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Relapsed NHL-Rituxan Maintenance or Stem Cell?

Danco_man's picture
Danco_man
Posts: 14
Joined: Nov 2011

I recently was diagnosed with a relapse of NHL (diffuse large B-cell/aggressive). 4 years ago I was treated with R-CHOP and now they are giving me DHAP since I had a bad experience w/ RICE. After two treatments-I am presently in total remission My primary oncoligist (the Dr. who treated me 4 years ago) has recommended that I have an Auto Stem Cell transplant- HOWEVER a specialist who I have gotten a 2nd opinion from believes that the best treatment option for me right now is to have the collection ONLY (harvest and hold) and then go on a maintenance program of Rituxan once every 2 months for two years. I'm not sure which is the better way to go. Anyone been in a similar situation?

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

Hey Dan, sorry about the difficult time you are having. Like you said, try to be upbeat, know that you will get through this! Don't sweat about not posting, you got a lot on your plate right now, good luck with your treatment, and keep swinging..... Vinny

DadysGirl
Posts: 318
Joined: Aug 2011

Our prayers and thoughts are with you Dan... I hope somehow you will go back in remission and eventually a cure this time... My Dad just started SCT yesterday... :(
Take care Dan...please keep in touch hopefully you'll have GREAT news soon for us...

miss maggie
Posts: 929
Joined: Mar 2010

Dear Dan,

I am so sorry for the hard time you have been having. Please don't give up.
Bendamusatine, I heard is very promising with good results. Rituxan also.
I don't remember, have you ever been on Rituxan before???

God bless. I send my best with prayers for you. Love Maggie

anliperez915's picture
anliperez915
Posts: 751
Joined: Sep 2011

Have Faith Dan,
Don't go into that dark place, I know it's really hard not go there right now but you just have to have faith in this new regimen. It will work and you will be ok! Take care of yourself and don't worry about not posting that often (just don't forget about us). (((HUGS)))

Sincerely,
Liz

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Dan,
I'm so sorry your not improving as fast as you'd like. Try to stay as positive as possible and give the new treatment time to work. My heart goes out to you and I know I would feel no different if I was in your shoes. Please know we are always here for you, and like Vinny said...post when you feel like it and don't worry if you can't or don't feel like it...our prayers will be with you no matter what. Take care friend...Sue
(FNHL-2-3A-6/10)

hopenow2012
Posts: 2
Joined: Jul 2012

Dan,

I am a recent relapse with follicular and large cell NHL.
I have just joined the network and I have read your story.
I would have done everything you did and I wouldn't regret it. At least we have options some work and some don't but my goal is to keep fighting and each year there comes new advances in technology and drugs that may someday do the trick. Rituxan has worked wonders with me and if it does for you then your first line of defense will be Rituxan anytime.

My doctors are currently recommending for me RICE and Bone marrow transplant for my current diagnosis. I have lump mass in my neck and tonsil area with 70% large cell/30% follicular. And my bone marrow has evidence of follicular but not large cell so I can do Autogolous BMT. However, within the past 3-5 days after a pet scan my lump has shrunk by 70% so now my dr says let's slow down and eval as the incidence is phrased spontaneous regression. So, I have a reprieve for a week to see what they make of it.

Good luck to your continued treatment and it is good that you have continued options. Vince

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Vince,
Just wanted to welcome you to the group. June 2010 I was diagnosed with Follicular NHL-stage3-grade2-typeA-with no bone marrow involvement. I did 6 rounds of CVP-R and immediately after finishing started a 2 year Rituxan maint. One infusion every other month...4 rounds left to go. My condition was deemed stable...never quite hit the remission stage since there is one pesky tumor that didn't shrink, but also hasn't grown. As far as I'm concerned, I'm in remission, because I feel great and having no problems to speak of. If you don't mind me asking...how long after your first rounds of treatment did you relapse? My Rituxan will be finished on Feb 14, 2013 and then we will go into the "watch and wait", so it's always in the back of my mind..."when" it will come back. I realize there is no way to predict, but when I hear people have relapsed, I'm always curious how long they they stayed in remission before relapse. My doctor has assured me there are more treatments available in case of a relapse, but I'm hoping I'll get to go more than a few months free and clear of doing any new treatments...(praying for years)!! Anyways..."Welcome to the group" and I hope you will continue to post and keep us up-dated on your progress and care. Best wishes...Sue (age 61)

illead's picture
illead
Posts: 524
Joined: Aug 2012

I am finally figuring this site out. I realize that I am a little late in commenting but myi husband and I just read your story very recently. We do hope you are doing okay. My husband was diagnosed July'11 with MCL. He was treated with bedamustine/rituxan to begin with and after 5 months was and continues to be in remission. We are contemplating a SCT but your story and others have given us a lot to think about. It is such a dilemna. We just hope you are making some progress, I know we all hope that for you. Our thought are with you and your family, Becky and Bill

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