisa

tanstaafl's picture
tanstaafl
Posts: 956
Joined: Oct 2010

I have to agree with Lisa42 that such a board is likely to be much different in makeup and tenor than one might envision.

Since cancer is molecular in nature, keeping the alternatives' results associated with their diagnosis is important, whether vitamins, supplements, TCM or generic drugs like cimetidine.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its a great idea, but i am a simple guy, and going to one place on the net, this forum is all i have time to do.

natural remedies, if we get one, look up my blog on avemar, it will make you cry.
good indications since 2003 for colorectal, i am on it right now.

never been disucssed here. alas.

not that i am into preaching but sharing, well at least we put out a few good buzz words. i hope buzz is ok by the way.

great discussion, i would rather just post here and cop the flake.

hugs,
pete

laurie83833's picture
laurie83833
Posts: 63
Joined: Oct 2009

Aloha Pete:

I had Denny take Avemar for 6 months after inital diagnosis. I wish he would have continued with it but he said it tasted horrible and he couldn't stand it. Kept giving him the dry heaves when he took it. But he did get 6 months of using it right after his colon surgery. So hopefully it helped one never knows. Now we eat healther and he takes various supplements that I found researching the internet, ones that has/had shown promising results. If anything he has not gotten sick with cold or flu's of any kind by taking the suppliments where as I have so in that aspect I would say the suppliments have helped him from not getting sick with everyday common illnesses.

He does take low dose asprin also daily which his Onc recommended to do.

There is good reviews and research on Avemar, but it is quite an expensive suppliment.

Laurie

Denny stage IIB (T4a,no, no) Diag end Oct 2009
No adjucent therapy by Dennys choice, NED since surgery.

"taking it one day at a time and living life to the fullest"

coloCan
Posts: 1845
Joined: Oct 2009

alternative/complimentary/other,etc methods/substances here for what may work for breast or lung cancer may not be as effective for CRC.....

Nana b's picture
Nana b
Posts: 2834
Joined: May 2009

Okay, fine! I am going to go take my vitamins with A glass of wine, then going to grill a steak with a few veggies in it, while I breath in the smoke and eat the charred steak. Then I an going to eat some fresh fruit on a bundt cake covered with Whip Cream. I am then going to take a healthful nap, but first I am going to have my aloe, with a bit of tequila because it taste better....

What ever that is about...LMAO

I just want others to be able to share their thoughts and ideas without being ridiculed or told that they are a witch and should be burned at Steak (stake)!....

Chat with you all later. I an off to cook some dinner and put my feet up.

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

That's actually how I live my life! I haven't given up my little pleasures, like candy and cocktails, but I always try to balance it out with a decent diet, some supplements, a little exercise, etc. May not increase my longevity, but I'm enjoying life along the way! Happy holidays, Ann

Annabelle41415's picture
Annabelle41415
Posts: 4226
Joined: Feb 2009

Now that sounds really good.

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

just joking.

when did having a healthy diet become alternative anyway ?
just asking.

i liked all the answers,

yes we get into arguments, but thats life.

now how we cope with the differences of opinion, thats a whole separate post.

i would say with kindness and respect.

one of these alternatives might help some attain better health, in that context leaving them on our little board is good for us crc's

hugs,
pete

ps i am having turkey soon, its already xmass day 1 am.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

just joking. really that dangerous bbq meat.

whatever floats your boat!

when did having a healthy diet become alternative anyway ?
just asking.

i liked all the answers,

yes we get into arguments, but thats life.

now how we cope with the differences of opinion, thats a whole separate post.

i would say with kindness and respect.

one of these alternatives might help some attain better health, in that context leaving them on our little board is good for us crc's

hugs,
pete

ps i am having turkey soon, its already xmass day 1 am.

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